Hi Bridget

Good to hear how things are going. Sorry about the sickness, but you seem to be managing things with your usual determination and courage.

I was feeling a bit sorry for myself this evening as my general lack of mobility and tiredness were making it very hard to get ready for a vist from my daughter and two grandchildrenou (4 and…[Read more]

Thanks for the info Helen.

Hope whichever arm of the Trial you are put on it works for you. As you know I have every admiration for those of you willing to take part in the Trials.

Here's to a "good hair day" soon!

Mavis

Hi eve and Slim

What a hard road you have both travelled to get to this point. What a relief, at last, to hear some good news that makes all the difficulties of the Velcade treatment worthwhile.

Here's to the next two rounds really knocking this dreaded MM on the head.

All best wishes to you both.

Mavis

Dear Abi

Like the others I wanted to say welcome to the site and to assure you that things are moving fast with the treatment of MM, and as Dai says, many in a similar position to your Dad have responded very well to treatment. It isn't a walk in the park, but neither is diagnosis the end of all hope.

All best wishes for Monday. I do hope…[Read more]

Hi Penny welcome your wonderfully positive attitude to mm will get you through it !! Being young and fit will also be a big help Just be careful to rest when your body demands it as treatment takes it out of you But I have no doubt you will be running, cycling and mountain walking again before very long Good luck and if you need support there…[Read more]

Hi Belles it must be awful seeing your mum suffer but at least you know its par for the course Hopefully it wont last long and then she will start to feel better Hang in there it will be worth it in the end when she gets a very long remission and you can both get back to normal life love to you both Bridget x

Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

If you did swallow a dictionary you might need AROMATHERAPY to help with indigestion!! Leaving APY love Bridget x

Hi Eve apo;ogies I didnt know they had added different colours The brown ones were preventative in a different way in that you need a certain level in yoour system , often when people feel feel better they stop taking it and because there is not enough if they have an asthma type attack the inhalers dont work. I had to laugh about your daughters…[Read more]

Hi Caz good to hear you are doing well . Sounds like you have got it sorted, the tv days after steroids are essential!! It makes a world of difference if you have faith in the health professionals too , I trust mine as like yours they know my responses very well after five years and umpteen treatments Have they suggested a date for an sct yet, if…[Read more]

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hi Bridget
I have purple and blue one,s
Purple as soon as I get up and last thing of a night preventive
Blue to use any time,but if you use it before a walk or before going up hill,or any time before you do any movement it works far better than,when your chest restricts or a coughing fit starts.
If I forget I pay a price.So I am extra…[Read more]

Hi Dai I hope its not long before you are fighting fit again! Interesting about recovery times I wasnt aware of that but makes sense now I think about it . Eve brown inhalers are preventative and blue ones are as and when you need them love Bridget x

Hi Dai
Inhalers are preventive,use them before you need them!!!!
I did not reply to your post about the conference,sounds silly but I was angry with you for not looking after yourself FIRST,then I felt guilty because I was the one pushing you!!!! I should have realised you only a male and like most male species do not know when to stop .LOL:-P…[Read more]

Hi Pauline
Good for you,I am a great believer,in what ever you want to do,mine just happens to be camper vans,you could not explain to anyone the kick you get out of it.Have had campers for over 18 years,travelled as far as the Sahara Dessert just wish we had done more,but feel ever so lucky,we did not wait until Slim was 65 as MM took over are…[Read more]

Oh Gill

Do not talk about dentist,Monday spent in hospital to have a tooth removed had to have it done but that was the SITUATION.
Taking pain killers,such a coward I am.

ION