Elizellen replied to the topic Calling Elizabeth in the forum General 14 years, 4 months ago
I am sorry not to have responded earlier, Jean, but hopefully the others managed to point you in the right direction.
I am glad you found it as useful a gadget as I do.
I have not been online much this month due not to being on holiday but to having to take my turn as a carer.
My hubby, Sam, had pneumonia at the start of October with a…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 4 months ago
Hi Chrissie
Concerning the AL,you have to help you husband to get up in the middle of the night,and at his age needs to go more frequently ,you do not have much choice because he cannot afford to fall,if he brakes his hip you will not be able to manage him at home,if you do not get the full amount appeal.it will be back dated and his position…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 4 months ago
Hi Chrissie
just to let you know you are entitled to Attendance Allowance plus Blue badge,you should get about £73 a week,this will help,get a care agency in or pay a friend to just come round and take some of the strain off you,this is so important,have a word with your children tell them you are not coping,may be one of them can just come up…[Read more]
eve replied to the topic New Kitchen in the forum Off topic 14 years, 4 months ago
Hi Tom
When you manage to put the picture on,let me know how you do it,because I havn,t a clue!!!,and I thought you might like like to see my magic draws lol.
In the kitchen of course I have a very small kitchen,so space is important,did a silly thing when Slim was ill and had builder round did not finish jobs completely,just finishing off…[Read more]
brocho replied to the topic Where's Dai? in the forum Off topic 14 years, 4 months ago
I am with Helen 4th from the right is my guess love Bridget x
brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 4 months ago
Hi Mvis that was a great brainwave! Your idea about recording our symptoms etc would be a good one perhaps our moderators will read your post and suggest something I am getting expert at doing the injections now and most of the time it doesnt hurt at all !!The other plus factor is I dont have any bruising when I do it whereas my tummy was black…[Read more]
brocho replied to the topic Treatment failed in the forum General 14 years, 4 months ago
Hi Chrissie it did take several months before I felt the benefit , I was diagnosed in August 2006 I then had induction chemo before having a stem cell transplant in April 2007 It took most of that year to feel well again and then I had to have a hip replacement as the steroids had destroyed my hip joint! I agree with Eve one day at a time helps…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 4 months ago
Hi Chrissie
My name is Eve and I have watched my husband go from a very health man to someone who lost 4 st and lost 5inches in height,and yes I thought I was going to lose him.CTD did not work,Velcade is working for him.so I do have some idea how you feel.
You have to take it one day at a time,and when the good days are there enjoy them.his…[Read more]
brocho replied to the topic Treatment failed in the forum General 14 years, 4 months ago
Hi Chrissie I know its awful when you first hear the words that tell you your loved one has myeloma At the moment I am sure everything seems very scary with all the drugs and terminology But things will get easier as he carries on with his treatment and you will see him looking and feeling better . It sounds as if his doctors are being cautious…[Read more]
mhnevill replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 4 months ago
Hi Bridget
Glad to hear your rash is subsiding. Hope your energy levels rise soon. Guess your tum must feel like a pin cushion. Wonder if they will ever get it so that these drugs can be used with drivers diabetics use, which I understand aren't so painful.
Something Dai said a while ago struck a chord with me, and thinking of all you…[Read more]
mhnevill replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 4 months ago
Hi Jo
I must have missed this post last time I was on site. I am gutted that you have to start treatment again – you were doing so well and so upbeat. However, that will stand you in good stead for this next round of the battle. Your PP levels sound low so was the treatment started just because of your kidney problems? Excuse my ignorance,…[Read more]
eve replied to the topic bad news 🙁 in the forum General 14 years, 4 months ago
Hi Gina Sister and Mum
How are things going,have been thinking of you,did you have a good wedding???
How are you holding up,it must be hard for the family,just to let you know you are not forgotten .Love Eve:-)
eve replied to the topic There is tough and there is tough in the forum End of Life and Grief 14 years, 4 months ago
Hi David
Yes euphemism is another word for die if I am correct(don,t quote me),never went to school in my misspent youth.:-P and never been hot on grammar in Liverpool.LOL
It,s just the scouse sense of humour.Eve
eve replied to the topic Peripheral Neuropathy in the forum Side-effects 14 years, 4 months ago
Hi Wendy
Thanks for the info made a note of it,just in case,Slim does not suffer from PN but,has very heavy legs and twitches as he puts it.I usually read the health column of DM on here every day,must have been a heavy day and forgot.
Glad to see you are doing so well Eve
brocho started the topic MY MOJO IS BACK!!. in the forum Off topic 14 years, 4 months ago
Yippee I have finally got the urge to knit back again after months of not being able to even pick up thr needles! So one hat completed and two to go Hopefully they will be in the post by the end of next week( as long as I remember where I put your addresses) love Bridget x
brocho replied to the topic About As Off Topic As You Can Get 3 in the forum Off topic 14 years, 4 months ago
This just what I need ENERGISATION leaving ION Sorry I know we have had this before love Bridget x
brocho replied to the topic Peripheral Neuropathy in the forum Side-effects 14 years, 4 months ago
Hi Wendy thankyou the article was very interesting . I dont have any pn symptoms at the moment but I will certainly mention this treatment next time I am in clinic love Bridget x
brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 4 months ago
Hi Sue sorry I was convinced I had replied to your post the other day. Gaga! Sorry Michael is having more problems with his pn, it really is a horrible side-effect, I hope it eases off soon My mystery rash seems to be fading now and the doctors arent worried about it so I am ignoring it! The tiredness , I think Thalidomide is the culprit , is…[Read more]
brocho replied to the topic Not New to the Forum in the forum General 14 years, 4 months ago
Hi Ted good to hear from you and very glad to hear you are well . I think we all get a little bit anxious about catching bugs at this time of year, I certainly do after having pneumonia twice! So heres to a winter of being as well we can and no coughs or colds !! love Bridget
eve replied to the topic Inappropriate language in the forum Off topic 14 years, 4 months ago
Hi Everyone
I agree completely some times I read it again and again,thinking what the h-e-l-l have I said,you could almost say heaven should be made offensive as both can be used in the wrong way.for eg: for heavens sake,is on a par with what the h-e-l-l-.and lets face it Tom told us all how to get round it,so if we wanted to swear away we could…[Read more]