Hi Andy we we are all whippersnappers really!! As Debs said the under 50 site is great and I think you will find it helpful but I will look out for anymore younguns ! love Bridget

Hi Chris sorry to hear you havent been well , chest infections are really horrible I am struggling with one at the moment!! Hopefully you will be back on top form soon How are you getting on with the lenilimide? I must admit I am struggling with Revlimid , nothing too major just dont feel great most of the time ,mind you I am not falling asleep so…[Read more]

Hi Andy I think you might be right there , an under 30 group would be a very exclusive one !! I should think you were pretty peed off when they gave you the diagnosis, how old were you?!! To be honest I was 51 and still thought I was too young to have myeloma Take care Bridget

Hi Sarah I am on weekly GSF to boostr my neutrophils whilst on Rev . I do occasionally get pain but for the most part its not a problem Hope Frank doesnt have to put up with it for too long . Is there something else he could have or perhaps a lower dose love Bridget x

HI Everybody

Thanks for the info on Maxi-Joule Bridget,I tried doctors for a product you could sprinkle on food,told only certain products on nhs.E Mailed one manufacture who sent soup samples through to district nurse for me,not very nice.Will try this see if it works.
Perkymite I would give anything to see Slim drink,a glass of wine or even…[Read more]

Hi Eve I wondered if you have tried Maxi-Joule to help get extra calories into Slim? It is a white powder , tasteless which you sprinkle onto or into foods and it bulks up the calorie count It can be put on anything from mashed potatoes , scrambled eggs , in fact just about anything ! I used to have to use it for my very fussy daughter who has…[Read more]

Hi Keith good news that you have a possible date for your sct. One good thing in using your frozen cells is you wont have to go through the harvest process again , it can be a real pain second time around ! It wont be long before you are feeling tip -top just make sure you dont overdo it in th early days You have such a strong positive attitude to…[Read more]

HI everybody

Thank you for confirming all those side effects poor Slim going through the lot, hard to watch at times.The only thing he has not done is put on weight,in fact this worries me,tried every thing,he cannot stand any of the soups and drinks to build him up,and his food intake is very poor,says he feels full all the time,would be…[Read more]

Congratulations on your forthcoming wedding, Eve! I wish you both all the best on the day.

I am glad the problems have been mentioned that can come at significant times when people discover that not being married means they have no right to be kept in the loop during their partner's illness and treatment, let alone the rules about wills etc,…[Read more]

What initiative she showed, and what a good, kind man to donate!

Hi Debs you are certainly not alone!As for the weight I have been size 10 -12 for years even into my fifties but now I am a large 14 and so peed off with !! Its now getting to the point where I cant face going out Trouble is its so difficult to get any excercise as my back causes problems and lately I have totally lost my get up and go!! Moan over…[Read more]

Hi Dai there was a post on here regarding the sub cutaneous injections for velcade Sorry I just cant remember who it was , possibly Keith If I remember he had asked also and was told it is not being used here Hopefully Keith or whoever it was ? will see your post and answer Hope you are doing ok love Bridget x

Bridget

Peace of mind,goes a log way,it,s not just the money side of it.It is being treated if it is nothing to do with you after living together so long.The bottom line is you have no rights.
eve

Hi Sandie

Sorry cannot help with pp levels.all different,can say the x-ray the whole head,It is all put on the computer and will be there for your appointment.I know this as my partner has lesions on skull.It shows up better on ordinary x-ray.The mri scan shows better on small bones,they do not x-ray hands or feet.

Hope this gives you some…[Read more]

Hi Eve you have certaily made me think I need to think about my own situation . I was married and divorced very young but Jeff and I have been togetther for 28 years now , like you it has never bothered us and we are as married as any couple can be . I hadnt realised how difficult it could be for him when I shuffle off my mortal coil So now the…[Read more]

HI jo and gill

If truth be known I am making a honest man of him LOL.I use to tell him during are heated moments that I would marry him just so I could divorce him.

For years everybody thought we were married,just presumed,with Slims illness I have found I have had to justify myself,Having to explain are arrangements to strangers,[new laws…[Read more]

Dear Mary and Theresa it so sad to hear things havent worked out for your dad , my heart goes out to you .I am glad you felt able to ket us know and we are all here for you Your dad must be a real fighter and having such a lovely family must make it easier , you girls have been brilliant and if you were mine I would be bursting with pride But…[Read more]

Hi Debs I dont get sinus problems as such but every time I am on treatment I do get the symptoms of a cold , permanent snotty nose and constantly need to blow my nose. I suppose this could lead to sinus problems if you are prone to it Hope she can get some relief though its a horrible pain love Bridget x

Hi Kay Gills post just made me giggle cos when I am on bloody dex I do get a beard ( only a teent one !!) Just thought of an sct advantage of sct thought —- you dont need to deal with hairty legs or anything for months, its brilliant love Bridget x

Gill
Engagement rings were easy,every time he got a tax rebate,we had a renewal of are engagement.I know what you mean about France,the property is given to the children you have no say in who ,gets it if you are not married,We looked into it one time.
In this country you are not considered next of kin to claim a body if your not married,also a…[Read more]