Hi Andy,

That sounds pretty much ideal in terms of having a trusted consultant monitor your treatment. Can I ask, no SCT because they don’t feel your PP count has dropped enough? Does that mean you have been on constant treatment since you were diagnosed without a break?

Cheers,
Ben

Hi Maureen,

Great to hear that Ian is doing well, i’ll post a report on the Marsden experience when I get back. The paperwork for the consultation arrived today and explains that treatment is planned by a team of healthcare professionals – surgeon (suspect that’s less critical with our brand of cancer other than spinal repair), medical…[Read more]

Since my original post, I have a consultation scheduled at the Marsden in early August for a 2nd opinion and to get an idea of how treatment might differ there. I have also been told that I could in theory split my treatment between two hospitals, for example, join a clinical trial at the Marsden (which might not be available to me locally) whilst…[Read more]

Thanks for sharing your experiences Jeff and Avril, it sounds like every hospital is different, I had thought the NHS would have some sort of protocol as to how many consultants a patient could see in rotation. Avril, I am really glad to hear you’ve got that personal contact, hang onto it! Can I ask why you declined the SCT Jeff? I ask because a…[Read more]

Hello Karl,
I don’t race, but after a decent stretch in remission I have started to bike again and am setting up a new bike to make life easier on my repaired but weak back. I originally fractured 9 vertebra and so I found my rigid road bike too painful, tomorrow i’m collecting a new mountain bike with front suspension and i’ll add a thud buster…[Read more]