Hi Michele
I to am similar about the clothing I have used while being in hospital,even thoe its been through the wash its the associations they have.I am sure that it will wear off in time.Taken the dog out this morning with my wife Rachel and have now spent at least 3hrs snoozing!Where we live is quite rural so there is little public…[Read more]

Hi Gill

So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]

Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]

Hi Keith

I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

I know all about green tea,green…[Read more]

Hi Ali
This is the hard bit,you mum will sleep a lot,take a book to read,if the clothes are soiled just get the nurses to throw them away,this is were your mum will feel if she is loosing control,very emotional for her,the nurses understand,but expect a few tears,you keep your chin up,tell your mum she is through the worst,the nurses should be…[Read more]

Hello Judy, I am sad that I have only got to "meet" you here after your husband has lost his fight against myeloma 🙁

I shall be thinking of you and your family as you find a way through this difficult time.

Eliz
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I was so sorry to read when I logged on today after a few days absence from the board that Peter has lost the fight against this #@#@#@ disease, Teresa.

There is nothing I can say to make it easier for you and your family to bear, but I am thinking of you at this sad time and sending cyberhugs across the ether.

Love
Eliz
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Well done, Debs to get it all so well organised!!

I'd love to buy some raffle tickets and will ask you via the PM system for details to send a BACS payment for them.

Love Eliz
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Hi Dai
I would agree with you about the infection,hope you are taking a sample when you see doctor,you have to find out which one it is.:-P

When Slim was discharged from Kings he was given 200 paracetamol,bit of a shock to be given so many,as you cannot buy more than 30 over the counter,get depressed enough,they might help.:-(, I do not take…[Read more]

Hi Wendy

Good for you that's the way to go;-) Eve

Hi Mari

Glad you had a lovely holiday,and Steve,s feeling a lot better,just what was needed,when we asked about going away it was a complete no no,but are own personal circumstances would have taken over any way.

So on Wednesday I will look out for a tall man who looks if he has moth eaten hair lol,you tell Steve to look out for Slim the…[Read more]

Hi Dai

How are things going!!!!

At least you have had some good sport to watch,why you are feeling off colour,I just hope it was in your own home and not in hospital with a high temperature.:-(

Slims in today in the day unit,they are taking his line out at last!!!although his platelets are only 50 I think it is a good thing. Eve

Hi Andy

Slim says that why worry about it if you cannot change it,and he sleeps like a baby,it's me up in the middle of the night:-/

It,s the unknown that is worrying,I am sure once you go,you will feel more assured,have you far to travel!!!
Although Slim is on trials ,it was worrying to see no progress and very worrying,watching other…[Read more]

Dear Gill

You know we are all thinking of you in this bad time,so have a go all you like we do understand,you are in a position were no one wants to be in,and we all just feel for you Gill.

I hope the radotherapist can easy Stephens pain,I cannot imagin how you are coping with that,they can do wonders these days,they have machines that can…[Read more]

Dear Gill

What can I say???

Reading between the lines I have been waiting for you to post,as you say in denial,but it keeps you going,if it did not everyone would give up at the beginning,and at the end of the day Stephen and you are fighters,but some times enough is enough,it's being able to see it and accept it.

What matters now is…[Read more]

Hi Judy
I am sorry about you husband,you do not say much in your posting and have seemed to carry this burden with your family,but your husband was one of the Myeloma victims as well,so my thoughts on what you have endured go out to you.

I replied on Teresa,s thread because,you did not put your own,thread on,and I can only guess that you are…[Read more]

Hi Chris

Its sad we do not have something like the Myeloma Beacon Survive,s Site,
then we would know how many people are doing well after so many years the longest I heard about before you was 18 years,lots of 10 to 12 years and still going strong.

When I am feeling a bit down,and I am only the carer,I go to the American site,and it makes…[Read more]

Hi Teresa

How are things going,I should imagine the last few days have been very busy,I do hope you have had time to look in here and realise how many people have you in there thoughts.

Take that walk down the garden,I hope it will bring you some comfort,look forward to the grandchild Peter would want you to find that strength,Love Eve

Hi Ali

Your mum knows her own body best,but I would impress on her about taking anti sickness pill 15 min before she eats,mainly because once you have been sick with a certain food,it puts you off it for a long time,so a food you enjoyed becomes a food that made you sick:-( Love Eve