Carol Bradley

  • eve replied to the topic it is back in the forum Treatment 14 years, 8 months ago

    Hi Sarah
    Sorry things seem so down at this moment,Sarah go and see your doctor,all the worry tears and upset is taking it,s toll on you.Get your emotions under control even if it means popping pills it will put you in a better frame of mind,it is so hard when you cannot see any light at the end of the tunnel,and the demons always seem to come out…[Read more]

  • brocho replied to the topic HELLO ANKLES!! in the forum General 14 years, 8 months ago

    Oh Dai I really hope they get your leg sorted very soon!! It is so depressing and I am sorry if my silly post made yoy feel worse Fingers toes and eyes crossed for you love Bridget x

  • brocho started the topic HELLO ANKLES!!. in the forum General 14 years, 8 months ago

    Good Morning everyone I just want to share my happiness today ! After many weeks I now have ankle again , instead of those awful cankles, yippee!! It seems the extra week off last week plus halving my Dex to 20mg has done the trick!! The confusion over how effective Ferusamide is had me puzzled for a while but my consultant advised me to take 40mg…[Read more]

  • Sending Jet and Keith all my best wishes and hopes for an uneventful procedure!

    Luv
    Eliz
    XX
    X

  • brocho replied to the topic Apprehensive in the forum Carers 14 years, 8 months ago

    Dear Min well you deserved a couple of glasses of vino after the day you had!! Thank goodness the surgeon agreed to do the kyphoplasty earier ! I wish theses doctors would consider how they would feel in that situation pain makes the healing process much more difficult but apart from that Peter has had to put up with a high level of pain for such…[Read more]

  • Elizellen replied to the topic it is back in the forum Treatment 14 years, 8 months ago

    Love and prayers to you both, Sarah

    Elizabeth
    XX
    X

  • Hi Carol
    My husband is on Myeloma11 trials started February on ctd arm,intense pathway,got septic pneumonia in April,spent 22 days in hospital,started chemo again on less steroids,because of damage to lungs,just finishing 6 cycle,had meeting with consultant last week,no positive outcome.
    left not knowing what is going to happen,talked about not…[Read more]

  • Good luck Jet and Keith hopefully you will be home again very soon ! It is definitely worth it so hang in there just think of being drug free ! love Bridget x

  • brocho replied to the topic Apprehensive in the forum Carers 14 years, 8 months ago

    Hi Min and Eve I just wanted to say I have never been too worried about knowing the exact paraprotein numbers on my tests, in the first few years before I became a non-secretor, I was just happy to be told they were low or static, I would have found it too stressful to keep wondering how low they were! As you say Min if you concentrate on being…[Read more]

  • brocho replied to the topic I am so angry!! in the forum General 14 years, 8 months ago

    Hi Gina glad to hear your mum finally got started on her treatment you must be so relieved! Hopefully she will gradually get her appetite back and be able to tolerate food ok Gina your mum must be very proud of all of you and I am sure it must be a huge relief for her knowing you are fighting her corner!! lots of love to you both Bridget x

  • brocho replied to the topic it is back in the forum Treatment 14 years, 8 months ago

    Dear Sarah if only I could do more than send you my love and a big hug I will be thinking of you.You and Gordon have been so strong together, I am sure your strength and positivity have kept him going as it will now Sarah Hang in there Sarah hopefully that slight improvement today will be an even bigger one tomorrow Love to you both Bridget x

  • brocho replied to the topic thalidomide in the forum Side-effects 14 years, 8 months ago

    Hi Sharon I am so pleased your consultant was more willing to listen to you. It sounds as if the other doctor was sticking rigidly to the trial protocols rather than adjusting doses for your benefit In my experience of trials the overiding factor is what is best for you as a patient and although the protocols are there there is room for changes…[Read more]

  • Hi Dai

    Do hope you got some satisfaction today. So frustrating that your treatment is going well, but that it is your leg that is setting you back.

    All the best.

    Mavis

  • Hi Jet good luck for this week I m sure you will be home in record time just hang in there !! Remember not to try and rush things too much , your body needs time to get over it so rest when you need to !! love Bridget x

  • Hi Dai like Sarah I am blooming well gobsmacked at the date you have been given for a minor procedure that could save your life!! Good luck tomorrow , give them what for! Well at least my local has got a good system for DVTs and when it was thought I had one the scan was immediate even though I was brought in late at night !!Mind you they fall…[Read more]

  • I shall be thinking of you tomorrow too, Jet, and wishing you an uneventful stay in hospital

    Eliz
    XX
    X

  • eve replied to the topic Apprehensive in the forum Carers 14 years, 8 months ago

    Hi
    Looks if Apprehensive was the right mood for me,came away feeling what a waste of time,and lots of conflicting information,when I asked for statics ,information not forth coming,on another point told bone marrow results had not improved,asked % wise damage,did not have that info but file was on desk!!!.Told all the way through everything…[Read more]

  • brocho replied to the topic Thalidomide in the forum Treatment 14 years, 8 months ago

    Hi Gill so pleased Stephen is feeling better . I am sure he will soon get his appetite back now he is back home with you looking after him Please make sure you look after yourself too though !! Hows the puppy? I hope she has learnt to perform in the right place now!! love Bridget x

  • I feel guilty as I had really no problems before, during or after it except for continued pain from crumbled vertebrae that happened before diagnosis.

    The Stem Cell Harvest was done in July and meant a couple of days in hospital and three sessions, unfortunately they only got enough cells for one procedure (just over the minimum 2 million…[Read more]

  • eve replied to the topic Thalidomide in the forum Treatment 14 years, 8 months ago

    Hi Gill nice to see Stephen has got over this hurdle,it,s a roller coaster ride,all the time,I just wish it would stop for a little while.
    Did not see the article you mentioned but don,t you think it is strange how much it has increased in price over 50 years,£2100,cannot see them 50 years ago paying a high price to stop pregnant women feeling…[Read more]

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