Carol Symons

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  • #87791

    Carolsymons
    Participant

    My collar bone fractured due to the myeloma gremlins chewing through it on 31 March this year and I was admitted to Ealing Hospital London. Because it was a pathological fracture (no fall etc etc) they immediately started tests, blood, urine, CT scan (looking for other primary cancers) MRI scan, skeletal survey and bone marrow biopsy. Within days they started muttering about this cancer i had never heard about called multiple myeloma. Haemotology consultant appeared around 4 April suggesting myeloma. Bone marrow biopsy confirmation came on 11 April. 12 days from fracture to diagnosis and I have no other symptoms-AMAZING! Now I know people knock the NHS and disparage Ealing Hospital, but in my 3 weeks there and subsequent treatment with radiotherapy at Charing Cross and now the CTD (cyclophosphamide, thalidomide and dexamethasone) drug treatment I have only praise for the whole system. If I were home in Australia there is no way I would have received this service free via our public health system. I think it is time for you to stand up and shout loudly….or try tears-they work too sometimes! Excuse the wordy reply but today is a 20 steroid tablet day….can't shut me up even on the iPad!

    #87738

    Carolsymons
    Participant

    Thanks Tom. I just read some of your older posts -you have really been put to the test…hope the next harvest goes OK. I asked about the PADIMAC trial but the consultant at Ealing didn't seem to want me to do it. This is all so new and such a minefield. It seems as though having the collar bone tumour hasn't affected your response to the initial treatment so that gives me hope that I may respond well too.

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