Hi

I would agree with Rebecca,I think it is very important to know at least the basics in terms of bloods and results of test,so this has been my job as a carer,but saying that I do not always tell Slim the whole facts unless he ask me.

As time goes on other factors come in to play,that may effect your body,in Slims case it was a blocked artery…[Read more]

Hi Ali

I has plasmacytoma wrapped round my spinal cord so had to have surgery four years ago. plasmacytomas in soft tissue seem to be dealt with by radiotherapy.

I like to have my blood results every four weeks when I go for Zometa infusion. I am always frustrated that they do not do PP test routinely. I am keeping a close eye on my kidney…[Read more]

Hi David

Just managed to get back on site after lots of difficulties. Hate this new Sign In set up!

Anyway, good to get on and hear your good news. It is so encouraging that our survival rates are getting longer all the time. I am now in year 4 and feeling good apart from mobility.

May you have many more years and get that trip to Greece as…[Read more]

Hi Ian

Sorry your a Dad has been diagnosed with Myeloma. I was diagnosed in 2010 and chose not to have a Stem Cell Transfusion. I took a Course of chemotherapy CDT two years ago and am currently in complete remission. Although the MM did considerable bone damage, I have a four weekly Zometa infusion and this seems to have kept things…[Read more]

Hi Poppy

Fiona is right,take the time now,as time goes on your gran will not be able to enjoy your company.
People choose there own time to die,so no one can give you a time limit.
As long as your gran is comfortable and not in distress or pain,it will not matter if you are on holiday or not.
It’s a sad fact of life that many older people are not…[Read more]

Hi Ali

As Helen says ,it’s good that life has been normal for sometime and the Myeloma locked away!!

They usually pick up the Myeloma in the bloods,so the cat scan could be old damage,did mum have damage in the same area last time!!
If it is a new Plasmacytoma it can be dealt with on Chemo,Slims old damage and new damage showed on a MRI Scan,so…[Read more]

Hi Andy

We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol

As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I…[Read more]

Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]

Hi Andy

You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]

Hi Carol

No hair!!! Scar on chest!!!,you make me laugh some times,but in a good way,were,s your ozzy spirit.
Tell them to get this thing out,you want to look good on a Ozzy beach!!!!.Eve

Hi Mandy

Why not ask him what he would do if he was in your position,????? But still get another opinion?????,they all have different school of thoughts.

I can only tell you,Slim was basically told,no treatment,would support him so go home and die,he is now being treated by another hospital after a second opinion,and yes we realise he still…[Read more]

Hi Carol

Slim had the opposite of you,when they put it in it took over 4 hours,lot of pain,and because of this when it was removed it was day surgery,it just slipped out,after being in for a very long time!!!

If it’s painful get it removed!!!!,did they realise they left it behind????
It should be a day job surgery.

Don’t,forget to say hello to…[Read more]

Hi Vicki and Collin

Good to see you are still going strong,plus started having holidays!!!if it was me,you would not see me for dust,although I realise things are different for everyone. I suppose it was because are life was one long holiday before Myeloma,or should I say it was just a way of life????

Make the most of what you have got!!!and I…[Read more]

Hi Mandy

The news is not good,but from previous post you new this was going to be that way,Mandy you had no remission so you are high risk and it’s not great for people in this situation, you have good things on your side,you are young enough to have a back to back SCT,you have a family to keep you going,this is all good.

As for lying in a…[Read more]

Hi Jo

Lovely to hear from you.

I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with…[Read more]

Hi Jean

Good for you,keep in that frame of mind,never give up,it will take you both a long way,.Eve

Hi Keith

Quick one!!

Get some chlorpromazine tablets from your GP,they stop the hiccups, Eve