Hi Mari
I know110 for Platelets is low,but Slims have never been above 50,so I have given in worrying when he walks into a door or knocks himself,apart from wrapping him in cotton wool,I cannot do any more,and my attitude is if internal bleeding is the danger,why is no one very concerned.!!!!

I would agree they need to be very stubborn just to…[Read more]

Hi Etta,
I am sorry about your sister,I know a few on here who have had the same thing going on in there lives Jean lost her brother,I lost my Grandson,so we do understand how you feel,myeloma is hard enough without a death of a loved one.So you are entitled to feel low,we can only off sympathy,and a realisation that we do know how you feel Love Eve

Hi Mike

Well as you know,the patient does not get much choice,it,s either trials or treatment as laid down by NICE and all of this is still a post code lottery, If you are lucky and can find a Haemotologist that has a special interest in Myeloma and also has some perspective about the awful damage and pain it causes,physically and…[Read more]

Hi Amelie
Well i hope John has a good recovery,and starts to feel better,I do not envy you a winter in Denmark,but I suppose as we are use to wet weather you are use to the snow and cold,my husband spent many a winter in Denmark,one of his hobbies,was blowing wholes in the ice and diving,use to be in the Marines!!

I was interested in your…[Read more]

Hi Andy

Good luck with the Radiotherapy,
As to the catheter,well the question must be why did they put it in????loss of control or your condition at the time it was put in?????.
There seems to be grey area,s with your low back,chemo works on any form of cells,they know chemo has not worked to reduce your cells,so why have they not given you…[Read more]

Great news, Amelie!

Wishing him a speedy return to "normal"

Eliz
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Wow, Alistair, what an amazing feat!!

Did you actually have to run through snow?!?

Eliz
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Hang on in there, Keith!

When I started to try and drink 2-3 litres of water a day (in 2003 when I started eating Atkins) I filled 500 mls sports-top bottles and had one with me at all times so I could take a slurp every few minutes.

I found when using the computer that if I made myself take a drink every time the screen refreshed it wasn't…[Read more]

Keeping my fingers and toes crossed for Stephens harvest to go well, Mari!

I hope you are managing a little "me time" while he is in hospital.

Eliz
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What a productive lady your Mum has proved to be, Ali!!

It took them 3 days to coax just over the bare 2 million of those pesky little cells when I had my harvest! 🙁

I wish your Mum and Dad a lovely few days away and good weather to enjoy it with.

Eliz
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I hope all is going well for both Stephen and Ali's Mum!

Love
Eliz
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What wonderful news!! I do envy you both.

I had a short stint at being a grandma a long time ago but sadly my husband's children moved away both physically and mentally (due to his ex-wife's attitude towards his remarriage I think) and we have no idea how many grandchildren he has now or where in the world they live.

Eliz
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Hi Liz and Kev
Congratulations on another granddaughter, Myeloma puts everything into perspective,for all the family. Also you appreciate the event a lot more when you thought you would only have the one grandchild.
I hope you have lots of first ahead as a family,first steps,first school,first boyfriend,and lots more. Love Eve

Hi Amelie

John is lucky to have enough stem cells for a second sct,and not have to go through another harvest,is any after treatment planned after sct. ??????

How long did John get from first sct to mm coming back?????

Am I correct you are based in Holland,do they have a criteria to follow or is John on trials,or is he treated more as an…[Read more]

Hi Mike
This is just a welcome to the site:-)

When I read your post,my own immediate thoughts were so selfish,one was we will have our own resident expert,as this is what you would become,you might not know much about Myeloma at present,you will learn,just to prepare yourself[just incase]:-P
Then my thoughts were for you as a person,and I…[Read more]

Good to hear that things are going fairly smoothly for you, Stephen!!

I hope it won't be long before your neutrophil count starts to climb and the doctor starts to think of giving you a release date!!

Love
Eliz
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Good luck, Tom – don't forget to let us know when the episode is to be aired if you do get picked!

Hi Mari
Good luck with the harvest and try to get that holiday in between,when we asked about gong away we were told no to going abroad,my daughter did say at the time,don,t let them rush you,but like all things,you just want to play your part,I think a holiday would have done us the world of good,i suppose with are added burden,it just took to…[Read more]

Hi everyone

I missed Dia's original idea, but wanted to add my love and fond memories of Bridgett whi also supported me so strongly that I felt i knew her so well. I have also shed many tears and had many thoguhts of her greiving family.
May we all take inspiration from Bridgett's generosity and care in our contributions to supporting other's…[Read more]

Hi Dai

Just caught up with these posts.. Relieved that you are on the mend. Do hope that you are able to make the party on Saturday, but understand your concern about germs.

Very best wishes to you and Janet.

Mavis x