😀 😀 😀 😀 😀 😀
You got me too, Min!!

Hi Min what a nuisance for Peter to get the trots on his drug free week , just doesnt seem fair. I hope his neutrophils get themselves in order soon It beggars belief that they wouldnt do the serum free light chain test because of cost !!!Grrrr!! It makes me so cross In my case they are the only chance I have of getting an indication of whats…[Read more]

Hi David great to hear your results , you must be on cloud nine !!Lucky you a whole 2 months before your next clinic , heaven. I hope your x-rays can put your mind at rest so that you can have some fun and normality after all you have been through in the last few months love Bridget x

Hi Sandie its good to hear your mum is feeling well and doesnt need treatment at the moment , long may it last Fingers crossed your scan wont show anything nasty .Work does have its good points keeping your mind busy though , hope you dont have to wait long love Bridget

Hi David I make a chart when I begin a new course of meds Just straightforward boxes but I leave room so I can tick off when I have taken them , the charts the pharmacy gave me didnt have space for this .I keep meaning to get a pill organiser but havent so far The other day I was told that these organisers are not safe to use with toxic chemo…[Read more]

Hi Keith it is blooming awful when your veins just cant be accessed and its even worse when you know the situation isnt going to improve. I agree with you wholeheartedly that licensing the sub-cutaneous injections needs to be a priority . It is infuriating that there isnt a short cut for situations like this Hope you arent feeling too battered love Bridget

hi david

Have two boxes for pills,My partner insist on doing his own pills,but there are so many,some days its 45 pills other days as little as25.Plus pills from our own doctor.We have agreed that I check them as sometimes he can be confused becuase of condition.there has to be an easy way of doing this.

I hope someone can tell me of an…[Read more]

Thankyou David what a great picture Bridget x

Hi Marion My partner started on trials today he was allocated to ctd group.Have found the last couple of weeks mind blowing.So much to take in and so many visits to hospital.Then coming to terms with illness and how it will effect future life.It is early days for us,the amount of tablets is mind blowing.CTD drugs then pain releave plus tablets…[Read more]

Haha Min I love it!!Got me with this one Bridgetx

Hi David thankyou that was the funniest thing I have seen in ages Bridget x

Gosh, Kevin, you have been through the wars!!

I am glad you are now back home again

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Hi Chris welcome I am sure you will get lot of support from all the lovely people on here It took me a long while before I even looked at this site , a form of denial I think Unfortunately not all people even try to understand myeloma but its very sad that your husbands family are so unsupportive . Grandchildren are a special joy arent they , I…[Read more]

Hi Kevin its good to have you back .You have certainly been through a tough time and being in hospital that long must have driven you crazy!!! Heres hoping its a very long time before you have to go back there . love Bridget

Hi Kath lovely to hear from you but I am sorry you are having such a rotten time As you say it becomes a balancing act to gain some quality of life when these drugs rule our lives. At the moment I am hoping like mad that next month will be easier as I am fit for nothing most daysWhat I find really frustrating is when you have a day where you do…[Read more]

Hi Jet sorry you have had to join us but welcome to the most supportive group ever! I am on my first cycle of Revlimid too and I have been struggling Like you I am on Dex for four days, 20mg a day, and 25mg Revlimd daily over the three weeks Most of the side-effects you describe can be put down to dex but I think they are magnified when taking Rev…[Read more]

Hi Norman I had my sct at UCH London , the team is led by Dr Kwee Yong who is pretty well known in the myeloma world Food was pretty much what you would expect but you are in your own room so wouldnt disturb anyone one with your own grub Macdonalds over the road and major supermarkets 2 minutes away I used my laptop with a dongle no problemswith…[Read more]

Hi Wolf? my experience with velcade were somewhat similiar the first time I managed about 4 doses but was taken off it because of constipation ,I did have PN but not till 2 weeks after I stopped velcade and it went after a couple of months . I was under the impression that PN due to velcade is likely to go eventually but PN due to Thalidomide is…[Read more]

Hi Kay glad its all sorted now but what really impressed me is the speed you were in and out of hospital!! No wonder you have such faith in them Heres hoping there are no more dramatic happenings As for work it will still be there you are far more important love Bridget x

Hi Keith

Hang in there! Isn't it difficult trying to drink so much liquid. I don't like the tast of water so am becoming quite an expert on low cal squashes! Isn't it odd when we find ourselves monitoring ourselves by the colour of our wee!!!!
Do hope you settle down on the Velcade and that it helps your numbers.

Very best…[Read more]