Well Andy what can I say its almost if I have started a ball rolling,did not mean to just found it strange so many treatment with out real progress or time for progress.

If I was you I would ring up your consultant and ask to see him!!! he should be able to give you time away from the clinic!!!!! don,t go on chance.

Have your list of…[Read more]

Hi Cinzia
Hello and welcome,
i think like me a lot of people have missed you joining the forum,because unless you have a related condition you tend not to go in to that subject.

My post now is just to say welcome and hope you have a good response.Eve

Hi Helen
Hope you are feeling better,not nice at the best of times,but must be an added worry with Myeloma even when in remission.

I can understand you wanting to get back to normal,and go back to work,there is a nurse on the chemo unit,who has had treatment,her words were[ i just want to be normal],I did not ask much just talked about her…[Read more]

Hi to you all
Tina I can only tell it from Slims side,had a few problems with his bladder side,it was an infection,antbiotics given.another side effect way down the list.
I must admit I gave in with Slim at one point tried commode plus bottle,to him it was a no no,I kept telling him be ok once he was feeling better,he was not having any of…[Read more]

Hi Gail
I am so sorry Gail,you must be beside yourself with worry.
Some times people choose there own fate and it must be awful for you to watch,it does happen some people choose,not to fight.
I can only imagine what it must be like for you as the carer.Howard is a very brave man,his decision must have been hard to not fight and leave his loved…[Read more]

Hi Gail
Howard can fight back but he needs all the help you can give him.
You do not say if he is on a ward or in ITU.!!
If he is on a ward get the dietician on board,and be there at meal times and feed him,even if it is only a few mouthfuls plus stay by his side and make him drink,its hard I did it for 22 days.Take anything in he will eat.the…[Read more]

Dear Tina

Most good firms would offer a phased return to work. Haven't you been offered that? If not, and you feel you must go back now, if it proves too much for you, ask about it. Haven't you got a Union rep?

Thinking of you at this difficult time. At least it is good that you have had a good responnse to the treatment. Like everyone…[Read more]

Hello everyone

Thank you so much for your encouraging messages. I am keeping my fingers crossed that this is the beginning of a long remission. I think it is encouraging for other folk as well if it is. I will keep you posted. I hope others' news is as good.

Lots of love to everyone.

Mavis xxx

Tom amd Elaine,

Also glad to hear you both have had good news. Enjoy the days!

Love to you both.

Mavis x

Hi David

So glad you have another three months clear! Let's hope it is just anther of many, many!

Love.

Mavis x

Dear Helen

So sorry you have had another set back. Having just had one of those infections myself I sympathise with your frustration. You wonder where they come from, don't you.

Do hope you are soon feeling better, but maybe you aren't meant to return to work yet!

Much love.

Mavis xx

Dear Andy

I am glad you managed to have a break in spite of the PP numbers. Let's hope you manage to kick them into touch soon.

All best wishes.

Mavis x

Hi
I agree with John and Sue
Slim never got it until after he finished Velcade,he had Amitriptyline 5 to help him sleep,then when he was in Kings they gave him 25 and said it was a form of PN,I bought the Palmers cocoa butter Slim very seldom complains of his feet now.
I also get Polytar for his skin and must say since he washers in it,has…[Read more]

Hi Gill
I did not know what a banshee was either,heard the saying!!!!:-)made me laugh

Gill I know I am over the top when it comes to Slims eating,years ago he ate like a horse,but he is down to 61.8 k my daughters are all going on diets to stay below his weight.LOL.
For every ounce he looses I gain,I eat to keep him company,because eating is…[Read more]

Hi Andy

That is why I asked were you are having treatment!!!,At the end of the day how do you feel about your treatment,There are Trials going on in all the major hospitals.
If you put Trials in the search engine on here it will come up with all trials plus were they are,If you ask Dai he will tell you his experience of not having the best of…[Read more]

Hi Andy
I noticed you joined the forum in Feb this year,but started treatment in Oct 2011,I have followed your different treatments,I am just surprised they do not seem to give them much time to work,I say this because Slim started treatment in January 2011 and was still having chemo up to the Christmas2011.
It took a long time to get that stage…[Read more]

Hi Vicky

I think it is a man thing,but without meaning too you do as a carer tend to take over most things, It is there body. I suppose it,s just instincts to want to help and make them get better.
So he becomes the stubborn grumpy old man,and I become the nagging,fussing old lady.[it,s a very fine line]
Slim has an ally in Tom,but I think…[Read more]

Hi Gill and Wendy

I think it,s not until you start looking back,that you begin to wonder if you remember it as it was.!!!!
When Slim was in ITU they offer you a dairy that they will right for you,because you cannot remember anything about it,so you loose so many days.

Some nurses think its a good thing,that you have no memory of it.If you…[Read more]

Tom and Elaine
That,s smashing new for both of you,you both must be over the moon,with big smiles on your faces.
I hope you are going to treat the old woman to more than a drink!!!!,(I mean a night out,with all the trimmings) I could almost see what you were thinking then:-P

At least your holiday will be care free,and no hospital for…[Read more]