Hi Pete
Glad you now active on the web site.When first diagnosed I had a tumor in lower neck/top of back area which was treated with radiotherapy so far successfully. medical team were worried it would cause compression on spinal cord and loose mobility.As i say this has not happened and it has been treated.
MM also causes bone damage to…[Read more]

Hi Pete/Ann
I was diagnosed with Myeloma last Aug which started with back pain (which i still get).I am 40 so one of the younger end on the site.Just completed 4 cycles of PADS and getting ready for Stem cell transplant (SCT)in early June.If you have any questions about your Myeloma ask you're medical team,and of course this site…[Read more]

Hi David and Wendy
Great to hear both you're good news keep on keeping on!
cheers Paul

Dear Sally

Welcome to this Web Site. I am sure you will find it a great help especially as you are naturally feeling down at the moment. I'm so sorry you have had this relapse. Of course you would have hoped for a longer remission, but it is good that you are responding well to Velcade. Think, three years ago you wouldn't have automatically…[Read more]

Is it only happening with newly uploaded profile pics, Sruart?

Eliz
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I now live in Bournemouth and haven't visited The Wells since my Mum moved out of the old house in the St John's area in the summer of 2008.

Have they improved the Kent & Sussex hospital since then?

Eliz
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What a small world, Mari, as I lived in Tun Wells from the age of 5 (58 years ago) and we moved my Mum away from there only about 4 years ago.

Eliz
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Welcome CharlieLouise

So sorry your Nan has been diagnosed with MM and that you are having to come to terms with it all. With a young family you are going to have a busy time!

All best wishes.

Mavis

Hi Ann

So sorry that your husband has had to join us, but I know you will find lots of support on this site.

As you will be gathering MM is a very varied disease. It could well be that your husband may find he doesn't need to move to treatment yet, or perhaps just bone strengthening infusions. Sometimes it is just "wait and see" at the…[Read more]

Welcome to the club which none of us asked to join, CharlieLouise, your nan is lucky to have such a caring grandaughter!

I just had a thought about where you could ask those questions if it is not possible at the consultant appointment – I was allocated a specialist nurse when I was diagnosed and was able to contact her at any time with any…[Read more]

Hi Carol!
I am also on facebook now and again, use it mainly for posting family photos and keeping up wiht what they are doing rather than posting what we are up to. 😉

Look for me as Elizabeth Law – at the moment I think I have the same profile picture as I have here.

Hello Stan

Welcome,I can well understand your concerns,have you mentioned to the doctor the MM history?

Some Myeloma,s do not give any indication in the blood,there are number of different Myeloma,s and the correct blood test plus urine test have to be done. This will indicate if myeloma is possible,the only positive test is a bmb,if they…[Read more]

Hi Tracey

Just quick reply as doing this on I pad in hospital

Slim takes Amitriptyine 10m to help him sleep they have just upped his dose to 25m because they also use this for PN as this is used for PN might be worth asking you doctor. Eve

Hi Duncan, Yes you are in the right place, if you ring Ellen she will be able to tell you about it plus send you booklets. There are a few people on here with Amyloids so I am sure they will reply when they see your post. I believe there are only about 600 cases a year and Royal Free is the…[Read more]

Hi All
They are good profile picture,Think I will have to get my hair done and try it out .LOL Eve

Hi Ali
Welcome to the site,

I think we all worry when a new hospital,is on the cards,I know I did,,what you have to remember is they are designated units.All new to us,but something they deal with on a day to day bases.

It will seem over whelming at first,but treat it all as another learning curve,it will help if family go with your mum as…[Read more]

Hi Tracey

I am sitting here this morning,and the sun is coming up I have tears in my eyes,and truthfully I do not know why,I do not know if its because I read your post,and thought,poor girl or if I was just seeing myself a little bit further down the line.So it must be me just being a bit tearful.have to find my little white pills again,they…[Read more]

Hi Kay

Well done for taking on the challenge of the return to work.

I worry about your continuted pain. Have you asked to see the Pallitative Care Team? I know it sounds drastic when we want to think of ourselves as as normal as we can be, but they will treat us because we do have a life threatening illness. I have found it really helpful…[Read more]

Hi Tina

So glad you are last moving onto the Trial. All best wishes for that. I hope the drugs well and truly kick the MM into touch. Hope your shoulder is functioning well now and pain is bearable.

Love Mavis xxx