Hi Colin

Think the thing with grapefruit is if you are on statins. I must say I miss them!

Best wishes.

Mavis

Hi Susie

I can understand you feeling low. I think your Consultant was probably comparing your regime with mor drastic chemotherapy which is in another league again, BUT, HE/ isn’t the one on the RDC!

Hopefully things will get better for you and it could well have been the addition of the Bonefos that made you feel worse.

I was on CDT, but the…[Read more]

Hi

I thought I had answered your post. Sorry, must have just been in my head.

You didn’t say how old your aunt was, but I am guessing she is a good age. If so, I can respect her not wanting treatment which may well make her feel worse for a good while before she feels better.

Maybe you could just persuade her to have monthly infusions to…[Read more]

Hi Martin

I am saying I think Zometa is very good. At first I used to be on tablets, but then research showed that infusions were more effective in preventing further bone damage AND appeared to have an anti-myeloma bonus. Originally they were only given for two years, but they now keep you on them because they are effective. As I said, I have…[Read more]

Hi Robert

Just realised that obviously no one could help. Which is unusual. What do you take these drugs/supplements for?

Best wishes to you.

Mavis

Hi Andy

Congratulations from me too! So glad that at last they have found something to bring those numbers down.

Many more years for you and Steph. Thank you for all you encouragements.

Go well.

Mavis

Hi Chris

Sorry you have had to join us. Like so many of us your MM was picked up because of bone pain/damage. The weeks on chemo pass, but continue to watch out for infections. If your temperature is over 38 degrees do contact the hospital.

Do keep popping in and ask any questions. There is always someone who can help.

All best wishes.

Mavis

Hi Cupcake

I’m sure you will be one of those who does well. Being young seems to help.

All very best wishes.

Mavis x

Hi Eve,

Yes, good to see you posting still. Like you I often think of lost friends all who helped me in my early days. Don’t know if you watched the new awareness video. I find it very depressing. Glad it wasn’t the first thing I read on here.

Take care. You are special!

Love Mavis x

Hi Both of you newbies

Be encouraged. The treatment does work even if it feels tough at times. Just do watch out for infections. I got shingles and didn’t recognise it straight away so was not treated as soon as I might have bee. I have now been in remission for two years. I am full of lessions, but breaks which I put down to the regular…[Read more]

Hi Newbies

As a very oldie on here may I suggest instead of joining on some ones post,you start your own post,telling people who you are,what hospital you go to and what treatment you are having,plus of course any problems. This will help people to help you in person!!!!

When I first came on here,some one posted. WHO THE HELL ARE YOU!!!!,I…[Read more]

Jan

That’s the way to go!!! No regrets enjoy what you have and never give up hope.

The fact is no one knows what lies in the future,just enjoy and never give up hope,it will take people a long way,and every day is a bonus. Love to you all.

Hi Kaye

It was my husband who died,and it was a long slow death,so when you are not expecting it,it’s harder,grieve hits you very quickly and brings out all sought of emotions.

It is very hard for anyone to speculate what went wrong concerning your mum,if you write or ask to see her consultant I am sure he would explain why it was not picked up…[Read more]

Hi Kaye

I am so sorry for your families loss and for the way the Myeloma progressed without being spotted,I personally think people should learn all they can,and not have this blind faith in doctors,at the end of the day,they are just trained people,and family should ask questions,even if it’s only for your peace of mind.

When people are…[Read more]

Occupations have been talked about concerning Myeloma,

If you think about it chemicals exist in basic materials for every day use,for example wrapping on food,which is put into a microwave !!,

Jobs that you have done in your life ,Farmers service Men,anyone who came into contact with Chemicals,I think why there is no direct research into this is…[Read more]

Hi Jan

How are things,!!! I do not post so much now but look in to see how everyone is doing,and looking at your post I thought you needed some surpport at this stage you are at!!!!

The doctors are telling you to prepare yourselfs, and it’s not a bad way to go,because if this does happen at least it will not be such a shock as last time,and…[Read more]

I’m also sorry to hear you dad has lost his battle against MM. I am glad you were able to be with him right near the end. I do hope his funeral will be a celebration of his life.

Love Mavis x

Done. Good lunch! Mavis

Hello Everyone,well it’s 6am,and today I am coming to the end of a journey!

Last day to make sure every thing goes right,visited Slim yesterday,and took masses of Sunflowers to line his coffin,if you have followed this journey you will know how much we enjoyed France and the fields of sunflowers,they represent a big part of our lives together,all…[Read more]

Hi Gill

Reading your posting,you could have been talking about Slim, Stephen and Slim must have come out of the same mould. Lol

One of the people from the past described Slim as a gently giant,that was her memory as a little girl.
I had to stop and think about the way she saw him. The last four years took there toll as he fought to stay alive,…[Read more]