It is sad news,but not unexpected it was so nice of Gaye to think about us,and to make sure we new that she has passed away.
That is consideration beyond the grave,such a thoughtful woman,putting her house in order,she will be remembered with big smiles on this site:-)Eve

Hi Ivan
I can understand you not wanting to spend time off work,but at least you are being looked at,have you got a good boss?.
Do not let it get you down,You will find in time,that you become more accustomed to these little hiccups,best that it is dealt with early,
MRI scann will show any bone damage on spine,if you look at some of the other…[Read more]

Thankyou Ellen for letting us know Gaye was a very big asset to this forum and she will be missed by a lot of people . I will remember her for her compassion and wonderful sense of humour even when she was going through very tough times Bridget

Hi Russell
Welcome to a club nobody wants to be in!! but we are and it is not only informative,but some times funny,but you will have more fun,in the under fifties ,they are allowed to swear when you get angry ,older ones swear in spaces h-e-l-l.!!:-P
I see it was 4 am when you posted,we have all been there at that time,its when the demons come…[Read more]

Hi Russell you must be reeling from the shock of hearing you have myeloma .The internet does throw up some scary facts , be careful about searching on there as information is often incorrect or out of date The average age is much lower than 70 now and although you are very young at 28 there are quite a few under 50s and several under30s , so…[Read more]

That looks a lot better than the £150 Dai was told!!

Hi Carol its great to hear your good news please dont heasitate to share good news with us it always lift our spirits and as you say lately there has been a lot of sad news .I hope you start to feel the benefits of a lower dose very soon although it does take a bit of time to get it out of the bloodstream Heres to lower doses for a long long time…[Read more]

Hi Dai
I do see were you are coming from,but we do need a spokesman or woman,who can explain the way we see things.Have you e mailed him.
If you are coming to the end of treatment,may be they can give you extra dex and have a dexy day LOL
Glad to see you being positive remember you are living with cancer not dying with it,living in Deal in…[Read more]

Hi Ivan
The service for cancer patients seem so different through out Uk'
I have at least 3 telephone numbers and 1 is 24 hr even holidays someone is on call.
When i have used it,I was told to go straight to A&E second time to call ambulance but both times a nurse from the unit met us,and i have been told in future to ring in,the reason for…[Read more]

Hi Ivan I agree with Eve your hospital is the best place for answers to this one It could possibly be a side-effect and my advice would be to ring them for any new troubling symptoms rarher than your local gp Good luck let us know how you get on Bridget

Hi Cathy
I have to ask do you know what CDT is!!!! Eve

Hi Ivan
Have you been on the booze ,!!! gout only joking, never heard of it myself,
The pain must be bad for you to come on here and mention it!!!!

You must remember Ivan,that most gp do not know much about mm!!!
Have you not been given numbers to ring for any symptoms !!!!,If you feel so unsure please ring the number,??
Ring tomorrow!!!!…[Read more]

Hi Sarah
How are you holding up,I hope the family are keeping you busy,but still finding time for your quiet moments,The harvest must be gathered by now,Hoping you are drawing strength from every thing around you.
best Wishers Eve

Good for you Dai you have my vote love Eve

Sounds like an side plot from a Carry On movie!!

I am glad you managed to sneak him under the wire for a while!!

Eliz
XX
X

Hi Craig
Can I suggest you look under Treatment (up date on cycle 5 of Velcade )!!!
It might give you some in site to the problems,we have it is mainly the last 6 postings.
I was trying to find someone who,has Bence Jones kappa Light Chain,who like My husband had 6cycles of CTD who was considered to be going into remission.bloods good kappa…[Read more]

Hi Min haha I love the image of the pir of you tip-toeing out of the hospital for big macs!! I bet Pter felt a whole lot better as Sundays are horrible in hospital, apart from the lunches!! I hope he gets home today for a few days of normality , which you must both be desperate for. love Bridget x

Hi! Thank you to everyone who has contributed to this stream and best wishes to you all. It is interesting to keep up with side effects and outcomes.

This ties in, a bit, with Dai's contribution today about a form to track it all.

Keep fighting all of you. The good news is that MM isn't always winning. Just a shame that the drugs take so…[Read more]

Hi Dai

I think this is a great idea – the trouble might be getting the medical staff to co-operate. I take my MM Diary along to each appointment to get my blood results, as they can't provide me with a print out – my Consultant says they don't have one!! I'm not sure that she really agrees with me keeping the results and I have only seen the…[Read more]

Hi julie

Thanks for the information. I agree with you – it is hard to get hard information.

All the best to you.

Mavis x