[BillyParticipant]

my first treatment was Padimac Trial under prof Cavanagh at St Barts .
I was booked to have 6 cycles of treatment over a period of a few months .
after the second cycle had a retuine blood test and found no trace of the cancer to be found .
yes it made me feel very tired and drowsy when i was given chemo but the results were great .the dextamatazone helps with pain and fights the fatigue for the first few days of cycle .my protien levels rose again after 6 mths so i went for stem cell transplant but as an initial treatment i would recommend having a go and prof Cavanagh in a good one .
Results of treatment differ for each person but good luck whatervr you do .

Regards Billy

[BillyParticipant]

hello Scott
i was 100 days post SCT this week so had to go and see my consultant ,I was feeling pretty good as i went to see him but when i left my appointment i was on top of the world as he told me i had achieved a complete remission with no trace of myloma .
I was diagnosed with stage 3 myloma exactly one year ago this week ,it has been a hard year for me but i can now say hang in work at it and we can improve our lives ,good luck .

Regards Billy

[BillyParticipant]

Hi there i had two in one day it was awful sedation for me in future

Regards Billy

[BillyParticipant]

Hi there i had two in one day it was awful sedation for me in future

Regards Billy

[BillyParticipant]

i have paid in 80 pounds per month for life insurance with terminal illness cover included for the past 14 years . when i was diagnosed i made a claim as i was finding life very hard they turned down my claim because they said i was not sick enough . i was at a stage 3 with multiple bone damage to hips ribs spine colar bone and skull , how ill do you have to be ????????????????

Regards Billy

[BillyParticipant]

Hi Clare
My name is Billy 51 years old was diagnosed in August 2012 MM stage 3 PP46
currently PP at 0 : ) have my transplant at Barts on 20 May .
I have had all my treatment at Barts and to date i cannot say a bad word against them they have been great from the consultants to the cleaners i do owe them a lot .
So if you are looking for a recomendation heres one for you , THEY ARE GREAT

Regards Billy

[BillyParticipant]

Hi Billy Here
I was on Velcade for my first treatment after 2 cycles was in complete remission so treatment was stopped and SCT was cancelled .got 4 months remission and it appeared again was put on REVALIMID and Dex AND WITHIN 3 weeks no trace again this time i am going for transplant which will happen on May 15 2013 scared to hell but maby i will get longer remission .my bloods are currently perfect the bone damage is very bad and walking is hard ,
i get bad pain in my legs from drugs and cramps are rotten but am told it will pass in time, kids and wife are my engine. was glad to get date for SCT its the first thing i can plan for a year .
sad to be putting my wife and kids lives on hold ,holidays ,future plans , did not realise how much health matters .

Regards Billy

[BillyParticipant]

We seem to be getting away from my point as in I have paid for years for an insurance policy to protect myself and my family should i get ill .
Now that i am noty only ill but TERMINALLY ILL as diagnosed by a professor and various other doctors .BUT AN INSURANCE COMPANY SAYS I AM NOT ILL ENOUGH TO MAKE A CLAIM . All seems fine when they are taking your payments but when you need them they are useless .
I have a mortgage and 2 kids and wife to feed I know deep down i cannot work like i used to but this has forced me to go to work knowing that each day that i do is shortening my life and possibly making my condition worse but i cannot stand by and watch my family struggle .
2 DAYS AGO I GOT HOME FROM WORK AFTER HAVING A HARD DAY you know what i mean we all have them ,Pain ,depression , effects of drugs ,was not able to face family so i locked myself in shower ran the shower and cryed for ages ,not feeling sorry for myself but feel so cheated .

Billy

[BillyParticipant]

Hello Billy Here .
Just got news i am in full remission and will have Transplant on 15 May
of my stem cells .was feeling scared but now am so relieved to finally know its going to happen .
But hey FULL REMISSION it was so wonderful to see my wife and kids faces when i told them .
ok back to work chat soon .

[BillyParticipant]

Hello Chris
Thank you for reply, incidentally we share the very same birthday and birth date .
My insurance is not a critical illness insurance but a terminal illness insurance which is attached to my mortgage should i get terminally ill it was supposed to pay off the outstanding balance of my commitments .
i applied on the basis that my consultant confirmed that i was terminally ill with MM .
i think i am supposed to have one foot in a coffin in order to get payed out its not as if i am going to Las Vegas to have a spend up and go crazy for one last blow out .
Its at times like this my thoughts as a father and a family man are not for myself but for my wife and kids and making sure they are ok when i am gone , i know what is in store for me the only thing is time and determineing how long that time will be i am not a morbid person by any means but i does cross your mind being in this situation.
There seems to be a double standard as to what terminally ill means one for a doctor and the other for an insurance company .
MOAN FOR TODAY .
Regards Billy

[BillyParticipant]

Hello All
My Name is Billy and i was diagnosed with MM stage 3 in July last year with extensive bone damage to my legs ,ribs shoulder blade and skull ,i am a married man with 2 kids and a mortgage .
I was when diagnosed at a stage where i could not walk 10 yards climb stairs . I spent 5 months vertually laying down with all sorts of things going through my head .my savings helped pay my mortgage and feed wife and kids .I have worked in the construction industary all my life and was always an active man saving are all gone now and due to illness will never get the chance to recoup i went back to work just before Christmas 7.30am to 5.30pm 5 days a week its hard going but at least we can hold our heads up .
I made a claim on my insurance for terminal illness and listen to this they told me i was not sick enough .
Thank god for morphine and i hope that these insurance people never have to deal with insurance people .

Regards Billy

[Author]

Posts