eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Dear Helen
What’s ironing lol!!!
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Hi Helen
Dog is fine just an old man the vet said,not to feed him on are rich food,but he does like smoked salmon and scrambled egg plus bacon butties.
Legs collapse every now and then,will not leave house when Slim is very ill,would not go out yesterday,but today went to beach be it all 15 minutes.
Gammon steak in a cheese sauce tonight!!!!. Lol.
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Thank you,for all your thoughts.
I very seldom leave Slim now,he has to be good before I think of going even to get a paper,today the district nurse came to change his driver and 2 carers came so I popped out with the dog,he knows he has to do a super fast pooh. Lol.
I have agreed to a hospice nurse for tonight!?, coming at 10 pm going at…[Read more]
eve replied to the topic The Future Six Months. in the forum Carers 10 years, 3 months ago
Hi all
As I am on thought I would let you know what is going on in are lives,hope it’s not to frightening but it does not seem like this to me.
Slim is on palliative care,plus we have two carers coming in 4 times a day,plus district nurse to do driver,I have back up medican and I often have to call the district nurses out any time,they work 24…[Read more]
eve replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Tom
It’s all that gallivanting and beer drinking lol!!!?
Go for it Tom,make the most of the time ,this is what every one should be doing,a bit of a rest will do you some good. Love Eve.
G&T for me please.
eve replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers 10 years, 3 months ago
Hi Dick
I know,I can always remember thinking,I wish I had known that at first,we try to cram all this information in and it is hard,Slims consultant was very good at answering my questions with ” don,t worry about that” hindsight is a wonderful thing! And the best place to come for knowledge is here on this site,there is always someone in front…[Read more]
eve replied to the topic Newcomer just diagnosed with multiple myeloma. in the forum Newcomers 10 years, 3 months ago
Hi Bryn and all the other new comers that have joined this post.
We all approach the news of Myeloma differently ,we were just glad we new what it was!!!!
Then you get all these books and you are having to make choices about things you do not know anything about,you spend time reading a book,but it’s hard to understand at first.
As Dick says…[Read more]
eve replied to the topic Is somebody trying to kill me? in the forum Off topic 10 years, 3 months ago
Hi David
Yes someone is trying to kill you!?, your body!
When it gets to this stage do you find it’s just something else to add to the list????
Slims was a SNCO Richard so that explains every thing,cannot see him repenting he is to stubborn!!!!
His own doctor came to see him yesterday as his dosage in his driver is very high,plus backup…[Read more]
mhnevill replied to the topic Losing dad after 19 years of MM in the forum End of Life and Grief 10 years, 3 months ago
Hi Hmj
I am so sorry to read of your Dad’d passing, but it is obvious he fought this dreadful Mm to the last.
It was generous of you to post at this sad time, because as Tony says, the story of your Dad’s 19 years will be an encouragement to so many of us.
I am sure that you will have inherited your Dad’s strength and determination to make…[Read more]
mhnevill replied to the topic Life in all its fullness in the forum End of Life and Grief 10 years, 3 months ago
Dear Sarah,
I believe it is your beloved amsrk’s service today. If I have got it right, I pray you will find much comfort, not only in the words of the service that Mark had lovingly prepared, but also in the many friends who will come to support you.
You are quite right! Our faith that death is not the end, gives us courage to go on, but it…[Read more]
mhnevill replied to the topic Eva Youren in the forum End of Life and Grief 10 years, 3 months ago
I would also like to express my sadness at Eva’s passing. She will be sadly missed. I send condolences to her family who will have stood alongside her and suffered too because of this awful illness.
Mavis
mhnevill replied to the topic Next treatment Revlimid in the forum Treatment 10 years, 3 months ago
Hi Maureen
Good to hear Ian has a new way forward. I do hope things go very well for him.
Best wishes to you both.
Mavis
mhnevill replied to the topic Short break from CDT – now on 5th cycle in the forum Treatment 10 years, 3 months ago
Hi Andrea
Glad you have been able to resume your CDT. I had six lots and it got me into complete remission and I have remained so for nearly 2years. For various reasons I didn’t go down the SCT route.
Hope things go really well for you.
Mavis
mhnevill replied to the topic Partial Remission in the forum Newcomers 10 years, 3 months ago
Hi Alison
As you have bone pain, are you on Zometa infusions? I swear mine have stopped me having any fractures from my many lesions.
Very best wishes.
Mavis
mhnevill replied to the topic Tianyi Wang Greetings in the forum Newcomers 10 years, 3 months ago
Hi Tianyl
Welcome to the Site none of us wished to qualify for! I am sure you will find it very helpful belonging. Do share your story and ask any questions.
Best wishes.
Mavis
eve replied to the topic Eva Youren in the forum End of Life and Grief 10 years, 4 months ago
Please pass on my condolences to her husband and sons.
I would like him to know that although Eva had not been posting for some time,I always had her in my thoughts,the last time I heard from her was when she was in London having treatment that would go on to her second SCT,staying at a B&B,that takes some courage to be alone in London waiting on…[Read more]
eve replied to the topic More problems in the forum Carers 10 years, 4 months ago
Loopyladye
Hi I do not usually reply without knowing some back ground,as this site is open,!!!
You are obviously going through a very hard time,and had to cope with a lot in a very short stretch of time,this can be very hard as it does take time to get your head in the correct frame of mind,everyone is going to tell you,you must look after…[Read more]
eve replied to the topic Off Chemo for a month in the forum General 10 years, 4 months ago
Hi David
Love ing it,grandfather in the nick. Lol
I could not dream of going in to my cupboard,would find I am associated with IRA Slim says I have the face and back ground lol.
Live is for living and you are making a good job of it!!!,so that’s what is important.
Best Wishers wishing Dai was around to correct everything,in a nice way!!!? Eve
eve replied to the topic Lambda light chain MM in the forum Newcomers 10 years, 4 months ago
Oh my that’s awful!!!
I agree my daughter in NZ sold here house 10 percent deposit,done and dusted !!
My youngest daughter has had the chain broken 4 times,moving anyway! Does need up heavily .
Sorry for taking over post Judy,you will find in time you will make cyber friends,!!!?,Eve
eve replied to the topic Car Parking at the Royal Marsden Sutton in the forum General 10 years, 4 months ago
Hi Debi
No problem if you are going to Sutton!!!! We travelled every week by car,massive car park pay anyway even disabled!!!! If you use a wheelchair all the time tiger is a little bit of parking before barrier,after barrier there are four lanes of disabled parking,but as I said you pay,most it has cost me is £14 !!!??
I use to find it easier…[Read more]