Welcome to the forum, Jane!

What part of the country are you in?

Eliz (in Bournemouth)

How great to log on here today and see that Slim is home!

Just being in his own familiar surroundings will be a great boost I am sure.

I found my tastebuds took a while to get back to anywhere near normal so concentrated on strongly flaoured food initially to tempt the appetite. Tom's "small portions on small plates" tip is a good one, much…[Read more]

I am glad that the "come into the office for a chat" turned out to be good news rather than bad and that those pesky pp's keep going down!!

Eliz
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Hi Everyone

Well he is home.Frail and bald with a good weight loss.so the time has come to build him up again,other wise buy a new set of cloths:-P

The journey down took 4 hours with a stop on the way,have to go back up on Thursday,and also have to go to Canterbury Hospital on Sunday and Wednesday.
He is busy writing his board out for all…[Read more]

Hi Keith

Keep fighting!!! If you were a nursing mother, they'd say take stout for the red cells – do whatever is the MM equivilent!

Best wishes.

Mavis x

Dear Liz and Kev

So sorry to hear your news, but at least the quick resonse should bring good results from the velcade and dex. I do hope there aren't many side effects and that you are able to have a good summer.

Very best wishes.

Mavis x

Hi Deborah
Welcome to the site,I think Dai has summed Velcade up.
My husband had 6 cycles and found it better than having CTD but he had a few problems with the first line treatment.It does depend on your mothers age how many injection she has in one week,the older patients (80) seem to have one injection.My husband is 67 and he had 2 injections…[Read more]

Dear Carol
I am so sorry for your loss,you do not mention if you have children,if you have they will give you the strength you need at this time.

I think you have to ask yourself would you wish him back in such pain,do not grieve for him,but grieve for yourself,he is at peace and now you have to find your own peace.You have not had much time…[Read more]

Hi Dai
you can lead a horse to water but you cannot make it drink!!!!you name it I have tried it,he understands how important it is,the least mention of a drink,and I am badgering the kitchen or off to the shop.he said he feels like knocking back a pint,but cannot do it,small cold sips is his limit.
All the thing he is lacking are on drips,plus…[Read more]

Hi Eva and Sue

As you know slim is in the middle of his SCT.
He went in on a Sunday, only 50% of chemo given on Monday,the next day was a rest day,them harvest fed back.he is not recovering very quickly a bit at a time,he has had his own platelets plus some more plus injections of growth factor.His platelets stood at 7.5 last time I…[Read more]

Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc…[Read more]

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

Dear Eve

I'm so glad, that after so many hurdles, Slim has at last had his SCT. Another few weeks and he will wonder what he was worrying about as he looks forward to his "new life" and that trip to New Zealand.

You know we are all rooting for you both.

Lots of love.

Mavis xx

Hi Dai

I'm also thrilled that Rev and Dex are doing the job! Just sorry you had a tortuous wait to find out they were working, with all the lows that that inevitably caused. What is it about blood results that they can't just give us a print out as a routine thing. I only found my PP level had gone down to 4 by specially asking the nurse to…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Dear Paul

So sorry that things aren't going as well as we would have hoped. I can understand you being pxxxxx off! We must all get to the point, from time to time, when things aren't goinmg well, of thinking "is it all worth it?" Good job that at heart you are such a fighter. I know things will work for you – do hang on in there. It is…[Read more]

Hello all
Really appreciate the support!
Dai-Thanks for the article, I have found it very helpful and its injected some positive juices back into me.

Andy-Thanks for the insight on your stay in hospital,it does seem we are similar in our issues.
Going to wales this weekend and weather is good so looking forward before hospital on…[Read more]

Hello Elfriede!

I noticed this is your first post on the board so wanted to welcome you to our band of fellow MMers and their families.

I have no knowledge of the blood disorderyou mentioned but hopefully one of our many members does.

With love
Eliz
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