Hi Kerry

Welcome to the site,14 years is a long time,so your mum is doing very well.

What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]

Hi Helen

I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.

I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]

Hi Mary

Slim had Claxane injections for 8 months and Thalidimide was reduced by half,he remained on the Trials ,It is a complication of the Meds,and did result in damage to his lungs,but still had SCT.

Eve

Hi Andy
I know it,s taking a long time Andy,but it is getting there,you look back at that year and wonder how you managed to get through it.

I can remember thinking about are first year and saying to a friend it cannot get any worst and it b—-y did,laughing now but at the time it just was so awful,but got through it.the body can only take so…[Read more]

Dear Mari

This is when you need this site,the ones who have been there understand what you are going through,I have been looking at Slim the past three months thinking it is not working taking to long to recover,the letter that we received a copy of read like someone ready for there coffin,all old complaints and new ones came to the surface…[Read more]

Hi David

Thank you,I have grand children out there,So it is a must,its never to late David.

How are things going with you???
Will not be long before you crocuses will be showing in the lawn,make sure you take a picture for us,what colour did you do in them. Eve

Hi Tom

Thanks for the info on Dai,new something was up.

Tom you are brave,its lovely to see grand kids,but they do tire you out,but were would we be with out them!!!.Your just braver than me.

You are doing so well,I can understand now how people feel about the 3 months,it is not until you walk out of the consultants room,that you suddenly…[Read more]

Hi Pat
Nice to see your face,took me a while just to learn how to get a picture up,I agree with you,I am growing old disgracefully,we are lucky to have a good bunch of people on here,when my husband was going through a bad time,I could not have managed with out all the help and advice I received. Time has gone on from when I joined and faces have…[Read more]

Hi Jo

If your on face book please become my friend,and I will enjoy a game of scrabble with you,i play with Jean.I would love more contact in general and play a game of scrabble.it is interesting to know about people outside the bubble.You will find me under my full name.I feel I already know you anyway.

Mike if I had to choose it has to be…[Read more]

Hi Mike
Yes mike it is like someone has switched on a light bulb,and you can see a way forward.8-)

I think at the moment we will settle for this time we have, and try not to look to far back or ahead,as both are not a nice place to be,I see the Myeloma Trials helping generations ahead,in a cure,for people who are here now I only see it buying…[Read more]

Hi Tom and the family of Lappins

Will be lovely when it is 3 months appointments,already been told if we want to go away for any length of time,it can be arranged around Zomita.

It is a good feeling,just to know we are in this position,we will just be doing everything a bit slower as Slims body has taken a battering,and is still on pain…[Read more]

Hi Mavis Megan Joanne and Jean

Yes it is all good,I realised how I felt right through Slims treatment and how many people helped me through the many months with all Slims problems,We seemed to live in the hospital at one stage,and it is so nice to have this extra time to enjoy.

Jean I think Slim would be the same about going,I think they…[Read more]

Hi Tina
Well I have to say Slim never found the energy to get dressed until near the end,and lots of clothes just got thrown away,you will not expect them to be taken home.

Take things in that are around you at home,like your favourite mug,I would also take anything,that you like to drink in,as this is so important,as food and drink do not…[Read more]

Hi David

Good to hear you have another "reprieve"!

I hope you are wrong about your next pp and that they don't rise at all!

Enjoy life and keep encouraging the rest of us as you do so well.

Love Mavis x

Dear Eve and Slim

It is great to get such encouraging news about Slim. It is grezt to think you will be in NZ for Christmas. Who would have thought it this time last year with all you have been through.

Enjoy your new life!!

Lots of love.

Mavis x

Dear Gill

I am so glad you and the family were able to give Stephen such a grand, and appropriate, send off. Just what he would have wanted.

Having been involved in many funerals in my former existence, I always say that the funeral is the last thing that we can do for our loved ones.

Thank you for sharing with us over such a long time…[Read more]

Hi Joanne
Sorry you Dad is having a rough time of it,at least they found out what it was,and he is on his way to improving,just forget about the Velcade for a few weeks,just work on getting your dad in better shape and in the frame of mind to start Velcade,because that will be the last thing he wants to do.

Slim had pneumonia and was 21 days…[Read more]

Hi Jean
Yes Scrabble still on,I have 5 games on the go at the moment,I was doing so well against you,then you snuck up on me. lol

How are things with you,,4,5,6.Cycle is hard,just keep an eye out on blood pressure if it goes down,there is something amiss,so easy to miss an infection with steroids.

Will not be long before remission and then…[Read more]