Hi Min

Where are you on the roller coaster!!!!,at the moment I feel i am on a nice level bit!!!! feels like heaven.
Bridget seems to have gone off the radar !!!
I think every ones gone on holiday and left us behind LOL

Glad to see you jumped the hurdle, love eve

Hi Christin

I found i had to ask questions,information was not very forth coming,I think they try not to bombard you with lots of information. i felt if they were keeping information from me,but it is just that they do not know you and do not know what your reaction will be.As time goes on this will get easier,
Your dad has a right to see any…[Read more]

Hi Bellis
Just thought I would pop in and say hello,and offer you a welcome

I cannot help you with your posting,
I am assuming your mums twin will donate stem cells!!!!!.
If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to…[Read more]

Hi Andy
I have a slight problem,and do not know who to ask so i have come to you handy Andy,

Do not know how to change my name on this site,as I now have a different surname,can you help.
kind regard Eve

Hi Min I am so glad things are on the up now ! Enjoy the next few weeks without thinking too much about the next stage You and Peter are such a great team you will get him through whatever comes next!! love to you both Bridget x

I am so glad to hear you have been able to get back to taking hacks, Carol, you must really have missed being able to get out for a decent ride!

And it is great that you now have effective pain relief too. 🙂

And I noticed in another post that you are now in remission, may this last for a long, long time!!

Eliz
XX
X

Hi VIcki
We were told if have little side effects on first cycle the rest are usualy the same but everyone is different.
You do not say what type of Myeloma your dad has,they take bloods and get 2 cycle within days,Once your dad starts on bone infusions the pain will easy but in the mean time make sure you tell the clinic it is very important…[Read more]

Hi Min I am so pleased Peter is feeling better, it must be such a relief for you to see him improving Hope you get a good nights rest and they let Peter come home tomorrow love Bridget x

Hi Dai

This song is great. Makes the idea of a Concert seem real. Any progress on that?

All best wishes.

Mavis

Dear Min

Do hope that Peter improves soon and that he continues to manage to get some sleep in Hospital. I always think if you can sleep it helps.

God bless you both.

Mavis

Hi Keith

Can I join the others in wishing you a good break before your next SCT. Do hope while you are away you can feel like a "normal" person for a few days!

Very best wishes for all the future holds.

Mavis

There is all so a good side for example I changed my gp within the practice because i felt I needed someone who would listen to me.The new gp is a lady and talking to her,she told me on mondays she does her home visits in her own time before she starts surgery,i bet not many gp do that.
When Slim was going to ITU he was rambling on about getting…[Read more]

Hi Eve Jo and Dai your posts just highlight the problems when health professionals become so arrogant it makes them more than negligent bordering on criminally deficient In your grandsons case Eve one woman has ruined his chance of a normal life , you must have been heartbroken and to not admit it was their mistake until the very end is truly…[Read more]

Hi Min
It makes me so mad when I read about some of the things that go on in hospitals,but glad Peter is eating,a good sign. Its all just awaiting game hoping every day he will get a little bit better.
It will get better Min,look at us,2 months on slowly Slim is feeling better every day,and does not remember much of the bad times.At times i…[Read more]

Hello Meika and Christin

Just to say a welcome to you,
May i suggest you look at the post[ a ray of hope ]then go back over the old post,you can do this by clicking on photo.
It might give you some hope and encouragement.
best wishers eve

Hi Sue sorry I cant help with any info on Bendamustine but I just wanted to wish Michael good luck with the trial From my experience I would say you do get very well looked after when you are taking part in a trial Fingers and toes crossed they get his pps down very quickly love Bridget x

Hi Meike so sorry you have found yourself dealing with myeloma but you will find this site a great help for answers but also support for you and Christin as well . I can remember very clearly what a rollercoaster it was when I was first diagnosed but it does get easier as you get used to all the treatmentand life does become more normal. Its good…[Read more]

Hello everyone,

I'm Christin's mum.

To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on…[Read more]

Hi
Thought of some more stupid remarks,
When Slim was in A&E,being sent home,I pointed out his bp 60 over 40 told it did not matter!!!!!!
|Fathers Day went to barby,first time out with people for a long time,daughters sil,came over saying Slim you look rearly well,I expected you to be looking,ill and grey looking,did not comment on his 5inch…[Read more]

Hi Min
How are things going with Peter and yourself,is he starting to pick up ?
Have you far to travel to hospital ,It all takes so much energy,It is suppose to be a nice day today,although its raining right now,lets hope the sun comes out,I find things all ways seem a little bit better on sunny days.
This is just to let you know,I am thinking…[Read more]