Now I feel like the odd one out !!My husband has complete control of the remote these days and I havent seen any of this series I shall look out for the repeats , I am sure there will be lots love Bridgetx

Dear Nettie thank you so much its been a lovely day but the children and grandchildren have just gone and I am shattered Good job I have another year before the next one !!Hope you are well love Bridget x

Dear Gaye OUCH!!no wonder you have been in agony I hope they get you sorted very quickly . lots of love Bridget x

Hi Jen I recently asked my doctor about the rules for using velcade againThe reply was "Theirs always a way to get what you need dont worry" I believe this approach is fairly common , and our doctors are very well practised at using different approaches to get us drugs they prescribe At UCH London which is a teaching hospital velcade is readily…[Read more]

Hi David I cant give you an exact figure but I do remember being told they were too faint to quantify .Good luck with your research it will interesting to hear what the consensus is love Bridget x

Hi Sylvia I can understand how frustrated you must feel , as lovely as it is to be looked after , there is nothing like being able to do even mundane tasks yourself again Fingers crossed it wont be long . Mind you the bonus of going out more must be a nice break for you both and the cruises sound wonderful , I have a friend who is going on a…[Read more]

Hi Gill sorry Stephen is not feeling great but I hope that rotten dex does its magic very soon . I start back on it next week , 40mg lovely . I cant remember if Stephen has had radiotherapy for his back painbut I am already finding an improvement in mine It hasnt gone comltetely yet but it vanished over the weekend , mind you today is a…[Read more]

Hi Sarah I am sure it doesnt apply to you though!! I wish I had a fur coat this winter but doubt I would be brave enough to wear it !! love Bridget x

Hi Sylvia you sound like such a positive person that I am sure it wont be long before you turn the corner . I take mst morphine, which is slow release over 12 hours, twice a day and I have found it very good .I believe it is used for a ot of myeloma patients with bone damage Perhaps it might be worth discussing with your doctor ( apologies if you…[Read more]

Hi Sylvia reading your posts it seems like our cases may be very different . I wasnt bent over at all before my op , other than stooping because of the pain As for the pain it didnt seem many weeks , perhaps 4 to recover from the surgery , however I have had continuous pain my back since I am not sure how much of this is due to the metalwork and…[Read more]

Its true we women do love our shoes .Sharon I am crosssing fingers and toes you will be in the sexiest pair of heels you can find for the wedding!! Jo up until 2 years ago when I had my hip replacement I would never wear flat shoes !!Alas now I have no choice , but I do still manage wedges occasionally and its worth the pain !! Sarah I was told…[Read more]

Hi Sandie how lovely to hear that your mums doctors really listened and responded so well to your request . I agree with you that being direct and telling them you expect no pain is a good approach Unfortunately some doctors are better than others in this procedure and if you get a duff one its awful Heres hoping its good news when your mum sees…[Read more]

Hi Sylvia sorry you have had a relapse after a short time , but lots of people have had great results with velcade ,hopefully it will be the same for you When I was diagnosed 4 years ago, after a year of agonising back pain, it was discovered 2 vertebrae had been destroyed and a third was also damaged .Before I could begin treatment for myeloma I…[Read more]

Hi Sharon you must be so frustrated I do hope your leg gets back to normal soon You have done well on oromorph I could only take it for a few days after my surgery as it made me fall asleep all the time , sometimes in mid-sentence! Just a thought have you applied for DLA? You would certainly be entitled with your mobility so compromised and if…[Read more]

Dear Gaye

I echoe what everyone else has said. Your posts have been very encouraging to me, anewcomer to all this. Bless you.

Like you say, it is so good that so many of you are beating your "sell by dates"!!! I will never forget how I felt, when diagnosed in hospital, by an almost casual remark, and then looked on the TV web site and it…[Read more]

Hi Kay

Hope things go well. Let us know we will be routing for you.

Love

Mavis

Hi Jenny

Just caught up with this thread. Sad to welcome you to this site on your Dad's behalf. Glad to hear he is making some progress.

Step parents are a problem. My Mother married again at 75 ys, to a relative of my sister-in-law. When she was in the last week of her life my step father siad she was too ill to speak to me on the…[Read more]

Hi Scott

Welcome to this site. I'm a relatively newcome too but have found it really helpful.

I'm aleays interested in anyone else, who like me, isn't keen to rush into chemo. I went to Consultant this week. PP level 7. She says I'm aneamic and might need a blood transfusion. Evidently, radiotherepy, which I've just finished, can…[Read more]

Hi Gill that was priceless !!As someone who cant queue without scowling when I am on the lovely dex it strikes a chord!! Perhaps Stephen should wear a hat and glasses for a while in case he is on a wanted list !! Thankyou for starting my day with a smile love to you both Bridget x