Hello Teresa

Glad Stuart clarified problem with Posts. I thought Moderator had taken against everyone's photo!!! Anyway, welcome to the site.

Don't know if I have got this right? You use "we" so do you and Peter both have MM? It seems very unlucky to have so much of it in your wider family. I guess most of us on here hadn't heard of it…[Read more]

Hi David

Hope these unpleasant side effects soon wear off.

Best wishes.

Mavis

Hi Andy

All the best for tomorrow – give it to them!

All best wishes.

Mavis

Hi Helen I know what you mean about facebook I dont think I could handle tweeting just cant get my head around it somehow!! I hope you shake off the pneumonia very soon it makes you feel wretched doesnt it Like you I was never ill till myeloma reared its ugly head but I have had pneumonia twice in the last few years I suppose chemo is as much to…[Read more]

Hi Helen this week has certainly been better than last !! I am coming to terms with the situationbut at the same time there are some questions I need to ask my doctors about possible treatments. I was thinking tonight that it would actually be easier , in some ways, if I were less aware about mm and the implications of various treatments , we…[Read more]

Hi tmc? as Helen said you are not burdening anyone we are all here for each other and most of us will need to let it out sometimes . I can understand a little of how you feel as since my diagnosis 5 and a half years ago I have been on every possible treatment since my sct All have failed to work for more than the shortest time and now I have no…[Read more]

Hi Andy good luck for Tuesday hope you dont have too many side-effects love Bridget x

Wishing you all the best for next week, Andy!

Eliz
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Dear Nicola and your family
Saying how sorry I am to hear that your Dad is taking his final journey so soon after being diagnosed seems too little, but like all the other members I am sending you my best wishes and hoping that all happens peacefully with you all together with your Dad.

Lots of cyberhugs from
Elizabeth
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Hi Everybody
Well things are moving fast now,all dates have been moved forward.

Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P

Off…[Read more]

Hi Debs thankyou and please dont be sorry for not seeing the post I have seen your facebook posts and its great to see you are getting back in the swing of things and feeling beeter than a few months ago So I am glad that you havent got time to come on here You are doing amazingly with your ball preparations I am totally in awe as I wouldnt know…[Read more]

Hi Zoe I am so sorry you and Dan are having to go through the nightmare that a diagnosis of myeloma brings especially as he is so young, I was 52 and still felt it was too young to have cancer It is a rollercoaster in the beginning because its all foreign even the words used sound strange but it will get easier I promise As Dans treatment gets…[Read more]

Dear Nicola

Just caught up with your very sad post. If they have put your Dad on the pathway the end must be near. I do hope he goes gently, suurounded as he is, by those who love him.

May God bless you all. You are in my prayers too.

Much love.

Mavis xxx

Dear Gem

Thank you so much for taking the trou8ble to answer me in such a difficult week. I do hope your Dad's funeral was a fitting clebration of his life.

Love.

Mavis

Dear Nicola I am so sorry it seems so unfair that you are going to lose him to this rotten illness after swuch a short time. I hope you can get him home but if you cant he will have the most important people in his life with him and will know how how much he is loved Your dad will never leave you , he will always be in your heart , wherever you…[Read more]

Hi Amelie

Sorry John's remission didn't last longer, but those two good years must have set him up well for the next SCT. Here's to a very long second remission. Do keep in touch.

Love to you both.

Mavis x

Hi Andy

Just wanted to add my best wishes for the new treatment. As they pump all these drugs into you, just imagine them kicking the pesky* MM cells into touch, and let's hope it does the trick.

* Wanted to use much stronger word, but thought it might not get past the moderator!!

Love.

Mavis

Hi Eliz

Thank you so much for your encouraging post and your encouragement. Do hope things go well for you on your MM journey.

Love.

Mavis

Hi Tina we are in a similiar position I also have a tumour on my spine which is very close to causing spinal compression Because I have already had radiotherapy on that site I was only able to have one dose this time . So back on Dex and hoping it keeps it at bay Hope the pain gets sorted soon, make sure they know how bad it is love Bridget x

Hi Andy sorry Velcade didnt do the trick hopefully DT Pace will . I had this a few years ago and its fine whilst you are having it but watch out when you get home it can knock you for six!! You will need to check your temperature regularly as it can set off an infection which needs very prompt treatment Fingers crossed it will be fine for you ,…[Read more]