Hi Jenny,
I too have light chain myeloma, diagnosed July 2011, 6 courses of RCD from July to November and SCT March 2012, currently in full partial remission!
I was randomised to take both revlimid and Zolinza but was very ill and so stopped after 6 weeks and am now currently on day 13 of just taking revlimid as part of the maintenance regime.
Love Babs

Hi Megan and Phil,
I have just caught up with your thread here, I had my SCT at Kings in March this year and your daily update is bringing it all back to me.
As previously said all hospitals seems to do it a little differently, I had not found this site when I had mine but now I am on here I find it very helpful,I am finding how you and Phil are…[Read more]

Hi Ali, Graham and Tom,
Yes I too had anti sickness pills with all my CTD and SCT which I took religiously as hate being sick and they helped no end, I did have some left over from earlier this year and still in date so tried to take one but nausea came on too fast!
As for having novovirus, I looked it up on the web and concluded that I would be…[Read more]

Hi Ali and Graham,
Day 1 Saturday of 2nd course ,took the capsules in the evening and about 3 hours later was very sick, came on very suddenly! sick every hour through the night except 5 am, last time was 6 am, weak all day Sunday and took capsules after dinner in the evening, about 3 hours later was sick again ! only the once this time…[Read more]

Hi Sue,
I was diagnosed July 2011 and had SCT March 2012,
My husband gave up work to become my full time carer last September, our life has been turned upside down, at one time I hardly left the house except to attend hospital, was on so much Oxy Contin and Oxy Norm I was not in control of myself,then I overdosed, my husband picked it up and…[Read more]

Hi Mavis,
I think rightly or wrongly If it was not for all the many MM sufferers who had not took part in EARLIER trials we would not have so many people being diagnosed early before the damage caused by this cancer, that is why I am doing the trials because I hope one day they can get to early diagnosis and stop it in its tracks.!
I could not…[Read more]

Hi Jean,
I had my SCT in March this year, I do remember being told to try and avoid getting colds or infections prior to the harvest and on the day they asked if I felt well, yes I did, (except for the bone pain due to the GCSF injections which went away almost imeadiately the harvest commenced.)They took blood tests and we had to wait to see if…[Read more]

Many happy returns to your stem cells Tom, you are such a tonic to me and I am sure many others.
I have been sending my daughter birthday cards to celebrate her diagnosis of her diabetes and so am expecting her to now return the favour!
we have to celebrate how lucky we are to be living with this now mangageable condition, I read the other day…[Read more]

Hi Guys,
Thank you for your replys.
Tom and David,
Vorinostat is the very latest drug on the myeloma xi trial.
Sorry for delay in replying but the pains got so bad my husband decided a trip to A&E was due, we decided to go to the hospital where I see my consultant and where the trial team are based.
we arrived at 6.45 in the morning, to be…[Read more]

Hi Helen.
Thank you for advice on taking revlimid in the evening,I may try changing the time and see if it suits me better,
I too found wearing the wig made me itch, I only got one because my daughter was getting married on 13th July and I wanted to wear a hat which didn't fit my bald head, however half way through the evening I took the wig…[Read more]

Hi Mike,
I like you had been unwell with numerous infections and also have bladder problems,My husband had also been teasing me saying I had shrunk in height, I had noticed a change in my body over the last couple of years prior to getting really constant back pain in november 2010, I then fractured a rib just getting out of bed in April 2011…[Read more]

Hi Ali,
As I said only just started on Saturday but Monday, Tuesday and Wednesday I had really itchy head, drove me to distraction and thankfully now stopped, I have also had one bout of the dreaded constipation followed by tremendous stomach ache then very loose motion all in about two hours, (sorry for be so graphic but don't know how else to…[Read more]

Hi Ali,
I, like your mum have been randomised to Revlimid and Vorinostat but I also take daily aspirin, I started mine on Saturday 17th November.
I had my SCT on 22nd March this year and although I still have 2 to 3 % cancer cells in my bone marrow, which are currently dormant so I am said to be in "full partial remission",
My hair has grown…[Read more]

Hi Eve,
I have been reading this site for several months and you and Slim have been a great inspiration to me, our youngest daughter left the uk in August 2010 to travel Australia for a year, loved it so much she qualified for a second year, met the love of her life and has only yesterday has been granted a visa to stay with him, we brought her…[Read more]

Hi Jean,
I can only say that I wish I had found this site before my SCT as the lonliness in hospital and not having anyone to compare with made it quite hard, since finding this site I have found great comfort in finding my experience very similar to others who are sharing their journey through the process on here.
I worked with the back pain…[Read more]