[CarolynjaneParticipant]

Dear Charlotte
I'm so glad to hear all is good with you. I totally agree with you, there is no point worry about what might happen. I have decided that the here and now is far more important and in some way I feel extremely lucky. As with you I have allowed work to take over slightly more than I would like and I never seem to have enough sleep. Although, that's down to my poor time management rather than anything else 🙂 I have always been a larger lady but through all of this I lost quite a lot of weight,so I focus on eating healthy. I would like to exercise to but I do get tired very easily. I think its a good idea to continue blood tests every 3 months and I will do the same so that any changes can be spotted straight away. Anyway my Son has just arrived home from school so must go and feed him. So great to hear from you. Keep in touch. Carolyn x

[CarolynjaneParticipant]

Dear Charlotte
I have only just read your post dated 28/11/2012 and may I say thanks for your support and advice. I hope all is still going well for you and that your not finding to difficult to put all this to the back of your mind, which I battle to do every day.
I have been told I am currently in remission and my tumor has reduced in size following radiotherapy last summer. I am in less pain thankfully and manage most things easily. The only thing concerning me right now is the fact that my light chains are not reducing, although, they are not increasing either. My Doctor said he would like to have seen a reduction in my light chains following radiotherapy but didn't seem too concerned. I will be seeing Dr Blessing again on Friday 13th September so I will try to gain a clearer picture if that's possible. All in all I'm feeling pretty good and hope you are too. Would love to hear from you soon. Take care. Carolyn

[CarolynjaneParticipant]

Dear Charlotte
I have only just read your post dated 28/11/2012 and may I say thanks for your support and advice. I hope all is still going well for you and that your not finding to difficult to put all this to the back of your mind, which I battle to do every day.
I have been told I am currently in remission and my tumor has reduced in size following radiotherapy last summer. I am in less pain thankfully and manage most things easily. The only thing concerning me right now is the fact that my light chains are not reducing, although, they are not increasing either. My Doctor said he would like to have seen a reduction in my light chains following radiotherapy but didn't seem too concerned. I will be seeing Dr Blessing again on Friday 13th September so I will try to gain a clearer picture if that's possible. All in all I'm feeling pretty good and hope you are too. Would love to hear from you soon. Take care. Carolyn

[CarolynjaneParticipant]

Dear Charlotte
I have only just read your post dated 28/11/2012 and may I say thanks for your support and advice. I hope all is still going well for you and that your not finding to difficult to put all this to the back of your mind, which I battle to do every day.
I have been told I am currently in remission and my tumor has reduced in size following radiotherapy last summer. I am in less pain thankfully and manage most things easily. The only thing concerning me right now is the fact that my light chains are not reducing, although, they are not increasing either. My Doctor said he would like to have seen a reduction in my light chains following radiotherapy but didn't seem too concerned. I will be seeing Dr Blessing again on Friday 13th September so I will try to gain a clearer picture if that's possible. All in all I'm feeling pretty good and hope you are too. Would love to hear from you soon. Take care. Carolyn

[CarolynjaneParticipant]

I would just like to say Hi Charlotte.
My name is Carolyn and I was diagnosed with a solitary plasmacytoma of my sacrum in January this year. I have had 4 weeks of radio therepy and I'm currently waiting for results from my most recent blood tests. My doctor has suggested waiting until next year to do another scan as it may still be too early to see any results. I am still in pain and hoping this will get better. Its great to read such positive messages and I have also been given a 50/50 chance of my cancer developing into myeloma, but thats 50% it won't!!! I am 40 and some days are easier than others, I do get very tired but I think that must be the same for all of us.

All the best
Carolyn

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