Hi Wendy

Nearly missed your post!!! It would be easy to say not to worry,but after enjoying so much freedom from MM,it must be very depressing to think you have to start treatment,lets just hope it's a bit of a blip,if you start preparing yourself for it,it will be like livening on a roller coaster,Slim takes the attitude if you cannot change…[Read more]

Hi Daniel

You have come to a good place for information,and you and your dad can be assued people will give you all the help and support they can.

Please get it out of you mind how long,!!! It sounds bad but there is so much treatment these days,as you know it is treatable but alas no cure,it buys time,your dad had a good response first…[Read more]

Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

Hi Keith

What a blow that the Bendamustine seems to be loosing its grip. As you say, you are in God's hands – is there a better place? It still doesn't mean we don't have to battle on. I was very impressed by one of the participants on this week's "Songs of Praise". He was a paraolympic who was trying out bionic legs. He said, at the…[Read more]

Hi Peggy

Sorry to hear you ahve had such a bad time and with complications at home -what are they doing!!!! They must be in a sorry state too. Hope both sides soon get the all clear.

At least yu are on the right side of the SCT, even if it has been such a bad experience.

I sympathise about the hair problems. Although I didn't lose all…[Read more]

Hi Sal

Sorry we have to welcome you to this site on your Dad's behalf. In view of his age, I do hope someone will have agood chat with him about what treatments are realistic and will still give him the best quality of life possible. I am nearly 68 yrs and was diagnosed in 2019. My approach is to have the lguhtest treatment possible while…[Read more]

Hi Heather

Welcome to you and John from me too. I do hope you got on well with the Consiltant yesterday and understood what he was saying. You obviously have a lot to cope with as well as a lot to contend with. This is a strange illness to come to terms with.

Like John my myeloma was diagnosed after lots of treatment for arthritis. I have…[Read more]

Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]

Hi Maureen

I would not base your knowledge of one department on were you should have treatment,your husband ,s treatment for spinal work,might be different from the cancer unit,some have just designated wards and some are better than others.
My husband had a choice of 3 local hospitals for treatment,we chose the one first attended as he had…[Read more]

Hi Peggy

Sounds if you have had a bit of a do,do not rush getting out if you are not right you will only find yourself back in,in no time.

As for the comb over have a word with a nurse,see if they can find scissors ,must have them in a hospital,they did in my day.

Best of luck hope things start picking up for you.Eve

hi Heather

it is a bit mind blowing when you join this club,lots of information to take in,it,s a learning curve,try not to worry ,you will in time learn all the jargon,and will become an expert on your husbands condition.

my advise is get in touch with Ellen she can put you in touch with someone who you can talk on the phone so you do not…[Read more]

Hi. Chris

Just read you. Post with great interest,my husband is not in your position concerning SCT second time round so unable to comment,just storing info for future ,as we all know MM will find you.

I can say I think Velcade is a not as harsh as CTD,but y ou do spend more time at the hospital ,I would like to see Velcade given as a…[Read more]

Hi Sue
I just cannot believe this is happening to you.i do not think it is different we're every you live.

You should have a package sought end by now it can be different depending on your needs.were is you local surgery,in this get in touch with the district nurse,she should be able to sit down with both of you,and decide what you…[Read more]

Hi Sue

I would agree with |Tin,I know you feel how an earth are you going to cope,but you will find that inner strength.

I have 2 friends who have both lost there husbands last year,one to Myeloma and one to lung Cancer,both stayed at home and both had different deaths.
Both the wives coped and have no regrets,I wish I could say I was there…[Read more]

Hi Trish

Yes it is wonderful that first holiday,after SCT,as you say you just could not believe this would be possible after Myeloma,so just go out there and grab a slice of life.

we are just back from NZ,blood test Zometa then consultant,and with a little bit of luck off to France in our motor home,then home for 1 st march as my daughter…[Read more]

Hello Dai

It is nice to hear you are doing well,with this new treatment,I just want to wish you well and to let you know although Slim has moved to remission,you are never very far away from our thoughts,I know the last few months have been hard for you, I wish you a good 2013with not many hiccups. Love Eve and Slim

Hi Tom,

With baited breath and anticipation,now I know why you drink vodka,you cannot smell it,( only joking ),it is the reflection time that hurts,that,s why it is so nice that Tina can reflect and enjoy the memory.

This is what is good about this site,people understand what you are going through plus the feelings which do come to the…[Read more]