[BADGERParticipant]

Good luck dia I hope your next appointment is a positive one we are all cheering for you :-0
Love Jo

[BADGERParticipant]

hi mike

sorry to have to welcome you to the site but you will find your online friends here are so caring and helpful
I had type two diabetes before i was diagnosed so unfortunatly when taking the DEX I had to go on to insulin as it raised my sugars so much. Myeloma uk is a brilliant organisation they are so helpful and the line to the nurse is a god send especially at the start when so many questions need an answer

Good luck with your journey

Love Jo 😎

[BADGERParticipant]

hello Dia

My husband and I went to the london info day last october it was a brilliant day and was over almost before it began as it was so informative and a very positive day I really felt uplifted Myeloma uk do a brilliant job even the catering was first class the break out groups were good with one just for carers which my husband found really good
Enjoy your day
Love Jo 😎

[BADGERParticipant]

i am so sorry to hear about your brother what a terrible shock which I know for you will hard to come to terms with I send you Big HUG you have every right to be angry Myeloma uk started the take 2 campagn for this reason as too many people have a late diagnosis as so many doctor ignore the symtoms which a simple blood test could solve my thoughts are with you and your brothers children

God bless Jo

[BADGERParticipant]

Hi Bridget

I too read the mail on line it saves buying a paper I was wondering how you are if you are now getting over the worst side effects of the revlimid
has you RT treatment relieved your pain

Lots of love Jo x8-)

[BADGERParticipant]

Dear David

You are a very cheerful person always trying to give is a good story
I think your name suits you well keep us laughing

Love Jo x:-P

[BADGERParticipant]

Hello Jean

I hope you and frank have a great holiday and come back nice and relaxed with a good sun tan
Love Jo 😎

[BADGERParticipant]

hello Gill
I echo what the others have said my dam also burst what a lovely girl

Love Jo x 🙂

[BADGERParticipant]

Hello Mark

sorry to hear about your dad everyone is correct about the myeloma help line they are brilliant I expect they will deal with your dad tumour first before they start intensive treatment the drugs and treatment today are so much better than 10 years ago I would expect your dad is young enough to have a stem cell transplant and if successful you read about some people with 5-10 years remission I have met a couple of people at the myeloma conference who have had this disease for 15 years and are still well its a very induvidual illness
Best wishes to your dad I expect he is still in shock

Kind Regards Jo

[BADGERParticipant]

Hello Jean

hope the G&T helped we got stuck on the sand dunes at maspolomas in a shower of rain while we were there got soaked. I think its good to make plans otherwise life is always on hold
Love Jo x

[BADGERParticipant]

Chin up Dia

You have been so positive upto now I am so sorry the beast is back so soon
but you are a strong character so i am sure you will cope with whatever this thing throws at you next, look at all the new drugs that are in the pipe line that must give us all hope for the future. I could not have a SCT as my kidneys are to badly damaged so thats my hope.
Love Jo x:-/

[BADGERParticipant]

Hello Jean

How is northern irland this sunny day I hope you are not feeling so worried now and looking forward to your holiday in Spain we have just come back from Grand Canary had a good time I know where Frank is coming from we just hope it will go way hard to admit we are ill fingers crossed he will be fine.

Enjoy Your Holiday

Love Jo x :-S

[BADGERParticipant]

Hello Gill

I wasn't told what my paraprotien levels were on diagnoses only my Bench Jones figures which were 22% after my CDT treatment my para's were in a band to fient to measure and still are I stayed on 100mgs of thalidomide for twelve months stopped because of PN not had any treatment for a year now except a monthly infusion of pamidrinate. I was diagnose Jan 2009 not had an SCT due to major kidney damage

[BADGERParticipant]

hI gaye

I think consultants are human to you may have cheered up her day She will be thinking you really appreciate her
Love Jo x 😎

[BADGERParticipant]

Hello amanda

I know it must be hard for you if you love your mum, have you tried the
Local hospice or Mcmillan I am sure they would help with some concelling

Good Luck JO

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