Myeloma Forum | BenForbes | Activity https://forum.myeloma.org.uk/members/Ben/activity/ Activity feed for BenForbes. Wed, 22 Apr 2026 00:57:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 c8cc7c10cdabc4ac90cb4420bc7786af BenForbes replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123428 Wed, 29 Jul 2015 21:35:57 +0100 Hi Andy,

That sounds pretty much ideal in terms of having a trusted consultant monitor your treatment. Can I ask, no SCT because they don’t feel your PP count has dropped enough? Does that mean you have been on constant treatment since you were diagnosed without a break?

Cheers,
Ben

]]> 89c47fb217cff711e7f4c17d31e731d9 BenForbes replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123414 Tue, 28 Jul 2015 21:23:57 +0100 Hi Maureen,

Great to hear that Ian is doing well, i’ll post a report on the Marsden experience when I get back. The paperwork for the consultation arrived today and explains that treatment is planned by a team of healthcare professionals – surgeon (suspect that’s less critical with our brand of cancer other than spinal repair), medical…[Read more]

]]> c07b3b805ee9a6e5e268052969b4fce6 BenForbes replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123354 Sun, 26 Jul 2015 21:07:41 +0100 Since my original post, I have a consultation scheduled at the Marsden in early August for a 2nd opinion and to get an idea of how treatment might differ there. I have also been told that I could in theory split my treatment between two hospitals, for example, join a clinical trial at the Marsden (which might not be available to me locally) whilst…[Read more]

]]> e552befec12cea9944be56a8f30187e8 BenForbes replied to the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/#post-123337 Sat, 25 Jul 2015 19:40:41 +0100 Thanks for sharing your experiences Jeff and Avril, it sounds like every hospital is different, I had thought the NHS would have some sort of protocol as to how many consultants a patient could see in rotation. Avril, I am really glad to hear you’ve got that personal contact, hang onto it! Can I ask why you declined the SCT Jeff? I ask because a…[Read more]

]]> dfe94d6addd893feb268a37632b1f4ee BenForbes started the topic Do you deal with a single consultant or a rotating team? in the forum General http://www.myeloma.org.uk/forums/topic/do-you-deal-with-a-single-consultant-or-a-rotating-team/ Thu, 23 Jul 2015 21:49:42 +0100 I am being treated between Gloucester and Cheltenham, been through initial CDT, SCT in Jan 2014 and drug free since then with pp’s pretty stable at 15’ish but slowly starting to rise. As i head towards a likely 1st relapse I am planning to get a second opinion at the Royal Marsden (largely because my local oncology unit lacks a myeloma…[Read more]

]]> 83f95eed8258fd9ef34d64babee0af47 BenForbes replied to the topic Any cyclist who ride regularly or compete in the forum General http://www.myeloma.org.uk/forums/topic/any-cyclist-who-ride-regularly-or-compete/#post-123321 Thu, 23 Jul 2015 21:36:51 +0100 Hello Karl,
I don’t race, but after a decent stretch in remission I have started to bike again and am setting up a new bike to make life easier on my repaired but weak back. I originally fractured 9 vertebra and so I found my rigid road bike too painful, tomorrow i’m collecting a new mountain bike with front suspension and i’ll add a thud buster…[Read more]

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