Dear Dai

Sometmes I despair when I hear what messes happen. But silver lining of seeing the Prof is that precious two week break to look forward to.

Hopefully after the appointment tomorrow they will be able to add something to the treatment for the leg. I do hope the swelling goes down before Pembrokeshire!

Very best wishes.

Mavis

Hi Helen I hope your mums doctors will help you feel less anxious after her appointment today Unfortunately once myeloma appears it does change things , especially in the beginning when everything is new and scary. I promise you it really does get easier as you see your mum coping with various drugs and you start to know the names of all the…[Read more]

This such a great idea to ask for our input on technical services .I am not up to it though mores the pity , the number of catnips I need during the day at the moment would be bound to see me fall asleep mid sentence !! I hope someone more able can do it love Bridget aka Nodding Nelly

Hi Craig
It is nice to think someone actually wants to know what we think!!!:-P
There are some wonderful people on here ,Like Dai who moved from Wales to Nottingham for better treatment,he is not posting at this moment,which is unusual.Could not get in to your RCP Path email address to check you,thought I would let you know!!!.
I cannot help…[Read more]

Dear Sarah

Like everyone else I am so sorry that after such a long, brave battle, Gordon is at last at peace. But so sorry for you and the family. The MM fight must have taken over your life for the past ten years and leave you absolutely exausted.

I am so in awe of those, like Gordon who walked this hard road before us and who helped give…[Read more]

Hi Helen
It is Tom,On wards and upwards,he has not been on for awhile,so it is either his cucumbers or he is on holiday:-)
i know what you mean though ,he just makes you smile.Eve

Hi Helen I am not sure I am going to be much help on this one What I do know though is that the very toxic medicines we take as treatment can be harmful to liver and kidneys as they try to flush it out It may be your mum needs a short break to give her liver time to recover , I would imagine they are being very cautious and doing a scan will…[Read more]

Oh Sarah, I am so sad to read that Gordon has passed away.

My thoughts and prayers are winging across cyberspace to you and your family in this difficult time.

Eliz
XX
X

Hi everybody
i went through all his work,the arsenic and vitamin C one,impressed me,the patient concerned was given 2 weeks,and he was still alive 6 years later,he summed it up,he was keeping him on top of the grass LOL.
he seems to trying lots of different combinations with different drugs,
Anyway Jo Off to hospital today for bloods,and made…[Read more]

Dear Sarah there are no words to express how sad I am to hear Gordon has lost the battle against this bloody awful illness . Both of you faced myeloma with such positivity , strength and humour it just doesnt seem fair .I am sure you will use those qualities to get through the dark days ahead . I hope you will feel able to post from time to time…[Read more]

Sarah
What can i say,my heart goes out to you,it does seem so unfair ,you must be heart broken.I thought you might have had a little bit more time together,to adjust to the situation and reflect together on all you have shared,but time ran out.I am so sorry Sarah.
Take comfort,in your grandchildren, life goes on,you will look at them and see the…[Read more]

Hi Peter and Scott
Very interesting from Dr Berenson,Trying to find all the information i can,to try to understand the going down sct or not.!!!!
My husband Slim has just finished 6cycle of ctd,it looks if they will not be recommending sct,because of his lungs,when he had septic pneumonia,the cat scan showed mass blood clots plus wedge shape…[Read more]

Hi Peggy
Do not know how you managed it but you have two post in General with same title one very up beat,other one not so,!!!! just found this one,as i was looking to see how you were managing:-)
I do not know if anybody has mentioned it,but drinking water is so important for your kidneys,if you find it hard drink anything you like,you may find…[Read more]

Hi Dai it still shocks me just how long you have been kept waiting for a potentially life-saving procedure that takes minutes to do !! I think Eve may have a point about publicity if only to highlight a very serious problem in the dire lack of resources in this area On the other hand as you said until now you have not had any complaints about…[Read more]

Hi there Dai
You have a large leg but still keeping your sense of humour.:-P
May I say Dai your a man who is very good with words,so why not use this gift,you must have a local paper!!!!,copies to executives plus,to paper,hate to say it,but works wonders,like a pain in there side.
Other option is to pay privately it should not cost very much…[Read more]

Hi Jet good to hear things are going well , I never doubted your positivity would get you through it without too many problems!! Debs is home , feeling rough but at least she is with her family which helps a lot . Remember to try not to overdo it and give in when your body needs a rest love Bridget

Dear Sarah and Gordon thinking of you both love Bridget x

Hi Peggy good to hear things are going well , long may it continue ! love Bridget

Hi Gill
I know what you mean when you say privileged ,I am not religious ,but i do thinkwe learn so much about life in times like these.
No one wants to go on this journey,but in many ways it is not only a learning curve but it puts life in perspective,and in turn enriches it.

Fifteen years ago i started another journey.My grandsons,again a…[Read more]

Hi Sarah
Keeping up with your post just so you know you are never far away from my thoughts. Eve