Hi Ivan
It does depend on what type of Myeloma you have and how much bone damage and tumours,plus lesions.some are more aggressive than others.
This is such an individual decease you cannot go on anybodies bench makers.
Did you ask why they had taken you off CDT and put you on Velcade after just a few cycles???? You would normally do at least 4…[Read more]

Hi Ailleen
Welcome to the site,i have been on here since February,and must admit in the bad times could not have managed with out it.:-(
As David says some one is always ahead of you on this journey,I am a carer to my husband,It does take a little bit of time to take in,but my attitude is i want to know everything about this MM,
So do not…[Read more]

hi Ivan
Worth checking out,blood clots one of the side effects,pity about CDT,Slims on 2 cycle of Velcade,no big side effects(touch wood).
It might seem very small ,(like a sore leg) but do get things checked out.
will not have blood clots in future with Clexane surprised you were on such a low does,you look a big man from photo,goes on weight…[Read more]

Hi Nettie
Got to say you have got some guts!!!.but understand were you are coming from,My money will be on its way to you as soon as i work out how to do it,will put it on my facebook,people seem to find it an easy way to give.
My son in law just done the three peak challenge in 24hr.in shocking conditions,the group raised 7000 for childrens…[Read more]

Hi Ted
Must admit never heard of phone appointment !!!. We can ring after 1pm for app.now have a doctor just for extra app and surgery has very early app and late app at 7am and up to 7pm twice a week.
it is getting past the reception desk is the big thing,for eg: my husband has injections which he does himself,my doctors do not like having to…[Read more]

Hi Gill and Bridget,
Gill all that sea air was doing Stephen some good LOL
Talking about the h-e-l-l word,how can they consider it inappropriate !!!!!
Taken a second look at the carpet and walls urghhhhh,bought him a bucket with lid he can carry round .
Bridget good to hear you are in good spirit, or as are tom would say Onward and Upward:-)
love Eve

Dear Martin I am sorry you have lost your dad but it seems he passed in a dignified and peaceful way at home which must have been a comfort to you all Please pass on my condolences to your mum Bridget

Hi Eve yes its good to assert yoyrself when you need to and if Slim wont then he can rely on you If only more doctors learnt how to truly listen to their patients though! So glad Slim is on the mend and hope you caught it nice and early As for upchucking on the carpet sounds like a new carpet needed there Eve!! love to you both Bridget x

Hi bridget
just caught you post before i closed down,i must tell you what went on today,
Went to hospital today,should have gone yesterday,Slim not well,but hung on till last minute,did not matter he painted the white carpet with sick,thats never ever going to come out.:-/
Saw doctor,"o yes his eyes said,no you think you have an infection,I…[Read more]

Hi as I am feeling a bit peckish my word is GNOCCHI and the next one is CHI love Bridget x

Wow Nettie you are amazing there is no way I could do that how brave you are! Well you might be a bit batty but blooming heck that is batty at its best . I will pass the word about sponsoring you Thankyou Nettie for being incredible love Bridget x

Hi Mavis this post really made me smile thankyou Its just the sort of thing that happens to me too !!Tee-hee Good job we are all the same love Bridget x

Hi everyone thankyou what would I do without you to keep me going! Well today I took 20mg in the morning, because thats guaranteed to keep paon away for a few hours followed by a hefty dose of Hydrnorm liquid add an anti-sickness tablet and I was ready to face the world The RT was over in minutes and totally pain free!!Eureka I have found the…[Read more]

Hi Bridget
How are you doing,!! I know by your post,you seem cheerful,its what I call a happy face:-).is the pain starting to get under control,that,s the main thing,Day by day Bridget,you have so much going for you.Keep smiling Eve

Hi Everyone
My word to day is UNDERSTANDING
I have chosen this as I think as a word it says a lot.

ING

Eve

Hi Martin
May I say thank you for letting us know about your father,condolences to all your family.
He died at home with his family,I could not think of a better way to die,I have never heard of the Crossroad girls,but i do know the Macmillan do what they can to make the passing easy,I am so glad your mother found some comfort in this.We fight…[Read more]

Hi Martin

May I add my condolences too. Your Father fought a good fight and I am sure you are glad that he is now free of pain.

Best wishes to you and all the family.

Mavis

Hi Bridget

What happened here was I answered the door, my cartload of medicines, and then thought I'd lost the message and started again!!!!

I can't even blame it on chemo brain.

Love

Mavis x

Hi Bridget

How much is a girl meant to take? So sorry that RT was so aweful. I was worried it may be. Let's hope and pray next two shots are better adn, like everyone says, work much faster than predicted.

Glad they are working on a taylored next step for you. Hope funding doesn't become a major issue. We could all hold placards if…[Read more]

Hi Ted and everyone

I wanted to see my GP before I go off on holiday next week. Last time I got fobbed off with a telephone appointment and it was my firest time at a new surgery. Anyway, they can't look in your ear over the telephone so I took the dreaded route – on the phone at 8.00 am on dot, dressed and readyin case offered early…[Read more]