Myeloma Forum | LyndaBurn | Activity https://forum.myeloma.org.uk/members/Catlyn/activity/ Activity feed for LyndaBurn. Fri, 03 Apr 2026 12:01:17 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 16c1c07af56bd7220c485659d2bb723b LyndaBurn replied to the topic Colin SCT plan b! in the forum Treatment http://www.myeloma.org.uk/forums/topic/colin-sct-plan-b/page/4/#post-100215 Tue, 04 Sep 2012 15:56:46 +0100 Hi Vicki and Colin
Just got home and read your news and I am so gutted for you both.Glad you pre-booked an appointment with your consultant for THursday. At least you know that it wont be so long before you can talk to someone and hopefully get Plan C. You must tell that man of yours to stop being so stubborn and give out those cells. They are…[Read more]

]]> 0d2925b6963cc444a5d6a7caa85f9af6 LyndaBurn replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100416 Mon, 03 Sep 2012 19:53:17 +0100 Hi there Tom,
Your encouragement was much appreciated by Pete and myself.You have done amazingly well and I hope it will continue for many, many years to come.

I think Pete worries that its such a big thing to go through but knowing that you are a couple of years post SCT and still smiling has made us both feel better.
Love Lynx

]]> ec687006c73eff67005e5cd9e071de7f LyndaBurn replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100417 Mon, 03 Sep 2012 19:45:30 +0100 Hi Michelle

Thanks so much for your reply. I will take your good advice and take each step at a time. My knitting is pretty awful but I will certainly take a very large book!!!
I will let you know how we get on next week.Hope things are going well for you and you get a really, really long remission.
Best wishes Lynx

]]> e6b741cd581a9dc222f8c30977d49a84 LyndaBurn replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100412 Mon, 03 Sep 2012 19:28:26 +0100 Hi Jean
I really hope things will work out well for Frank and that he will get his SCT in the New Year. I can only imagine your face when that man was describing his experience!
The lovely people on the forum seem to give you all the info you need. They tell it like it is but give you hope and encouragement as well.
I will continue to post as…[Read more]

]]> dd3adb891517598b120a1e96f2a62621 LyndaBurn replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100410 Sun, 02 Sep 2012 23:13:33 +0100 Hi Ali
Thanks so much for your support.Hope Mum is gaining strength after her SCT and is feeling like doing more. What a date of diagnosis! Petes was 5th November so Guy Fawkes is a date we wont forget.
I will keep in touch. Please continue to post and let us know how Mum and yourself are doing.
Lyn xx

]]> d79321193763bb6b5af16e877745dbfb LyndaBurn replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade#post-100408 Sun, 02 Sep 2012 20:35:36 +0100 Hi Vicki,
Thanks so much for replying to our post. Its nice to know that we are not alone in experiencing these anxieties and all the ups and downs that this mm slings at us.
Fingers,toes and anything else will be crossed for Colin and yourself tomorrow at Bristol. You both deserve this to go right and I am sure it will.I too feel its a…[Read more]

]]> 620118ab7f9d888e3322529116652a83 LyndaBurn started the topic Another joining the Stem Cell Transplant Brigade!. in the forum Treatment http://www.myeloma.org.uk/forums/topic/another-joining-the-stem-cell-transplant-brigade Sun, 02 Sep 2012 17:33:11 +0100 Hi everyone
Its been a while since I last posted as had terrible trouble getting Internet(a battle between Sky & BT but thats another story).Husband Pete was diagnosed with myeloma November 2011,and after five months on Thalidomide and four months on Velcade has been told he is now ready for stem cell transplant.He has his Cyclophosphamide on…[Read more]

]]>