Hi Gilly
Nothing surprises me these days,they have got in touch with there legal side before they approached you,I take it this stemmed from a written warning and a consultation,Well to put it bluntly they want you out,
I do not know your circumstances,or how much you need to live,but you can either fight them,but do you need all the hassle,they…[Read more]

Hi Christine
Cannot help you much on this one,except to say,Velcade did create a feeling of anxiety and general accident prone moments,not sure if it was Velcade,but put it down to doing to much and not drinking enough fluids.

Your dad must be feeling pretty bored not being able to do much,and being so young and active,surprised you cannot get…[Read more]

Hi Mal & Bruce
When I first read your posting,I thought,sct with kidney failure,that takes a very brave man,and you are just showing us it can be done.
I am so glad it,s going so well for you and wish you a speedy recovery and long remission:-)
Hope you are both home soon drinking a glass of bubbly to celebrate life.
Best wishes Eve&Slim
PS…[Read more]

Hi Min so sorry for getting mixed up its what happens when I answer posts late at night when my poor old brain has gone to sleep. You will have a great time with your son let alone all the other stuff like sun etc! Great to hear you are feeling better and probably worth stiking with those little wonder tablets ! Min I think you are amazing with…[Read more]

Hi Peggy
just noticed your unfinished post,not that i can help you with side effect as Slim has very little,but can offer you some sympathy as its not very nice when these things are happening,
hope thing are a little bit better Eve

Oh Dai sorry to hear S—s Law has struck again and you are feeling rotten too! I hate it if I have to go to hospital on a FAriday because the chances are very little will be done over the weekend and I end up stuck on a ward when I know home would be a much better place to get well Trouble is there are times when I have been proved wrong and…[Read more]

Haha good one Min ! My reply is GIGGLER that is just like me!! Bridget x

Hi Dai
It all ways seem to start at the weekend,horrible,feel you cannot trouble people,and know you are going to end up in A&E fighting your corner,Slim had bloods taken as par usual,but from getting up knows he is not himself,hospital says he is ok,but cancelled any plans for weekend.doubling fluid intake,ankles BIG,and just not himself.cannot…[Read more]

Hi Jet
Dr Feyler s name is Silvia and she is a consultant Hematologist and you are right, she is German and she is an excellent consultant, very caring with a very good insight into procedures.I see Dr fayler in Halifax but she also works in Huddersfield and I guess Leeds to.Sorry about late post just been busy recently.Glad to hear that SCT…[Read more]

Hi Everyone
David how about Nosology,meaning the branch of medicine that deals with
classification of diseases

How about for OIL

OLIGARCH

love Eve

Hi Dai and Everyone else
I was not sure were to put this post ,and as this topic is included I thought you might like some % of are problems with meds.

As you know Slim did CDt 6 cycles now Velcade on 4 Cycle.=10 Cycles altogether to date.
Out of 10 cycles we have only had the tablets ON TIME twice making that 20% of the time,on the bad days…[Read more]

Hi Debs
We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog…[Read more]

Hi Elaine
Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
Also what treatments are…[Read more]

Hi Deedee
Its all a bit mind blowing at the moment for you,but things will settle down,Its hard when they have been so fit,and now they seem so ill.
Thing will get better,and you will find that inner strength that you need.

I find it helps to find out all I can about MM it works for me,when things seem to be heading in the wrong direction,I…[Read more]

Hi Caz
Just to say welcome,envy your trip to nz,we should have being going this year have a daughter in Mapua.We will get there again was my husband gets remission.8-)

Once you know how much damage to bones there is,you will soon learn to adjust your strength will come back just takes a long time,some people sail through treatment other people…[Read more]

Hi Peggy wow you had a lucky escape! It just shows we cant afford to ignore our symptoms for too long , which I am guilty of ! Hopefully you will never have to be in that position again though so take care and look after yourself love Bridget x

Hi Christine its good to hear from you and great to hear Velcade is doing a good job getting your dads pps down . I remember being very frustrated when on Velcade because I felt so awful for the first part of my week off and others have said the same As its worked so well has anyone suggested a lowerd dose? It might be possible to lower the dose…[Read more]

Hi Mal and Bruce I hope Bruce isnt feeling too awful Happy anniversary , sorry its late didnt see your post . I am sure you will be able to celebrate in style once all this is behind you and life can be fun again love to you both Bridget x

Hi Deedee and welcome now that you have found this site and all the lovely people on here you need never feel you are alone in living with myeloma At first its so hard to come to terms with myeloma and everything it means , let alone all the medical terms and treatments but in a short while it will all start to make sense Just take it a day at a…[Read more]