I wish you well with your current treatment and hope all goes to plan.

I had never…[Read more]

TBH I feel a bit of a fraud asking so many questions on here and perhaps jumping the gun – but knowing what tests were for I felt obligated to understand a bit more about things locally.

However, I got the serum electrophoresis and Bence Jones protein results back. Both were…[Read more]

Don't lose sight of that dream. It may be delayed a bit but you'll get there.

There are so many positive stories on here – and likely many more positive stories from those who only occasionally post here or no longer post here so.

Don't try to deal with it all on your own…speak with folks…whether virtually or directly.…[Read more]

Scott

I'm hopeful that these initial screening tests are positive news.

The serum electrophoresis shows no evidence of monoclonal proteins.

The Bence Jones shows zero detectable para proteins.

Additionally I have no other issues at all apart from it looks like my immune system is a bit ott. I have had sore throat and chesty cough…[Read more]

Unfortunately I am a natural worrier and spend too much time scouring the Internet for information. Does not help

My journey to here started back in May with scrotal lump and generally having more colds than I cared to have. Ultrasound scans of 'bits' and…[Read more]

Serum electrophoresis:

Nothing noted

Bence Jones:

Zero

Suggested to be tested for these as igG elevated.

GP turning results across to colleague who was registrar haematologist at local hospital.

What should I make of these test results…if anything?

Just wondered if there was anyone on here who had been treated in ARI?

Hopefully once diagnosis happened the medical response and treatment started quickly.

Take care.

Scott

What sort of journeys have which ultimately resulted in diagnosis?

I guess employment law as it stands means a company has a duty of care for employees and with some changes to work situation should hopefully mean that folks are not 'pensioned off'.

Having spoken with Co Dr his view is that they prefer to have folks working if they can and will be flexible to the needs of…[Read more]

Typically:

Suitable flexibility to allow for treatment and still remain employed?

Modification of work schedules during recovery?

Working from home if your role permits?

How did you folks deal with the wait and challenge of trying to keep it together to ensure family and work not too impacted during this time?

Slept ok for a few nights but tonight the old brain is churning and churning plus a bit of a persistent cough is not helping either.

Heartening to hear start of treatment so quickly. Was that your NHS GP who responded so quickly? That sort of response time to see specialist is fantastic.

Pat,

Hope you get to a finish or start point very soon. Best of luck.

Scott

I don't have MM, but it may be a potential for me. To this end I am probably thinking about the same issues as you are for your sister and she is very concerned about.

Basically "What will we do if? What happens if?"

You have already started your support by actively looking for guidance.

All I can think of at this time is…[Read more]

No symptoms as per normal guide. Never heard about MM until last week.

I have been being investigated over the last few months for elevated liver alt levels. Ultimately had a liver biopsy which showed no issues.

However been asked to provide Bence Jones urine sample. Quick Google and if found positive could indicate MM is why I…[Read more]

Appreciate the welcome – thanks!

Very selfishly I am obviously hoping that tests turn nothing up and I can get back to 'normality' as it was – focus on the things I enjoy with no restrictions or impacts on those I love dearly.

Primary concerns are accessibility to further treatment if my GP believes further investigation is…[Read more]

Enjoy my job, got a beautiful wife and daughter (just turned 6).

Been a bit of an up and down year….work good employer and like my job.

My family are absolutely brilliant – so much love between us.

Health – a bit up and down. Up – generally feeling…[Read more]