Hi Gina
I have to say I do not think I would be waiting 2 weeks for treatment.Your mum must feel they have given up on her,I know i felt like that with Slim at one time.
If you ask to speak to your consultant,they should be able to arrange something even a telephone call,they usually get together as a team to decide treatment,so might be worth…[Read more]

Dear Sarah

I am so sorry that things are piling up in such an aweful way for you while your grief for Gordon is so raw.

You are strong and you will get through. What a good job you and your son can support one another.

Just had a strange experience – twice when I tried to post with a couple of other comments it said "your message…[Read more]

Hi Gina

So sorry this year is getting worse for your Mum and the family. It does sound as if your Mum is getting worn out with MM, the side effects and the treaments. I do hope tht her lungs do clear to give her some relief. If they don't it may be you will need to face a decision from her not to have any more streatment. I agree with…[Read more]

how about

PUSSYFOOT
Thanks Jean,much easier now.

OOT

eVE

Hi Gill
Its all so TERRIFYINGLY lol:-P

GLY

PS Can any one tell me how to get to the top of this list without using the arrow on the right hand side,is there a quick back to start ???????
Love Eve

Well you lazy people
how about RELAXATION

ION

Eve

Hi Sarah
If you live in a detached house go into a room and scream as hard as you can,it does work!!! then some deep breaths,and tell yourself you are not going insane!!!
With all your troubles life is going to go on,things will get better.Eve

Hi Alison
You have joined a good group who are just like you and will be there to support you,and offer wisdom and comfort,and in the middle you will find you will be able to smile laugh and cry.
It,s a bit of a shock to the system I would not have dreamed in a million years of posting on a site like this,but I cannot tell you how much it has…[Read more]

Hi Gina
As you know Slim has been very ill,his weight went down to 63kgs,it is now 66,which is great,do not let them take the easy option unless that is what your mum want,attitude of mind is a great thing ,your mum does not want to be a burden ,she has to find the will to live.
I think you have to ask them straight out about your mums lungs,if…[Read more]

Hi Gill sorry but Imissed this post yesterday dont know how!! Tell Stephen I know exactly how he feels as Ihad the same thing for over a year before I diagnosed!! Steroids and surgery got rid of mine but not before it took 3 vertebrae with it!! I should be having my RT next week too so fingers crossed we will both be if not pain -free at least…[Read more]

Dear Gina your poor mum must be longing to get rid of whatever is making her feel so dreadful . I am surprised they have not admitted her , or would she not want that. It soeems a long time to have to wait 2 weeks before you see the consultant I think if I were in your shoes I would get hold of the specialist nurse and ask all the questions that…[Read more]

Hi Ellen
I have just been diagnosed with Lightchains Myeloma and I am 50% through my first cycle on Myeloma 11 trial RCD pathway.Is there any info out there on Lightchains,my consultant says its in the "early stage" I am 39 and male quite physically fit..except for the Myeloma!
thanks Paul

Tom
We are lost with out you. eve

Hi
How about

DOMINATRIX

Is that a swear word or a sex word,better watch my knuckles
Slim tells me its a bossy word,

RIX

Hi Bridget
What surprises me Bridget is the turn round of what we were told when we saw consultant,I checked about bone marrow every cycle twice,then yesterday same nurse,said in a few months,that,s why i want it checked out.8cycles,3weeks cycle equals 6 months of treatment,Slims just done 6 months on CDT.
I need to know is this the same for…[Read more]

Just a line to let you know I am also thinking of you and your family and friends today.

Eliz
XX
X

Hi Eve regarding the results following treatment as in Slims case and doctors wanting to wait until the end before doing bone marrow or is it a scan they are going to do? Often the results from these drugs take time to settle so rather than testing several times they prefer to give it time to level out As it is only a few weeks its unlikely to do…[Read more]

Hi Sharon
Slim seems to be in the same situation as you,blood and urine are showing him going in to plateau ,but showing 80% in bones,on 2 cycle of Velcade,went to hospital yesterday,things have changed again,nurse now says will not do bone marrow until near end of cycle!!!.I asked how are they going to check how disease is progressing???? as it…[Read more]

Hi Sarah

It doesn,t just rain it pours as the saying goes,and its raining on you,put that brolly up and protect yourself,you don,t want to catch anything,!!!!

Ask yourself why your MIL is phoning you and not Gordon,s siblings the reason being she feels she can relate to you,and because she see,s you as a strong person who is coping so…[Read more]

Dear Sarah it really doesnt seem fair for you to go through so much I think I understand what you mean when you say your father gave up on hearing of Gordon passing ,when I was first diagnosed and very ill my lovely strong mum changed into a frail old lady instantly Its like she wont put any energy into caring for herself instead she frets over…[Read more]