Hi you three!

I'd also take my hat off if I wore one!!!!

Love and best wishes to all of you.

Mavis x

Hi
I have come on to comment because I so admire you fight against Myeloma,here you are three people who have gone through all this treatment and are still in there battling.

I know you all have no choice if you want to live,but its the stamina I suppose I admire,any body reading your posting,and not know much about your treatments,must be…[Read more]

Hi Gill
No it is not suppose to be ok,far from it,its learning to cope with the fact that people,do not know what to say to you,and by saying nothing,in vase they upset you,they do not realise this hurts more.
As you know my daughter lost her child Matty,and she has got to the stage she puts people in colours RED AMBER and GREEN
Green are…[Read more]

Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

Hi Tina

I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.

It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]

Hi Everyone
Well I feel less stressed out just reading these posting,so may be that is the answer come on here and talk about it,because the people who reply are all in the same boat,and if they are not,some time in the future they will be.So we help each other.

David I loved the bit about your grandson,same as one of are grandsons,he wants…[Read more]

Hi Marlene

This is just to say hello and welcome.

I cannot help with your questions,but I am sure someone will come on and give you some answers,may I ask how long was your husbands remission and what arm of the trials he was on.?????est of Luck Eve

Hi Sue
You are right it could have been approached in a different way,people say when you have news that shocks you,you only hear what your mind will accept.So may be no matter which way it was put,it would have had the same effect,

I do not think any one can give a person a time limit,yes they can say,the treatment is no longer working,and no…[Read more]

Hi Sarah

I think Dai is right concerning the chest infections,when henry had the SCT he was given lots of tablets to stop different infections,I am not talking about normal antibiotics,in theory if Henry has been treated with antibiotics plus steroids,his chest should clear up,unless he has damage to his lungs.

You must trust your own…[Read more]

Hi Dai
Do not worry I do not take everything to heart,lol!!:-P

You have managed without knowing it explained a few of the things that have been bothering me for some time.If I may explain.

1 Slim was a commando marine for 24 years.
2 Slim also been a diver for for well over thirty years,professionally for
about 6 years when he…[Read more]

Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]

Hi Winston
Welcome to the club,2003 until 2012,that not bad going at all,sad you are of remission but you gave it a good run,what did you first treatment consist of. 7 years which in it.s self gives everyone on here some hope.

I would have thought as they new you were in a situation,that they new it would come back,how did it get to the point…[Read more]

Hi Polly

Well you are getting there,do not mention the pharmacy:-S :'-( >:-(,this is the one thing you will have to look forward to at the start of each cycle,in the hospital we went to they just could not get there act together,I can honestly say the drugs came up to the unit on time only once,and they would not even let me collect them,its…[Read more]

Well done, Emma!!

I tried to click on the link in the article to your just-giving page but got an error message.

I think this is the correct link (at least it looks like it must be!)
http://www.justgiving.com/Emma-Rowley72

And best wishes to your Dad, Steve, for an uneventful Stem Cell Transplant procedure.

Love
Eliz
XX
X

Hi "K"

Welcome to the site. Sorry your Mum is having such a trying time. Don't have any specific answers, but just wanted to say that, maybe, given all the circumstances, less treatment is better at her stage. Is your Mum able to discuss this with you? Have you been in touch with the Pallitative Care Team in your area? I find their…[Read more]

Hi David

Good to hear you are now feeling a lot better so don't need to have PP count yet. We are all so used to you being upbeat and cheerful! Keep it up!

Very best wishes.

Mavis x

Hi Dai

I'm so glad the wedding went well. It sounds like the wedding venue was loveluy. Look forward to seeing photos.

Take care of yourself and Janet. I expect, like the rest of us, you are now wondering about Christmas plans. We are very sorry not to be able to make it down to London and the grandchildren this year, but we have got to…[Read more]

Well put Dai

I think you do go through a time when you want to scream at the world,but you do get past that,and just think we will make the best of the time we have.

Mentally over the last 2 years I have mourned and buried Slim,looking back on it,I think it was just a way of preparing myself when he was very ill.We have talked about it and…[Read more]