Hi Gina

Consultants often have brains but no common sense,sad but true.:-P

Glad to here your mums on the mend,and I hope the treatment goes well.
Been to doctors this morning,looks if Slim has infection,just waiting on results.should know by 5 this evening.
best wishes eve

Hi Min I hope Peter is not feeling so rough today . I can understand Peter wanting to be at home , especially when he is feeling lousy, but he must know by now that you know where is the best place to get better Silly boy !! He must have forgotten who is boss love Bridget x

For anyone not sure, to start a new thread you need to first make sure you have signed in.
Then click on the forum which you think is most relevant then scrolll down to the bottom and to the right there are the words "Start a New Discussion".
Click on that and a box will open where you can add a title and type whatever you want.

Hope this…[Read more]

So sorry Bridget

It might not have been his choice,but at least he did not die,without any body being able to say good bye,and you must draw comfort from that.
It is not very nice to know the powers that be can decide where your last days are spent!!!
Thinking of you in this sad time eve

I would find this helpful too.

Thanks.

Mavis

Hi Vicki, I have not logged in here for a while so hae just seen your post.

I was 60 when I was diagnosed in Feb last year after having a stiff back for 6 months or so culminating in searing pain which sent me to the GP who luckily sent me for blood tests within a week or so.

I had 6 cycles of CDT immediately then a stem cell transplant in…[Read more]

So sorry to hear of your Dad's passing and interested in the possible hereditary connection.
Is there any chance his medical team would be able to test you and your siblings to hopefully catch any early signs in any of you?

Eliz
XX
X

Thankyou everyone your hugs and kind thoughts are very much appreciated. My lovely father-in-law slipped away in the early hours of this morning whilst sleeping He didnt make it home sadly but at least his wife was able to be with him all the time and children and grandchildren were able to say goodbye too My in-laws met when they were 15 and I…[Read more]

Wow, Min that does sound like an interesting new way of harvesting stem cells.

As I have two large rolls of fat, one above and one below the navel that will not shift I would love them to try removing them and see if they could get any stem cells from them. A case of "2 birds with one stone" in my opinion!!

Just sending you and your family my love and hugs Bridget, and the hope thst they can sort something out that is friendlier for him than a hospital bed in unfamiliar surroundings

Eliz
XX
X

I tried the link, Dai, but it led nowhere for me 🙁

Thankyou everyone it helps a lot not to feel alone The good news this morning is he is awake and talking and has even had a cup of tea!! I know this may not mean any change in the long run but just shows how strong a character he is My mother-in-law stayed with him last night but as he was so much better this morning she has felt able to pop home…[Read more]

Hi Everybody

Just had to tell you,my husband say,s the amount of tablets are a meal in it,s self:-P eve

Hi Bridget
Sorry to hear your news,It is sad,Usually when no more can be done,you see the Mac Milan nurse and talk about were you,would like to go.If he cannot come home,try for hospice they are wonderful places,so under rated.

I am a great believer in people do not die until they are ready,you still might have time to arrange it all .My…[Read more]

Hi Jet thankyou its good to see whats happening out there ! love Bridget x

Hi Dai I think its a brilliant idea and thankyou for running with it Yes you are worth it and as you say THINK BIG and baby steps will get the job done love Bridget x ps I have no artistic talent but I could be a cloakroom chic !!

Hi Chrissie sorry I didnt understand at first Oramorph is horrible I cant take it either but it might still be worth asking about alternatives like patches or slow release morphine I have found they are very good at seeking a solution once they realise how miserable pain is making your life Has there been any suggestion of radiotherapy for his…[Read more]

Hi Jo and all

I'm interested that your MM has plateaued. What numbers are your Para protein on? I haven't started treatment yet and I'm very committed to the theory of "as little as possible and as late as possible" so i found Patrick's blog encouraging.

I do worry about the different stories I hear about CDT. I'd love to know what…[Read more]

Hi Jollyroger and Chrissie

If its any help to you,I will tell you,I will tell you about my husband,
66 years of age fit and young looking,6ft 1 and 14 stone,4 cycle of ctd.now 5ft 8 and weights 9st 8lb.looks 20 years older.Had septic pnuemonia not pretty,but he is alive and improving every day although slowly.

It hard to cope with,I thought…[Read more]