Hi Jo

Good to hear news of you! Do hope this next round of treatment gives the old MM a run for its money!! They keep saying that MM is on the verge of becoming a chronic disease let's hope it is for us even if it is a real drag at times!

Much love.

Mavis x

Hi Carol

Just caught up with this post. So sorry to hear that you have relapsed. What we all dread. Never the less you sound as if you are coping well now you have got over the initial shock. Well done! I do hope the PAD works well for you. From all I've read, I wouldn't worry that you are putting off thughts of having another SCT after…[Read more]

Hi Andy

Just a quick one,potassium,if you eat at least 2 banana,s a day or anything that has lots of potassium in,it will save you taking those horrible tablets,Slim said they played havoc with his stomach,when in ITU he had in through line,hope this helps.
Good luck with everything.Love Eve

Hi Everybody

Yes still here,have been busy packing and going out to lunch ,will be leaving 2 friends behind who lost there husbands to cancer this year.:-(

Nearly finished now,staying at daughter,s in Sevenoaks,and getting a taxi to Heathrow,£70:-0 ,that,s mates rates feel it,s better for Slim.wheelchair assistance on stand by.
Taking the…[Read more]

Hi Tina

Yes it does get you down,I felt things would never improve always worrying about Slim,and I am just the carer,you have been through so much,it is expected,but there is only one way to go,and thats Tom,s way.
The expectation that things will improve on a day to day bases does not happen,often felt Slim was taking one step forward and…[Read more]

Hi Tom,

Well Tom,you should ask yourself how does it compare with child birth,you do forget about the bad things and look at all the good things that come out of it .LOL Love Eve

Hi Sarah

I can only give you the view of the carer ,I am 63 and Slim my husband is in remission after 2 years and a SCT.

From they start of having to make a decision to have a SCT,I looked at everything,then told my husband the facts,and told him he must decide for himself,if any thing had gone wrong,I would never forgive myself for pushing…[Read more]

Hi Dai

Awake like you,had my tea and toast,Good night .Eve

Hi Mari

I thought I had problems,by gum,you beat mine,one of my mantra,s is there is always some one worst off than you, I am feel better already(joke);-)

We know the body copes with what ever it has too,it,s when every thing has passed,Myeloma has been put in its box,I have put a padlock on the box and thrown away the key.another learning…[Read more]

Hi Helen
I have seen this coming and should know better,the only way I can explain it,is every part of my body has for gotten how to relax.Any way a few more days tying loose ends up.We fly next Sunday evening,Slim as usual is taking it in his stride,
In past years when travelling in the Motor Home,all christmas shopping was done in the summer…[Read more]

Hi Chris

Sounds if you are doing wonderful,a glass of beer!!!!!!!!!!:-P Slim cannot even look at beer,every now and then he has a sip of my wine,and pulls a face.I am saving thousands of pounds;-)

Please look after yourself this period is so easy to mess up,Love Eve

Hi Deirdre

I will not say I know why you are so confused,its either something that has gone drastically wrong or lack of knowledge about mm,and some were along the line you have extra complications.

Even if your husband had smouldering Myeloma,some one should have been keeping watch on his bloods,from your answer" only having Zometa"Well it…[Read more]

Hi Dai and David
I think I upped the stress limit with this trip to NZ,getting everything ready doing all the organisation,plus producing Christmas presents for the people we leave behind,specially the grand children.Have not seen one of my Kiwi grand children for 3 years,so this trip is a must.I also feel it has to be now rather than later,I do…[Read more]

Hi Jet

Nice to hear from you,must have been heavy going with back to back SCT,they do say it is the best thing to a cure.Have not heard about vaccination for shingles,but do know if you catch it early,have less side effects.
I believe you have to have all your childhood injections again with donor transplant:-S Helen got whooping cough,seems…[Read more]

Hi Deirdre
Welcome to the site,yes the whole thing does seem so unreal,it is all a bit mind blowing,how are you managing in yourself are you getting enough rest??

It must be hard work,going to the hospital 3 times a week,why are they talking of ( crancking up the chemo??? )

How long has he been on treatment and what chemo treatment is he on.??Eve

Hi Kerry

Sorry Melvion is having such a hard time of it, and you too, as you give him such wonderful support.

Is there the possibility of another Surgeon, elsewhere, doing the operation on Melvin's spine? We have some marvellous ones at LGI (Leeds) They did the operation to remove the tumour on my spine (T10 I think) and built some racking…[Read more]

Hi Babs

Welcome to the Site, but sorry you have had to join it! You are well on with the journey, and should be able to get planning now for some enjoyable happenings. None of us would chose life with MM, but we are all committed to making the best of our lives as we can, and we can spur one another on.

Lots of love.

Mavis x

Hi Kes

Welcome from me too, and as others have said, we are all here to support you all we can.

Goodness, as you have got through to round five of CDT you are doing well. Those last weeks go very quiclky. I remeber counting the days off: nineteen, eighteen etc!!! Just be warned you could have a bit of a dip as the chemicals work their way…[Read more]