Hi Aleathea

Welcome from me too. What a blow for you and your Mum both to be diagnosed with cancer. Life isn't fair, is it. No wonder you have had times of feeling depressed.

As you are on route to SCT I presume you are quite young! That's hard to cope with too, but at least, as others will confirm, you are hopefully on the way to a long…[Read more]

Hi Jo

Nice to hear from you:-)

I feel much better now,as not going to the hospital so much with Slim,and that by itself is great,as i can get food and drink more regulated at home.

Not needed any platelets so that is a bonus,he is looking a lot better,although he still try,s to over do it,next will be BMB to see if it has worked,then plan…[Read more]

Hi Ali
Good to hear things are going ok with your mum,
You make sure you take it easy as when this is over ,I think it,s when the hard work begins for the person who is doing the caring,it can be a very emotional thing as well as being aware that it takes so much energy away from your mum.
I kept the Grandchildren away for the first month,and…[Read more]

Hi Andy and Steph

How do you feel about it all!!!! has it answered some questions.!!! Do you feel that everyone is trying there best for you!!!.I think over all you must be pleased even if you are unique.
Well you might not see it at this moment,but you have made the big boys sit up and take notice,
You have your answers and you know were you…[Read more]

Hi Judd
How are things going,I see you did not get many reply,s I know Andy G went on them,plus another person.
I have bumped this up to the top.so if more people see it you might get some reply,s let us know how you get on .Eve

Hello Myra
Welcome to the site,

You have listened to the doctor,s what do they say!!!!!
My husband is the person with Myeloma,and he has damage to his bones but no compression on the spinal cord which is a good thing.If he was in danger of compression he would not have much choice.As for pain yes he is in pain,and has strong pain relieve,his…[Read more]

Hi Jean
Lets hope so,some one on the net said blackmarket asking £45,000 for tickets,but you would have to use a forged passports as they check ticket belongs to person who enters.
2 0f my daughters always put in for tickets and have done well each year.
This is the best though.Eve

Hi Ladies
Great to hear all the good news,but as per usual were are all the men!!!!!

Shame on them!!

Maybe ask for them to email you the results? They are on their computer system so it would take only a few clicks!!

Eliz
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Hello Myra!

I had hoped to be offered it after reading a few posts on here from others who had benefitted greatly and discussed it with my consultant, but by the time they had beaten down the pesky myeloma with CDT and an SCT and were considering it for my back, my vertebra had got worse and I now have a few bone fragments too near my spinal…[Read more]

What a rotten trick for the insurers to play on you and Pete, Ann!

If you can get something in writing from the Surgery or hospital to prove that there was no inkling that he had MM when the booking was made, that might help. Do you have a MacMillan nurse/contact? Perhaps they have someone who can take up the cudgels on your behalf?

Eliz
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Good to see things are all going to plan, Stephen!

Love
Eliz
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Hi Alison!
Hopefully your Mum is home now.

You asked how I am feeling now – well apart from constant pain in my back due to my several disintegrated vertebrae I am doing OK. I was diagnosed after several months of having a "stiff" back when several vertebrae just collapsed doubling me over with pain as if someone had slashed a sword across my…[Read more]

Hi David
How about renewing your Vows,I should imagine as you got marries 50 years ago,things were hard,Do it in style,a lovely day to remember.Eve

Hi Helen and Tom
Well he is holding his own,went down to 61.4 now 62.2 so not to bad.
As you can guess from his name ,he has always been Slim,he looks very healthy at 12st 8lb.But 9st 8Lb gives no room for any extra that might come his way.

My thanks to you both,for your support,it does look if he has turned the corner,had bloods taken…[Read more]

Hi jean
Just a quick reply.
There should be a notice some were that tells you ,you have every right to see results of test,and bloods are test.Next time get 20 pence out of your purse and give it to them and shame them,how dare they not give you a print out!!!!!!
At the moment I know the results by phone but every week or so I ask for a print out,Eve

Hi Jean

Well you know about Slims bloods plus kappa light chains!!!,the bloods only give an indication of the cells,If you ask for a copy of the bloods every time you go,its states the results if they are out of the band they should be in it will show you.This way you can keep your own watch on them.

Eg haemoglobin 9.2 g/dl (13 to 18 )…[Read more]

Hi Stephen
Like you style,how about staying alive by the Bee |Gees for you next bit of music.
Its good to see that staff are quick on the ball to relieve any side effects, sweet corn last a few days,must admit its not the nicest of smells.
Carry on with the music.Eve

Well its the early hours of Friday morning,and Slim is wide awake,so I am up,with a nice cup of tea.:-)
NO Platelets this week8-)Monday bloods,Thursday a hospital visit we did not expect,Slim could hardly walk,had to be checked out for DVT,went through GP who sent us to a different hospital.All was ok,
Today it,s bloods nice and early so with a…[Read more]