Hi Bridget
Sorry to hear your having a hard time,i can understand you not wanting to go back another day for treatment,but all that time at hospital must have left you exhausted:-S lets hope it works.Eve

Hi everyone just a little update Today I saw the radiotherapist and their decision was that I could have have one dose of radiotherapy on the tumour I think they would have preferred to do more but because I have had treatment on the same site before they were unable to They were very good though as I was able to have the scan and treatment…[Read more]

Hi Dai blimey you are going to have a full on day Monday ! Still it will be worth it if you get on the trial All fingers toes etc are crossed for you love Bridget x

Hi Sylvia good to hear from you but sorry you are back on treatment Eloquent seems an unusual name for a trial made me chuckle! When I was on Rev and Dex the fatigue was a bit overwheming but you do get used to it Constipation can also be a problem , my docs reccommended using 3 different types of laxatives regularly eg Movicol , Senna and…[Read more]

Hi Cinzia poor you sickness is really horrible . I have founf Odansetron to be the best ant-sickness meds , it can be given as IV before your chemo Have a chat with the nurses I am sure they can come up with something love Bridget x

Hi Terry it seems wrong in this age of wireless technology that wifi access isnt available especially when you are stuck in hospital. If your home broadband is with BT they have wifi access all over the place and its free , you can download a map to see which is the nearest London has loads Good luck on the 5th you will be home before you know…[Read more]

Hi Everyone

Thanks for the info Ellen,I know this is a complicated complaint,but hope you understand how lack of knowledge does not help the patient.
Good luck Dai with your bottle,!!!
Hi Min no holiday yet,as have had a number of hospital appointments,hoping to fit a cruise in before May,looking good.
Min believe it or not if Peter is like…[Read more]

Dear Min when I read your post it made me a little sad You have been a towethat you are able to move on , as you said r of stregth to so many of us , always good sensible advice tempered with kindness , even when things were really tough for you Thankyou for your kindness and wisdom . Whilst you will be missed by so many of us I am pleased for…[Read more]

Hi Jill
My husband has just finished a course of Velcade which he found ok,except for the hospital visits at your mums age they will only do it once a week,but first it,s blood then velcade and it can be combined with her Zometa so one less hospital visit. It does depend on what hospital you attend some can do the whole process under 2 hrs.some…[Read more]

Hi Dai
Min is right about less liquid needs to be day before 24 hr bottle.!!!!

If I am correct Dai you have Kappa Light Chain like Slim,so bloods do not detect it and urine is the marker,so as Min says how do they know you have it back,have you had a MRI scan or BMB,if its showing in light chain test it has to be going through the kidneys…[Read more]

Great to be able to put a face to the name, Mavis!

Eliz
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Hi Dai I will cross fingers and toes that you get that 0.5% you need Good luck love Bridget x

Hi Mavis thankyou for posting your photo its lovely and so nice to see your smile love Bridget x

Dear David

Hope you soon feel better.

Mavis x

Hi Graham

Glad you feel you are being treated like a human being at last by NHS. All the best for your tests however and whenever they happen. Must admit, waiting isn't fun, but then I remind myself I don't want to wish my life away.

Your have probably read all about MGUS. It isn't MM, but there is a belief about now that we will all have…[Read more]

Hi Tom
At least your eating breakfast even if I cannot see it,explains those cheeky choppers,nice to see a healthy face,Slim loves his breakfast,scrambled egg and smoked salmon on toast this morning,trying to wean him off bacon sausage and fried bread,needs to put on weight but needs good weight,it,s not working as the minute I reduce fat intake…[Read more]

Hi Ros
I would agree with Mavis,mums have to have very broad shoulders your the one person she can hurt,and you would still forgive her time to toughen up lady she is no longer a child and is responsible for her own actions.

There comes a time when people cross a line,get on with your life Ros,Michael would want you to be happy.
What this…[Read more]

Hi David sorry you have got landed with a nasty cough hopefullly you wont have it long If your temperature stays on the high side it would be worth a visit to your gp to be on the safe side though. Get well soon love Bridget x

Hi Mavis…

Thank you…I will ask for one of those x x