Dear Roz how strong you are and Michael too , hang in there and keep fighting it . If it were me I would be insisting on that meeting today , otherwise you wont see anyone but registrars till Monday .But at least Michael is in the best place to get treatment for the infections. Never give up Roz love Bridget x

Hi Lynne what an awful time for you both no wonder you are frightened but dont give up hope It sounds as if they are beginning to get things under control, Dex is an amazing drig and very useful in myeloma as it reduces inflamation and helps other drugs to work There are a couple of people who post who have had acute kidney problems and needed…[Read more]

Hi Gill nice to see you on here I agree wth Gaye you need more info , if I were you I woulld ring Dr Rabin he is very good at ringing back Please keep us posted love Bridget x

Hi Sue a lot of us do have bone pain most of the time and it could be just that You should make an appointment with the doctor or specialist nurse to review the pain medication it may just need adjusting or even changing the type Try not to worry too much I am sure if your doctor has any doubts they will do scans and x-rays to be sure Either way…[Read more]

Hi Michelle wonderful news !!! I am so pleased for your mum and you it must be a weight off your mind and now mum can get better much more quickly at home love Bridget x

Morning David good to hear you are still feeling ok .I have had a few occasions in hospital where mistakes with drugs etc and I must admit I usually do my own check , I cant imagine anyone getting away with it with you either !!In saying that its the last thing you need to worry about when you are feeling lousy but we are so vulnerable when we are…[Read more]

Hi Kathleen glad you got here and who wants to be normal , not me !!! I find it slow to get into services and the discussion forum perhaps it needs a tweak or two Glad you levels are on the up love Bridget x

Thanks for that link, David!!

Hi Norman I have been having these infusions for the last years Initially I was on Parmidronate once a month, fairly simple takes about 2 hours Usually ache for a couple of days afterwards , a bit like flu , bit after that no problem Having changed to Zometa recently , just had my second dose I have had no side-effects as yet .I do find it helps…[Read more]

Hi David!
I have been having monthly bisphonate (zelodrenate) drips since being diagnosed with raised IgE levels early this year and apparently will do so for the forseeable future.

I have had no side effects from it at all. The procedure is simple and takes about 1/2 hour in total, just meaning I sit in the ward reading a book while it…[Read more]

Thanks everyone for your input, it looks as if definitely will be worth having done, as the pain is what stops me from being active. My hubby has a bad back from disc problems and is limited in how far he can walk, so pushing me around in wheelchairs has not helped him at all.

We have bought a small mobility scooter for me to be able to wizz…[Read more]

Hi Jean thankyou they made me chuckle too love Bridget x

Hi Shirley I am so pleased you have got the date now and it wont be long before its all over and you are home again If you arent up to much on xmas day have another xmas when you get home , double celebration !! I hope you will be able to keep us posted and we can cheer you on Good luck I am sure it will go smoothly love Bridget x

Hi David I am now a lovely shade of green ___ matching china !!!!I am sure its not a mistake they obviously know class when they see it love Bridget x

Hi Norman thanks for the info I will go down that route if my doc wont just e-mail it to me Take care Bridget

Hi Fran

I have been OK since coming out of hospital and am now down to a doctor's appointment every 2 weeks or so plus monthly bisophonate and pentamadine nebuliser sessions.

Though I did pick up a stinking cold a fortnight ago which is taking its time to go away and stops me getting out much at present as I don't want to pass on my cold…[Read more]

Hi Debs thats a very good point especially for someone like you with very little damage and good general fitness .I suppose it comes down to individual needs but better to knock it back as early as poss love Bridgetx

Dear Roberta firstly please dont ever feel you need to apologise for letting your feelings out , there are lots of us here who are only too glad to listen and help if we can . No wonder you feel so low I can only imagine how hurtful it must be . The only thing I can think of is maybe to write a letter asking for help for your husbands sake ,…[Read more]

Hi David good to hear you are settled in sounds like 5 star accomodation !! I love the idea of tea and toast facility!! I used a dongle when I was last in , not bad but couldnt always get a sgnal Are you on bt broadband at home ? I have just signed up for the free hotspots thingy which lets you use other bt users access , no extra charge just the…[Read more]