Morgan McVeighs……know it well. Used to stay in Insch but now live at the other side of Bennachie. In fact my 6 year old daughter used to go to horse riding just over the hill which would be behind the A96 as you look out. It is a small world indeed.
I wish you well with your current treatment and hope all goes to plan.
I had never heard of MM until I was made aware of the type of tests I was having and google eventually took me here. I'm sure all would prefer circumstances to be slightly different but reading various posts and responses to my own questions has reinforced my belief that there are many, many good people around.
You take care and be careful on the A96 as you go to and from ARI.
Oh, slightly off the A96 but if you head into Inverurie, Fennel does a good cuppa and bacon roll if you fancied a change of a morning.
Scott
Appreciate the feedback folks. Good to hear good care up here.
TBH I feel a bit of a fraud asking so many questions on here and perhaps jumping the gun – but knowing what tests were for I felt obligated to understand a bit more about things locally.
However, I got the serum electrophoresis and Bence Jones protein results back. Both were fine and no further follow up from GP – who was once registrar Haematologist at ARI.
However, regardless of what happens in the future, before a couple of years back I never really considered anything other than being 100% healthy. This year has really shaken that and I now need to stop thinking "What if…." and focus on the important things in life – being my family and enjoying it each and every day.
Unfortunately Saturday was a bit of a write-off as was round at a friends on Friday evening and I must have drunk far too much wine….my lovely wife had to guide me home and I awoke at 0900hrs on Saturday morning not quite remembering how I got there. Not good! Not touched any since late May and don't intent doing any more in the near future!! Yeuch!!!
Coffee shops of the A96…..sounds worthy of a guide surely 😀
Les,
Don't lose sight of that dream. It may be delayed a bit but you'll get there.
There are so many positive stories on here – and likely many more positive stories from those who only occasionally post here or no longer post here so.
Don't try to deal with it all on your own…speak with folks…whether virtually or directly. Whichever you have made a good start. There are many, many good people who will do their best to assist.
Take care.
Scott
Best of luck Chris…..sure it will go well.
Scott
Peter,
I'm hopeful that these initial screening tests are positive news.
The serum electrophoresis shows no evidence of monoclonal proteins.
The Bence Jones shows zero detectable para proteins.
Additionally I have no other issues at all apart from it looks like my immune system is a bit ott. I have had sore throat and chesty cough last few weeks but it appears to be clearing today….just back from a hilly 25 mile bike ride with my mate which included a nice coffee stop. No tiredness nor sore bones. Twisted back last weekend which meant some muscular tightness which is now going. Saying that the anxiety over last while has made my shoulders tense but that now seems to be going too.
Only other issue is Achilles soreness which started back in Feb….skipping with my 6 year old Daughter. Sometimes Achilles still painful to touch so still some inflammation there.
However who knows……no doubt more tests beckon unless my igG starts coming back down again.
You take care and enjoy this weather whilst it is here!
Scott
Vicki and Colin plus you other rascals……thanks for your comments and wisdom.
Unfortunately I am a natural worrier and spend too much time scouring the Internet for information. Does not help
My journey to here started back in May with scrotal lump and generally having more colds than I cared to have. Ultrasound scans of 'bits' and abdominal region led to simple issue easily resolved. However elevated liver enzymes and a young GP simply saying "This is out with my knowledge so will have to refer you to a specialist but it looks like an immune issue…". This led me to self diagnose auto immune hepatitis and go into mental meltdown. Barely functioning. Consultant was great, but ultimately had a liver biopsy and further waiting for a few weeks. Thankfully all ok with the liver at the moment.
It was last blood test by liver consultant which has taken me here. Elevated igG led to serum electro thingy and bence jones test. GP thought results were fine. However liver consultant called at home tonight to say he had seen my results and felt nothing to worry about. I appreciated that.
Thing is I generally feel great but do tend to spend too much time looking for information. Easily accessible information is sometimes good, sometimes not…..head into far too much wrong thoughts!
I have spoken to some colleagues at work. One early 40's but second cancer treatment in 5 years. She was inspirational. Other colleague 3 years post bowel cancer which was initially missed. My own Mum, my wife's Dad (sadly lost his fight). A young neighbour. I would think very few are not touched by the many types.
Wherever my journey takes me I will join you good folks on here to watch how things go…..positively I sincerely hope for all.
I also intend doing what I can to assist in helping those who are faced with issues.. Whether that is simply helping raise money for cancer charities or taking a more proactive support time will tell.
Vicki and Colin…be strong…..fight….challenge….question….love. I wish you both a positive outcome to your current challenge.
Take care,
Scott
Appreciate the responses to date. Thanks!
Hopefully once diagnosis happened the medical response and treatment started quickly.
Take care.
Scott
Good to hear such positive stories.
I guess employment law as it stands means a company has a duty of care for employees and with some changes to work situation should hopefully mean that folks are not 'pensioned off'.
Having spoken with Co Dr his view is that they prefer to have folks working if they can and will be flexible to the needs of the employee to support them through their journey. Hope this discussion does not bite me on the posterior at some point in the future!
Quite simply all I want to do is ensure that my family are taken care of without having to worry too much about looking out the life insurance policies.
Michele,
Heartening to hear start of treatment so quickly. Was that your NHS GP who responded so quickly? That sort of response time to see specialist is fantastic.
Pat,
Hope you get to a finish or start point very soon. Best of luck.
Scott
Maxine,
I don't have MM, but it may be a potential for me. To this end I am probably thinking about the same issues as you are for your sister and she is very concerned about.
Basically "What will we do if? What happens if?"
You have already started your support by actively looking for guidance.
All I can think of at this time is that you are strong as a family – let her know that you will be there to support the practical outcomes. Be there for her to vent her emotions.
Michele,
No symptoms as per normal guide. Never heard about MM until last week.
I have been being investigated over the last few months for elevated liver alt levels. Ultimately had a liver biopsy which showed no issues.
However been asked to provide Bence Jones urine sample. Quick Google and if found positive could indicate MM is why I have appeared here.
I very occasionally suffer from a slightly sore right knee and stiff shoulders but have put that down to desk job and cycling.
My immune system is very active. Following the 3 invasive procedures I have had in my life my immune system caused lots of strange reactions. Also hay fever since a child. My Dad has Rheumatoid arthritis.
Tom,
Appreciate the welcome – thanks!
Very selfishly I am obviously hoping that tests turn nothing up and I can get back to 'normality' as it was – focus on the things I enjoy with no restrictions or impacts on those I love dearly.
Primary concerns are accessibility to further treatment if my GP believes further investigation is required.
I get concerned that unless treatment starts quickly then whichever disease it is could progress quicker and hence you 'miss the boat'.
However I also appreciate that diagnosis can take some time as can the appropriate treatment regime. Plus I can be an impatient patient!
Take care.
