H i Alistair I am also under Dr Yongs team at UCH London and they are excellent Not only is Dr Yong good but the whole team are and they have regular meetings to discuss treatment plans , bringing in other professionals when needed , for example an orthopaedic surgeon to suggest a way to ease my back pain The hospital itself is very new and…[Read more]

Hi Kathleen thankyou always helps to know how other people get on with drugs . I am going to start mine tomorrow when I dont need to drive just in case the first one makes me drowsy ! love Bridget x

Hi Da thankyou so much it was a privelige to be able to read your work . It certainly got me hooked and I will be first in the queue to read the finished version. How do you discipline yourself to wrte or do you just write when the mood is upon you? love Bridget x

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

Hi Jo thankyou I know what you mean about dreading the changes in our GP systems I dont think they will be able to cope either Did you get a newsletter about the new cancer centre at UCH? It looks brilliant , especially having scan , x-ray and pharmacy all in the same building as treatment ! I cant wait for it to open love Bridget x

Hi Roberta lovely to hear you are feeling well and back at work. I can understand how those selfish family members have made you feel but I agree with the others let them go !You and your husband have earned the right to enjoy life now after having been through so much recently Put your energy into what you want to do not what you feel obliged to…[Read more]

Dear Min I can only imagine how you must both be feeling , this bloody illness keeps throwing up new challenges. Jos point was a good one they may well go back to something that worked well before If not perhaps they will try Pomaldomide ( not sure on the spelling ) , the drug that Gaye is on at the moment You and Peter have come up against so…[Read more]

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hi Dai I am glad to hear you are feeling a little better , it is horrible when something like that makes you feel as if you are going backwards though ! When I was on Velcade I expected to feel great and have lods of energy on my week off! Wrong the weeek that was drug free was a complete wash-out, which got to be tolerable because I was expecting…[Read more]

Hi Nicki

I just want to say it is lovely that you posted how well things are going for your husband,it gives everyone a boost.

I look sometimes at so many young people with this horrible myeloma and think how sad,lives not lived,so you post must be such a big boost.
I wish you both a long and happy life. eve

Hi Nikki its lovely to hear things are good for you and Sam As you said its hard to imagine that it could be that way when you are facing the worst myeloma can throw at you!! Enjoy your holiday love Bridget x

Dear Gaye it really does seem so unfair that you should get no relief from the pain as others have said its something we are all told we wont have to endure I will be thinking of you on Thursday and hope like mad they can finally do something for you . Kathleen I am so sorry you are having a rotten time , I can only imagine how rotten 2 or 3…[Read more]

Min I think that is lovely,

The pen often means more than the spoken words,I just wish I had the gift,
I have looked on life as a learning curve,for a long time,I honestly believe,that some of the bad things that have happened in my life,an awful lot of good has come out of it too.

I use my denby arabesk and my crystal cut glasses every day…[Read more]

Thanks Dai

Will look at that,Slim goes back on ctd week Tuesday,hope I can fatten him up a bit,they seem keen to put him back on it.I wait and see how he improves.
In need of finding some alternative treatment,

Have you started the music for the lyrics of angels? best wishers eve

hi Everybody
I cannot be much help to you ,only to say weekend or not make that phone call,I have learn,t that you do not hesitate,if in doubt listen to you instincts.

My husband ,has just come out of hospital,They make clinical judgement on a daily bases but at the end of the day you know your partner.
The problem seems to be everyone,reacts…[Read more]

Hi Gina the fact that there is no sign of anything in your mums bm is great , I think this is a more important marker than pp levels which can fluctuate Chest infections can leave you exhausted for ages and I think the power failures is very apt, I can now fall asleep at the drop of a hat during the day!! If the docs arent too worried at this…[Read more]

Hi Ali sorry to hear Guy is having such a tough time but hang in there There are various treatments to help with the bone damage, I have extensive bone damage everywhere except my left arm and left thigh They may give uy a drug called Parmidronate or Zometa which helps strengthen the bones and relieve pain , this can have an amazing effect quite…[Read more]

Hi Dai

So glad to hear the frightening tumour has taken flight. It gives me great encouragement to know that these drugs actually do work in spite of all the side effects which terrify me. It will help me when my time to take them comes.

Do hope things continue to improve for you and that our "bard" continues to be inspired!!!

All best…[Read more]