Hi Mandy

Nice to hear from you also good that you are being positive.

I originate from Liverpool,I remember the Royal is it the same old hospital,???? It was a good hospital 40 years ago, I had a baby in the Royal,we had a saying . Book your bed and then get pregnant..?

Make the most of your freedom why the still allow you out of the…[Read more]

Tom and Dai

First Tom,it shows in the eyes.

Dai in the south the woods are covered,next week you will be lucky to see them,the blossom on the trees is going due to wind and rain,we watched a niebour with here young daughter picking up handfuls of blossom like confetti ,throwing it up in the air,gone until next year.

Such a lovely time…[Read more]

Hi Tom

We started travelling many many years ago,I alWays said I would never take photo,s if truth be told I would bore my kids ridged with them.

To me the whole point of an adventure,is for Slim and I to share,it belongs to us,wonderful times,lots of travel,my kids and grandchildren have to find there own adventure,my photo,s are in my…[Read more]

Hi Jo and Jean

Hope you are both keeping well.
I bet the house is spotless Jean takes time to get them back on there feet.:-)

We are waiting on results,phoned but they said they were not in!!!!Consultant Friday!!!

We have just bought a new Motorhome!!!! Other one was to big for me to manage chores ,but the new one is more manageable…[Read more]

Hi Helen

I am the carer,and cannot blame the dex8-)
Hospital waiting times,grrrrrr organise yourself s if I started,I would need more than this topic. I found it horrendous ,far easier to do a 60mile round trip,specially when Slim was not feeling to good,I have been known to take Slim home after Velcade and go back on my own for tablets…[Read more]

Hi Tony and David

Spring might be late this year,but its worth waiting for after such a long time not being able to enjoy it.

Slim was in hospital for 22 days first time, I use to drive with windows open along the A2 on the way to hospital at 8am back at 9pm,so spring passed me by.the next time Slim was in Kings having SCT,good hospital,but…[Read more]

Hi Dan

That's wonderful news,give your self a pat on the back,you are doing wonderful. Please take time for your exams ,they are your future and very important,make sure the appropriate authorities know your problems,it,s important.

There is no magic formula ,the general feeling is your dad should get 1/2 the remission ,but lots of factors…[Read more]

Hi Helen

I thought I'd come back to you on this thread! I think I missed this because I haven't been on so much. I feel bad because, as I have been feeling better I didn't want to be reminded of Mm all the time. I always remember how Bridget was so faithful supporting everyone in spite of how I'll she was getting. It is a challenge isn't…[Read more]

Hi Helen

Slim had 6cycles he was much better in himself. On Velcade,hated the messing about between bloods and treatment,we did try to vary it as spent an awful lot of time just waiting round eg bloods 9am Velcade 3pm never,never on time,also once a month tablets late as usual by hours usually 6pm. Towards the end went in at 9am took slim…[Read more]

Hi Rangecroft

Welcome,I am interested in your reply as my husband is at the stage of remission ending,and going on Revidimide . We will know in the next couple of weeks.
I am not convinced about Revidimide as thalidomide treatment did not work for him, but it is the next line of treatment,so many cycles then used as maintenance until it…[Read more]

Hi Karen

A warm welcome from me as well, I am a carer for hubby.

Hubby diagnosed in February 2011 after back pain became major problem in July previous year. CDT then Velcade SCT in May 2012 ,.waiting on results to confirm out of remission .

The last couple of years have flown by and our world has got a lot smaller,but cannot complain…[Read more]

Hi Maureen

So glad to hear the news!!!

It is important GP know they are getting it wrong!!

Yes you can not do it all,only your best,this Myeloma can take a carers health away as well ,you are in for the long haul,so allow yourself some down time.

I am so glad Ian is getting to gym,see if they have a small foot cycle he can use,even…[Read more]

Hi Jo

Wanted to send. You my love and prayers. Go well.

Love Mavis xxx

Hi Helen

I was surprised you are needing so much treatment when, earlier, you were doing so well. What has happened about work?

Do hope you manage to knock the MM right back again.

Lots of love.

Mavis x

Hi Dai

I too am glad that your Consultant has come up with something after your disappointment about the Trial. I hope and pray that the Velcade and Dex will have a synergy that will work for you.

Lots of love.

Mavis x

Hi Christine and Chris

Also wanted to welcome you AND say so sorry Chris's treatments haven't worked.

SCT aren't the only way to go. Several of us on the Site are managing without and still keeping going! I see Chris was on Velcade and got núeropophy. I haven't had it, but have read that having it by injection makes one less prone to it.…[Read more]

Hi Karen

Just wanted to join others in welcoming you to the Site. Sorry you have had such a difficult time. Like you I find physio really works.

Very best wishes.

Mavis x

Hi Christine

You say his bloods are ok except he is anaemic ,how are neuts and platelets surely they are low.This is what you would expect??? The reason I am asking,is Slims blood results have always been good, so they have not been able to use these as a true marker for his condition. This is why he has had lots of BMB.
You say he has not…[Read more]

Hi Christine

SCT are being done,if he can get his Myeloma down again,and they can produce enough stem cells it has been done.

Look at some of Marie's post from Kent,her husband had another SCT !!!!

I know the figues seem awful,Slim had 80 percent in BMB after 6 cycles of CDT,Velcade took it down to 0,knowledge will see you through…[Read more]