Hi Dai

When they were discussing the serious weaknesses of the NHS recently, I thought we had some stories we could tell them where little things would have meant such a lot! I also thought of some of the experiences you have had. How do we get things to improve? If the motor industry can get its cars under construction through a Plant with…[Read more]

Hi Jean

So glad that Frank has got his date. I send him my very best wishes. If he has an ipad I am sure he will find it very useful for passing the time.
I know, from reading the accounts from others, that Frank has a tough time ahead, but I pray it will lead to a very long remission.

Keep strong. Love.

Mavis x

Hi Jean

All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.

Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]

Hi Sue

My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .

I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]

Hi Chell

The publicity must be good. Will look out for your post re when magazine is being published. Congratulations.

All best wishes to you both.

Mavis

Hi Sandie

Hope my answers can help you! I was diagnosed in 2010, as I said, following a painful colapse and the discovery of a tumour. I was started on bisophonates straight away – it was called Bonefos. I didn't get any sickness from it although I found the timing of taking it a bind! About 18 mths ago they put me on a dour weekly infusion…[Read more]

Hi Nicki

I also send my comiserations that Sam has relapsed and much sooner than you would have hoped. What a good job there are now other treatments on offer. Do hope Velcade works well for him.

So sorry you are having your own health issues when you are needing to be strong. Like Tom says, I hope you are getting support.

All best…[Read more]

Hi Maureen and Ian

Just wanted to give you some encouragement about the mobility bit!!! I have had two occasions when I "crashed out" and became completely immobile. First time was because of a tumour on my spine and I was having to be hoisted everywhere till I had it removed. They warned me I might not walk again, but due to marvellous…[Read more]

Hi Sandie

Sorry your Mum has had to start treatment. I just wanted to give you some positive feedback about lessions. When I had to start treatment last year my Consultant said my body was full of lessions. So much so she had me have an electric bed at home to help me out of bed. However, none of my bones did break, and although my spine…[Read more]

Hi Pat

I really do agree with you, little things do mean a lot. We have so enjoyed two days of sunshine and being able to sit in our conservatory for the first time this year!

Hope you continue to have lots of "little things!"

Love Mavis x

Hi Gina

The choice of drugs after relapse can vary on the trials after CTD comes Velcade has your mum had it,you might be able to ask if this is available for your mum,it is having good results,but only seems available on trials.

Melphalan is given to kill the cells,people have it as part of SCT,, Chris are you on any other treatment…[Read more]

Hi Vicky and Colin

Slim was randermised for no treatment ,before he was unsure of taking it but we decided t wait and see what the computer came up with,no maintenance came up,ad at first we felt he was missing out,but it has worked out ok,we go every 2 months to see consultant mainly because the Myeoma no longer shows u n bloods or…[Read more]

Hi Tom,

So pleased to hear your news. I know how you feel because I got a reprieve this week, till May! Unfortunately I still have to go back every four weeks for Zometa after four months off it because of my dental treatment. Still, I think my poor old bones need all the help they can get. It seems like they keep you on Z omertà…[Read more]

Hi Daily,

Agree with Tom, you are always an inspiration and I think of you as one of the key players on the site so you have got to keep going strong in spite of all the hi coughs.

Love to you and Janet. It is strange, but helpful, to have all these friends we never meet. I find myself having more and more cyber friends. Since tentatively…[Read more]

Hi Robin

Sorry you have had to join us on Jim's behalf and that he has had such a trying time. The important thing is that you now have a right diagnosis. The treatment isn't fun, but many of us are in remission because of it. – myself following an op to remove a tumour from my back, then radiotherapy followed, quite a bit later by CDT for…[Read more]

Hi Maureen and Ian
The hospital should be taking bloods on a daily bases if there is an infection,they do tend to give more tablets as a precaution,and this can cause Ian to be confused.when you go in check if his general ops are ok plus bloods,if you are not happy ask to see doctor who looks after him on a daily bases as consultants come every…[Read more]

Hi Tom;-)

All good news,but I swear you have more vodka than blood in your veins.8-) Slims just had another BMB as only way to tell what is going on,at the stage were you feel it might just give you a tap on the shoulder.

Lovely to hear,you have the all clear ,no wonder you went to Asda to buy more vodka Love Eve

Hi Tina

You are just behind Slim,he was randermised for no treatment ,but we are ok with that,we go to hospital every 2 months ,just to check every thing is ok.

slims just had another BMB as his. Does not show in bloods or urine,so 6 months BMB just to check it,s ok, will have results in March. Eve

Hi Robin

Myeloma is a cancer with no cure,but saying that your dad can have a lot of time in remission ,so all though it sounds bad,the more you learn the better you will understand it.Myeloma is such an individual cancer,and people react differently to treatment,one thing you will find on here is people who have travelled this path before…[Read more]

Hi Dai

Sorry for another blip, but at least they are saying they will proceed to treatment three when time, so not all bad.

Very best wishes.

Mavis x