Hello Joe
Glad to see you are getting on with your life and hope you are not working to hard at uni,that is what your mum and dad would have wanted for you,how is your mum coping,bet she misses you both.!!

I hope its your mum cheering you on at the finishing line,and remembering your Dad,Its very hard the first year,so keep your chin up and…[Read more]

I am so sorry things are not going better for your Dad, Dee.

As this is at the end of a long thread with many things discussed in it, it might be an idea to start a seperate thread in a diferent forum with your question about kidney problems, so it will be easier for anyone with some experience of this to see.

Love
Eliz
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What an anti-climax for you both, Vicki

I am keeping everything crossed that those pesky numbers soon get to an acceptable level.

Love to you both
Eliz
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Hi Vikki
Hope Colin is home and resting,I think we all go a bit over the top when we realise,some one you care about could become seriously ill,so we do are best to keep everything clean.It is a bit of a worrying time,just do your best,and make sure food is thoroughly cooked.Love Eve

Don't ever think anything that makes life easier for you and helps retain your quality of life is in any way a thing to feel guilty about, Mike!

The more you can do to avoid any further skeletal damage now the better it will be for your future mobility.

Love
Eliz
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That sounds like great progress, Sherif 🙂

I wish her a smooth journey throughout her treatment.

Eliz
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Hi Paul
It might seem like a long time to you,but if you look at the big picture its just a blip,I think you will sail through you are young healthy and fit,but do not forget to listen to your body.

As Debs says its not a walk in the park but it,s do,able.

The hard work will be when you get out,mind over matter,but you will do it Paul,Good…[Read more]

Hello Charlie, welcome to the club none of us applied for membership in!

I was diagnosed in March 2010 and am now 62 years.

I was not offered a trials placement after diagnosis but put straight onto several cycles of CDT then a stem cell transplant within 6 months and have been in complete remission ever since.
However if I had been I…[Read more]

Welcome to the club you never asked to join, Mike!

I hope it won't be long before your test results allow your specialist doctor to plan your treatment if needed and get you out of that limbo-land.

As for whether carrying a post bag will make things worse, my doctor told me right at the beginning after diagnosis (after some of my vertebrae…[Read more]

Great news that your harvest yielded so many of those little cells, Paul! 🙂

I only managed just over the minimum 2 million when I had mine. 🙁

Will that mean you get half returned now and the other half stored for another go in the distant future?

Wishing you an uneventful procedure and swift recovery.

Love
Eliz
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Thank you for doing this, Joseph!

Your father would be so proud of you!!

Love
Eliz
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Hi Charlie

Welcome to the site,Its my husband who has MM.

Yes it is very confusing to begin with,but you soon get use to all the information,you have got books on Myeloma my advice is read a bit at a time,it will become the norm soon.

Lets start with transport,you can get financial help,also you do not say your age,but you will be…[Read more]

Hi Jo
Never been to the IOW but looked at it across the bay,have some friends who have lived there for years,they chose there because of the sailing.

Glad you had a great time with your grandson,I bet it,s home for a rest now.I just love to hear about you planning your next holiday,I am sure it,s not too far away. Love Eve

Gill
How are you doing???

Have had you in my thoughts did you get to France for that holiday Eve

Hi Kevin
Let us know how you get on,it is interesting that you are having CDT again!!!. I suppose the fact that it was 2006/7 since you had it last time.might make it work again.As you say it will leave you Velcade for another time.

Slim used up CDT plus Velcade just to get to SCT.At the moment waiting for BMB,to see if it has worked.

As…[Read more]

Sue
It,s the other way round,everyone on here will be thinking about you,It is so hard to accept and it should have been your consultant telling you there was no hope,it might have given you time to accept and come to terms with his death.
I hope you both had a time to yourselves and a peaceful end,accepting that some times,there has to be an…[Read more]

Hi Helen
I think a lot is post code lottery,in one way we are lucky because we do have the trials in SEK.and there are lots of trials going on from here at the moment.As a cancer patient Slim has the usual 24 hr number to ring,They in turn ring doctor and everything goes from there.So no problem:-P

If you look in the carers section subject 100…[Read more]

Dai
Slims writing home about his HL,4 hour job,veins thinning as HL progressed,then getting it round a bend,head honcho called twice,Slim coming up looking like death warmed up,saying he will never never have that done again.( may be that,s why his HL is still in).
I think it does vary from patient to patient,but as Stephen has had one before…[Read more]

Tom
You do not need luck,I can see you standing there with a big red box in front of you.Got to give them an angle,EG terminal cancer,want to take the wife on holiday of a lifetime will donate some money to Myeloma uk for all the good work they do.Can I fill your CV in for you LOL:-P 😉 🙂
I forgot the best bit,good looking guy with a cheeky…[Read more]