Hi Min they certainly did!! Mind you doesnt seem that long ago I was out partying till the small hours Hope you have a lovely hang-over free weekend love Bridget x

Well my 3 daughters got home at 5 am so I yhink its safe to assume they enjoyed Paddys day in the manner of the Irish !!( no offense) x

Thankyou Dai that is beautiful , I am totally in awe of your talent love Bridget x

Hi Kath thankyou its good to know it does get better Mind you the painful tenderness lasted the best part of a week this month so fingers crossed next month is better !! love Bridget x

Dear Gaye no wonder you are cheesed off you have been in agony for such a long while now. I do hope the rt starts to relieve it soon . I agree with you about pain relief though it seems to be hit and miss in some areasIn the days fo;;owing my op I was on Oromorph but I wont take that again as I couldnt stay awake longer than 5 mins I have found…[Read more]

Hi Tracy welcome to our world ! I do agree with Min about the information found on some sites , I know on this site the info is relevant and accurate.Have you checked the under 50s as well , there is also another forum for people under 5o which if you are interested there is a link for either Phil or Scotty if you e-mail them they can invite you…[Read more]

Hi Tracy

My partner Slim is on 21 day of ctd.He was on B12 vitamins for awhile.I cannot help with gluten intolerance.Slim was very healthy before all this.I think when you are first told about myeloma apart from the shock you start looking for reasons.Everbody will tell you this no one seems to know why or where it comes from,we are all…[Read more]

Hi Clara I have those injections too and the best advice I was given is not to rub it and it definitely hurts much less love Bridget x

Dear Roz hang in there Today was a bad day but tomorrow will be better So many of your friends on here are wishing you well and sending good vibes One day at a time Roz love Bridget x

Hi Min I am so glad to hear Peter is still feeling good , heres to a lovely week off!! I have just had the worst 2 days ever!!Still very painful and tender to touch , sewating eyc and all in all I just feel dreadful but as I havent got a high temp I am reluctant to see the docs before clinicThanks to you though I am looking forward to next month…[Read more]

Hi Sandra hang in there I am sure you will get a lovely drug free summer . I do know what you mean though ,at times it just seems never-ending But the sun is trying to shine and it helps to make us all feel better love Bridget x

hi Nigel

I agree with you it should be easy to arrange medication between Europe,we know from friends in Holland If they need treatment and it is easier to go to Belgium its no problem.We tried it when Slim needed a hip replacement,2 years wait here,we offered to go to Abbyville in France would have cost NHS 5thousand was refused,they paid 11…[Read more]

Sending you and your Mum best wishes for her procedure!!

Elizabeth
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When I heard about balloon kyphoplasty I hoped they could do it for me (lost about 5" and am stooped over) but unfortunately they have decided after xrays and lengthy discussions that it will not be an option for me as my vertebrae are too damaged.

I can't help thinking that if only they had looked at it at the start of my diagnosis it might…[Read more]

Hi Ron I do understand how your wife feels as I too have lost 3 inches in height and my appearance has changed completely in the last 4 yearsThe main thing though is that she does not have any bone pain. I am not sure whether they would do this procedure on the basis of appearance but its definitely worth asking Please let us know how you get on…[Read more]

Hi Keith sorry you are feeling lousy All you can do is listen to your body and give in and rest when you need to The taste thing is the worst symptom I think , drives me nuts Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it…[Read more]

Hi I am sure the french health system is a good one and from what others have said they are well up on treatment of myeloma , but I do think consistency and an element of trust are crucial parts of our treatment It can be difficult if you have to go to another uk hospital during a course of treament , I can imagine the possible problems with an…[Read more]

Hi Nigel welcome to our merry little band !! It is the best place on the net for answers regarding myeloma as it is based on individual experiences, however if I have learnt one thing about mm its that it is a toatally individual illness where the variations in symptoms and response to treatments are unique! Being able to share experiences with…[Read more]

Hi Sarah
I am sorry to hear your Mum has been diagnosed but glad you have found this great meeting place on the web to discuss things with other carers and patients.

Anything you have problems with or questions or your Mum you want to ask just go ahead and post and someone will be along with a reply I am sure.

One thing that might be useful…[Read more]