Hi Paul I am sure you arent the only one to delay filling in those forms. I was like it too at first My advice is to get a Macmillan benefits advisor to help check your entitlement and fill in the forms with you If Macmillan arent avaialable try the hospital social worker Good luck love Bridget x

Hi chris
I have not replied to a post of yours yet but must say "congrats" for the up and coming wedding good to hear some real good news.
cheers Paul

My dear Bridget

I am gutted at your latest post – missed earlier because of grand childrens visit. (A great but exausting few days!)

What to say? Your positive approach must stand you in good stead and I will be praying for a miracle.

Enjoy these days of no infusions! I'm so glad you've got a supportive family around you. Will think of…[Read more]

Hi Tina

How I sympathise with you over water intake. I know it's so important to me, but I really struggle with it. I hate our tap water (and feel guilty about it!) I have to drinl squash which my son-in-law says are full of carcigens! Your post reminded me I must try harder!!!

Best wishes.

Mavis

Hi Dai

Glad you have at last got…[Read more]

Have a lovely time in Venice, Val!

I went there a couple of times in the 60's and would love to revisit as there was so much to see in such a small area.

Eliz
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Hi Chris

Good to hear from you. Glad PP levels are going down steadily.

What lovely news about your forthcoming wedding. I'm sure it will be a very special day and brting some well needed normality into your life to put against the invsion of the dreaded MM.

I'm not going to put any bets on you not getting to pension age though! You…[Read more]

Hi Keith thankyou for the info but I did get a laptop , no patience at all !! In the end I got a decent one in the sale at PC World It was advertised at £520 before the sale and reduced to £310 Whilst I dont believe their pre-sdale price was that high I have seen the same one for over £400 so am quite pleased It does everything I need it to and I…[Read more]

Hi Chris
Congratulations on your forth coming wedding,you can say one thing about this B—-y Myeloma,it does put every thing into perspective.

Slim and I lived together for 30 years decided to get married before mm came along just never got round to it,finally set a date,but never made it as he ended up in ITU,so are marrage took place in…[Read more]

Hi Chris great to hear things are going well Congratulations for your wedding, at least you should have some sunshine , you are so right it really helps to have something good to look forward to. Good luck wth the insurance company the older I get the more I think they are a bunch of crooks!! Stay well and happy Bridget

Like everyone else I was so sorry to read of your latest news, Bridget. 🙁

Sending you cyberhugs

Eliz
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Hi Tina
Fluid is a must,I have the same problem getting water down Slim,I bought 2 plastic jugs with lids,and fill them up with week juice,and put in fridge,Slim found it easier to have a small glass,so kept it filled up constantly,he went through a stage of fizzy drinks,my attitude was anything that goes down,you will find your taste alter all…[Read more]

Hi Sue
So many years of fighting for drugs,again like Bridget it seems so unfair,I am amazed at these criteria they have,MM patients lay them selves out to become guinea pigs ,and they get choosy who they take,are MM patients part of the grand scheme or just a by product to be disposed off if you do not meet the criteria.
Sorry I sound so angry…[Read more]

Dear Jo I am sorry your dad lost his fight against this horrible illness No wonder you are all in shock but stay strong and together you will get through it Remember all the good times , your dad will always be with in your memories Bridget

Thank you all for your lovely wishes and kind words Its at times like this that we appreciate good friends who understand, I am so thankful that I found this site way back when !! I am less shell shocked now and I keep thinking of random things which leave poor Jeff rather puzzled But on the whole I am being a bit of an ostrich and burying my…[Read more]

Hi Bridget
Just catching up on posts since my discharge from MM hospital issues,Gorden Bennett you are going through the mill.Since i came on this site you have been a tower of strength and always give out good sound advice.I know you will keep possitive and your advice of just listen to your body is so true.
lots love Paul

Hi Bridget

Just reading you news,and wondering what to say,sorry does not seem fitting, it is strange the way,over time with this MM it becomes another hurdle to get over,and now you are being told there are no more hurdles,well Bridget if you are prepared to jump the hurdles,they should at least be prepared to find some.
I like most people on…[Read more]

Well I had clinic today and it wasnt a pleasant experience to say the least Basically I have had all the myeloma treatments over the last five years and none has worked for any significant time The team at UCH have been looking for a trial but that is no longer an option due to the fact I am a non- secretor Its possible they may retry…[Read more]

Hi Amelie sorry to hear John didnt get a longer remission but quite a few people have said they found their second sct easier than the first one so try not to worry too much . I dont know why Thalidomide was chosen its something that his doctors would be able to tell you. I think you may be thinking of ice pops to suck whilst he is having his…[Read more]

Hi Jacqueline

So sorry that your Father has this rare development of myeloma.

I send you my love and prayers.

Mavis