It was so good to see a post from you Roz, and such an insightful one too!

It summed up many of my feelings and current attitude to life so well.

And thank you to the rest of you for the poems you posted.

Eliz
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Hi Min thankyou these made me laugh out loud ,just what I needed . Hard to believe we put our trust in doctors though!! loive Bridget x

Hi Tanya its fairly common to have bone pain with myeloma , for this its log term pain relief The bone strengthening infusions such as Parmidronate or Zometa do help pain as well I take slow release morphine tablets twice a day which works well for me .There are also patches which release a controlled dose over 24 or 48 hours .If the pain killers…[Read more]

Hi Keith it does sound as if it could be neuropathy I am sure the hospital wil put your mind at rest though It must be very frustrating though and not pleasant I hope it goes soon love Bridget

Hi Sarah you will get loads of suggestions for this one .Heres a couple ofcan think of , a packet of moist toilet tissue wipes ( hospital loo paper is not nice when you have to keep going!),a pillow if the hospital allows it best to check,perhaps a digital photo frame with pictures to keep your mum cheerful, a radio If your mum enjoys reading an…[Read more]

Hi Roz lovely to hear from you love Bridget x

Hi Tanya glad to hear your dad isnt doing too bad Low platelets and blood counts are typical with these drugs and easily remedied so dont worry .I am so shocked they havent given him proper pain relief nobody should have to put up with painWhen I see my doctors pain relief is the first thing they ask about and others have the same treatment so…[Read more]

Hi David you have started something with this game!! My husband is now a total addict who is dtermined to get the maximum score !If only I had paid attention in geography lessons I might have a chance of beating him love Bridget x

Hi Clara I am so glad things have got off to a good start and I hope your dad continues to feel fighting fit for a long time . As long as he doesnt feel he has to keep going through the tired times and rests when he needs to he should do fine It must be a relief for you to see him doing so well love Bridget x

Hi Jet interesting topic I must admit its not something I am prepared to take a risk with Nothing I have read so far has convinced me that using herbal remedies alone could deal with cancer , if that were the case it would have been proved beyond doubt a long time ago . Vitamin supplements to deal with by-products of cancer have been useful for…[Read more]

Hi Min congratulations you must be walking on air!! I have had to give a few presentations in my work so I know how scary it is , you should be very proud of yourself . I hope to get to an info day soon I could use some inspiration at the moment !!My neutrophils are rock bottom too and I have a blood test Monday to determine whether I can take…[Read more]

It is great that your Dad feels able to go to work still!! I felt when on my CDT that if only my back was not killing me (collapsed vertebrae) I could have done my normal stuff, as I really saw none of the side effects that others experienced.

He might just be one of the lucky ones too!!

As long as he follows what his body wants him to do…[Read more]

hi everbody

I have decided to come out in the open;I have kept my partner low key because of family circumstances.

I am eve aged 62 originally from Liverpool ,have lived in Deal KENT FOR 40 Years.My partner who is 66 was diagnosed February the 11 this year.He is known as Slim only his mother called him by his birth name.

We have been so…[Read more]

Dear Gaye I am glad you have finished your rt now I hope you start to feel the benefit very soon . I have been feeling a bit blue myself lately and I am hoping the lighter days and spring weather will make us both feel happier . I hope you have a lovely pain free weekend love Bridget x

Hi Sandra thanks for making me giggle today !!From another oompah-loompah who also has the round face , awful pot belly and stumpy legs !! Shame we dont all live closer we could put on a very authentic production of the show !! Seriously I hope its not getting you down too much sometimes it depresses me more than others( usually when I try to…[Read more]

HI jo

Interested about going on holiday,how do you manage insurance wise? We have been told once my partner gets use to drugs we can go off in motorhome,but he is on morphine ,and only 10 days supplied at a time,so France looks out although for us France is nearer than most counties,and I am happy to drive in France.The customs might have…[Read more]

hello tom

It is a bit complicated with his daughter,in February she knew he fractures in his back,Then he was told he has mm and decided he would tell her h/term when she said she would travel up.She did not come,and no phone calls since,

My own daughters know and are there for both of us.I feel she should be told but will not go against my…[Read more]

It is great to hear how well Sam (and you) are doing, Nikki 😀

Have a lovely time in Poland and I hope you both return refreshed and ready to cope with the challenges of buying your new home and him going back to work!!

Love
Eliz
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Hi jon
You are going to have down days;I do and its my partner who has mm.He has just finished dexa starts again Friday.Iknow he is a bit down right now but being a man keeps it all in.It would be lovely to have a magic wand and turn the clock back,Try to keep chin up regards eve

Hi girls this is certainly a hot topic and I agree bras are a painBut now that I am the size of a house it is actually just as uncomfortable to go without, oh for the days when my nickname was ironing-board!! It has added to the image of militant mmers marching in protest –bra-less and hobbling !! love Bridget x