Dear Gavin
I'm surprised that i didn't pick up on your posting before as I have been asking very simnilar questions to you.

I was diagnosed in Oct 10 at age 65yrs. I had an op to remove a plasmatoma to my spine. There are traces of MM i(now at 10 I believe) in my bone marrow, but like you everything else was fine. MY first meetings with the…[Read more]

How great to hear how well you are doing, Shirley!!

Onwards and Upwards!!

Eliz
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Hi Sarah I am glad you have got your admission date now , you will be at the top of the tower great views of London!! I have got quite a few appointments coming up for my radiotherapy so if I can I will pop up and see you Good luck and just remember it really is worth it and you will be home before you know it My recommendation for the boredom is…[Read more]

Hi Ron sorry your wife is feeling rotten ,once the treatment starts to kick in she will feel better Anaemia is very common in myeloma, especially when first diagnosed.I didnt have any negative reaction to the transfusions and it certainly made me feel better. Its all so confusing in the beginning so you have come to the right place to ask…[Read more]

Hi Shirley great to hear you are doing so well not long now till you are home . I know whatyou mean about losing curls though I was upset when mine went last year and when it came back with no curls!! But life would be very boring if our hair stayed the same !! love Bridget x

You are a part of our family here, Roz, so are welcome to post as much as you want and about whatever you want as long as you want to be here!!

I will be thinking of you and your girls especially on Friday.

{{{{{{{{Roz and the girls}}}}}}}}

Eliz
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Dear Roz as David has said you are more than welcome here, you are one of us after all , you have been through every step with Michael. I am sure your experience will be invaluable if you feel able to continue sharing . Celebrate Michaels life and the love you shared on Friday and remember when things get tough he is always with you .love Bridget x

Hi Gill as you know I am also anti-Dex it is a horrible drug ,by far the worst !!So I am glad you have your Stephen back and long may it last!! I am enjoying not being on dex too ,now I just want my body to return to its normal shape Hope you had a good xmas and heres to a very happy and healthy new year love Bridget x

Hi David I know exactly what you mean My tractor moment was doing the washing believe it or not !!It gave me so much pleasure to do an ordinary task myself and the I knew I was home love Bridget x

Dear Roz the poem is so beautiful and moved me to tears too You will do Michael proud My thoughts are with you and Rachel and Lauren love Bridget x

What a beautiful poem and remembrance of your darling Michael, Roz. It brought tears to my eyes and a lump to my throat.
Thinking of you, Rachael and Lauren
Love from
Elizabeth
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Happry New Year David and all of you great people whom I count as friends May 2011 be a good one for us all love Bridget x

Hi Gavin I missed your post originally but I see you have made your decision now Good luck with the chemo and trial In my experience the care you recieve when taking part in trials is excellentAs for your age being a factor David( Perkymite) has just had his sct at 68 and is doing very well so theres no reason to think age alone would mean…[Read more]

Hi Georgina I met Prof Tobias last year and was due to have radiotherapy then , but as I was taking part in the Myeloma X Trial and radiotherapy would have inhibited sem cell collection, it was postponed. Jane the specialist nurse is brilliant and I could have seen the Prof the day before xmas eve, I chose to wait as I had just come out of…[Read more]

Hi Sarah good luck with your sct and I hope you get a very long remission too .I am also under UCH London and they are brilliant especially Dr Yong who is a very formidable woman but boy does she get things done !!love Bridget x

Thankyou so much Vicky and Georgina , it really helps a lot to have the support of my on-line friends. I have an appointment to meet Prof Tobias on the 12th Jan to discuss radiotherapy , at UCH, hopefully it wont be too long after that as it is very painful, Georgina please give your mum my best wishesand Vicky I hope you are taking it easy and…[Read more]

Dear Roz I am so glad you you and your daughter and grandaughter have each other , it will help each of you get tjrogh the next few days love Bridget x

Dear Mari what winderful news I am so pleased for you both Heres to a very good new year love Bridget x

Fantastic news, Mari!!

What a great Christmas gift for your whole family.

Eliz
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Hi Nettie thankyou I have really enjoyed this christmas , my eldest grandsons face on christmas morning is so awestruck it makes it all worthwhile!! How is Chloe doing, did you get to see them during the holiday?( If I have got her name wrong please forgive me) We still have quite a bit of snow and its very cold ,are you snowed under? It must…[Read more]