Good morning Min thank you so much for starting my day with a giggle The image of you emptying the water out of your wellies like that is priceless , I bet the dogs thought you had lost it Watch out though as I bet Daisy will be bursting to tell the world how her nan wet herself!! Tee-hee Shame about the racy sportscar , dont suppose it would be…[Read more]

Hi Dai what rotten luck to pick up an infectionnits so maddening isnt it ! Heres hoping the anti -biotics do the trick sooner rather than later so you can get on with your next velcade. LAots of love Dai feel better soon Bridget x

Hi Etta welcome No wonder you are in a spin , at first it all seems so hard to take in but it will get easier in a short time as you get used to the routines of taking all those meds You have already been given good advice as to anti-sickness tablets and I agree that Zometa can affect you but it tends to be temporary The main thing is to let the…[Read more]

HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve

Hi Gill
No not that good looking LOL:-P
Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
Love Eve

Hi Dai
here,s to today a new day,and Velcade 7,good luck.
Love Eve

Hi Mike
In full agreement with you,think its very important for MM people with no siblings,but were do you start,even I do not know the basic and I try to keep myself well informed.
So the people without MM it must not even cross there minds.
Would take Myeloma UK to start information on this one.Regard Eve

Hi David
Wonderful news,I hope you have a couple of holidays planned,and enjoy this new found freedom,no visit to hospital until end of year that in it,s self would have me dancing . love Eve

Dear Gill and Stephen

Like everyone else I am devastated by the prognosis Stephen was given. Who knows what prompted the Consultant to deliver this news. I'm with everyone else on this – who can tell what the outcome will be once Stephen is on Revlimid. If prayers and good wishes can make a diffference you will prove the Consultant…[Read more]

Hi Dai

Just got back from holiday and great to read your upbeat post. Do hope thst 13 days later you still feel that post Velcade high.

All very best wishes for a much better few months.

Mavis

Hi Bridget

So glad to get back from holiday and find your pain is at last under control. I am so pleased for you and hope that you get onto the drug regime soon so that you can go the next stage towards doing the dancing!

Much love

Mavis xxx

Hi Wendy

Good luck with such a difficult decision. I have read quite a lot on the Myeloma Beacon (the American site) It does seem that allo SCTs carry much more of a risk and there seems to be quite a lot of Consultants who question the nessecity of them.

Good luck with your decision.

Mavis

Sorry David said "Ted". It's post holiday lack of concentration!

All the best.

Mavis

Hi Ted

So glad the dreaded MM continues to lay fallow and you have another three months reprieve – may you have many more.

Mavis

Hi Peter

Welcome from me too. Good of you to come on with an upbeat post. Long may your remission last.

Best wishes.

Mavis

Hi Etta

Sorry you have had to join us. All of us can sympathise about the information overload on top of the shock of diagnosis.

I am just starting on Zometa on Tuesday, having taken tablets for my bones so I will let you know how I get on.

Very best wishes for a quick and long remission.

Mavis

Hi Terry

Have been away and just read your post. Like everyone else I am glad you have now found out how to post to this site. I know you will find lots to help you as well as adding to all our knowledge too.

I haven't any experience of Velcade, but can empathise with your efforts to regain your walking ability. I am currently on two…[Read more]

Hi Etta
Welcome to the site,and to your journey,one that no one wants to be on,but we are,Yes it is all a bit mind blowing,so much to take in and learn it will get easier as time goes on,treat it like a big learn ing curve, any questions ask away,

You do not say what chemo you are on,and it can effect you!!
You should have some sickness pills…[Read more]

Hi Terry
All the chemo differ in how you take it right across the country except if you are a part of a trial,Slim is on Myeloma M1 trials.So it is closely monited and you basically cannot divert treatment.so now on CVD.

Peter had a course of Velcade and then 3 years remission and still going strong.
Slim is doing full 8cycles as light chain…[Read more]

Hi Terry crikey you have certainly been through the mill in the last few years yet you sound so positive and upbeat which I am sure has a lot to do with keeping well I was diagnosed 5 years ago after a year of agonising back pain which meant 3 vertebrae were eaten up Amazingly I did not have any problems walking much to my doctors astonishment…[Read more]