Thankyou what would I do without my lovely cyber friends to keep me going Sarah thank you so much for your post I have been thinking of you this week . Dai it is definitely a myeloma tumour , the mri showed an increase in myeloma apart from the tumour . I think the plan may be radiotherapy , hence the ct scan to get precise measurements, possibly…[Read more]

Hi Min
Just here to send you good wishers,Eve

Hi Bridget
Instincts are a wonderful thing,and we all need to listen to them,as you say you know your body best,better to deal with it,!!!.
Min i thought you have been too quiet,I know what you mean about so much bad news,but that,s what people are here for to help to laugh and cry with you,you yourself made me realise,there is someone out there…[Read more]

Hi Ted,
No you are not the only man on here,if you look at the average person to have this diseases its,men of black race age 70 years,???? I know but thats what facts and figures say.:-P
I think,we see more younger people on this site,because the average age on people who use computers are younger.
We have 2 Davids and a smiley Tom,plus are…[Read more]

Hi Liz
sorry you have had to join this site,but you should find help here.
I think the section that might be more help would be related conditions,
I have no knowledge of anybody with this condition,but i do know mm attacks the soft tissue sometimes.
You could also try the myeloma nurse on this site,phone or send e mail,she helped me with some…[Read more]

Hi Sally
I am a carer for my husband,If I am honest as much as my husband use to be a very capable man,this mm has taken an awful lot from him,and he would be the first to admit ,he does not know what he would have done without me,saying that my husband had septic pneumonia and ended up 22 days in hospital,he has always been a fit man,ex royal…[Read more]

Great news Jet !! There really is no place like home and a spell in hospital certainly makes you appreciate it all the more . I hope your throat heals quickly , it is horrible when you cant eat or drink Dont forget take it slow when you get home ! love Bridget x

Welcome to the gang that you never asked to join, Ted! I am glad that you have not needed treatment so far and hope this will continue as long as is possible.

And a belated "Happy Birthday" from me too!

Eliz
XX
X

Hello Liz!

I am sorry you needed to enrol on this board, but glad to "meet" you.

I don't know anything about your Dad's situation, but am sending you, him and the rest of your family all my love and wishes that the next stages of his treatment are successful.

Any time you need to "rant" don't hesitate to log in and fire away!! There is…[Read more]

I have been following your blog, Jet and am glad to read that you are almost at the going home stage!

I hope that throat soon improves so you can drink and maybe even eat with less discomfort before too long.

Eliz
XX

Dear Gaye, I was also wondering how things were going with your fight, and am sad to read that you have got to this phase in your life.

I hope you will be enjoying that garden for a good long time yet and that the staff are able to keep you comfortable throughout.

Eliz
XX
X

I haven't logged in for a while, so only just read this thread.

How brave of you to go in for such a dramatic way of raising funds!! My contribution will be on its way soon

I hope you and Theresa have a great visit with the rest of the family.

Eliz
XX
X

It is good to read that you are home at last, Keith and are even feeling well enough to get out and about!!!

Eliz
XX
X

Your garden looks lovely, Roz! And that bench is so unusual too.

I am sure Michael will have a smile on his face whenever he is with you in your heart, sitting there enjoying the peace and watching the birds return.

Eliz
XX
X

That was great!! I bet it was fun too. Was it a one-off or something you will be repeating?

Eliz
XX
X

It IS good to hear Stephen is free from those attachments and able to fidget in bed as much as he wants without worrying about pulling something out!!

I hope this "holiday" lasts and you get good news about his numbers soon!!

Eliz
XX
X

Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]

Hi Min I hope everything is going ok so far How disappointing that they dont have an isolation room for Peter , I would have thought that was the highest priority for sct patients I agree with Mavis its a good job Peter has you to watch out for him , but it saddens me that you should have that extra burden at a time when all you want is to help…[Read more]