[CatlynParticipant]

Hi Eve
I too have e.mailed my husbands details to Sara so we will get a reply soon.
Lyn

[CatlynParticipant]

Hi Vicki and Colin
Just got home and read your news and I am so gutted for you both.Glad you pre-booked an appointment with your consultant for THursday. At least you know that it wont be so long before you can talk to someone and hopefully get Plan C. You must tell that man of yours to stop being so stubborn and give out those cells. They are returned you know!!!!
You got me thinking about what we had been told and I found a Cyclophosphamide priming sheet they had sent from Southampton for next week and it states we would get 7 – 10 days GCSF injections.
I know you must both feel incredibly frustrated to say the least and you are a worrier like me Vicki but like Jean said write down everything you want to ask on Thursday and hopefully they will come up with a good productive plan C.
Will be thinking of you both. Love from Lyn xx

[CatlynParticipant]

Hi there Tom,
Your encouragement was much appreciated by Pete and myself.You have done amazingly well and I hope it will continue for many, many years to come.

I think Pete worries that its such a big thing to go through but knowing that you are a couple of years post SCT and still smiling has made us both feel better.
Love Lynx

[CatlynParticipant]

Hi Michelle

Thanks so much for your reply. I will take your good advice and take each step at a time. My knitting is pretty awful but I will certainly take a very large book!!!
I will let you know how we get on next week.Hope things are going well for you and you get a really, really long remission.
Best wishes Lynx

[CatlynParticipant]

Hi Jean
I really hope things will work out well for Frank and that he will get his SCT in the New Year. I can only imagine your face when that man was describing his experience!
The lovely people on the forum seem to give you all the info you need. They tell it like it is but give you hope and encouragement as well.
I will continue to post as it is making me feel better about hubbie Pete next week and also hope that I will in turn be able to offer advice and hope to those people following on behind.
Love Lyn & Petexx

[CatlynParticipant]

Hi Ali
Thanks so much for your support.Hope Mum is gaining strength after her SCT and is feeling like doing more. What a date of diagnosis! Petes was 5th November so Guy Fawkes is a date we wont forget.
I will keep in touch. Please continue to post and let us know how Mum and yourself are doing.
Lyn xx

[CatlynParticipant]

Hi Vicki,
Thanks so much for replying to our post. Its nice to know that we are not alone in experiencing these anxieties and all the ups and downs that this mm slings at us.
Fingers,toes and anything else will be crossed for Colin and yourself tomorrow at Bristol. You both deserve this to go right and I am sure it will.I too feel its a rollercoaster but when your on it your heart wants you to get off but your head says come on this is the breakthrough we are looking for and the chance to live life again and do all those things you want to do.
Please keep us posted and we will both be thinking of you guys tomorrow.
Lyn and Pete x

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